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Bill Nye the Science Guy is speaking at the 2024 Annual Ataxia Conference! Register now.  LEARN MORE!

Our Vision:

A World Without Ataxia.

Ensuring no one experiences Ataxia alone, until no one experiences Ataxia, period.

Our Mission

To accelerate the development of treatments and a cure while working to improve the lives of those living with Ataxia.

Join ACCELERATE! To Get Involved

Accelerate! is a $1 million annual fund to accelerate our ability to improve the lives of those living with Ataxia. It is designed to raise funds in order to speed up our advocacy efforts, including:

  • New legislation important to our community and progress
  • Add more resources for the 65+ support groups
  • Educate our community about genetic testing including providing genetic counseling and testing for all those living with Ataxia 
  • Create a national, regional, and local Ataxia Awareness campaign to accelerate the understanding of Ataxia.

Become a Member of NAF for FREE!

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Join the growing number of people that want to stay connected with the Ataxia community! Sign up today. It only takes a few moments. Our members receive:

  • News and research opportunities about their specific type of Ataxia as it becomes available.
  • Early access to free webinars
  • NAF’s eNewsletter and Generations publications. 

NAF BLOGS

Jerry’s Story

I’m actually reluctant to tell my story as it’s far from positive. Currently my tremors are more disabling than my balance issues, which are dreadful. I suppose I noticed things Read More…

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Accessible Activities in Florida

Are you traveling somewhere? Don’t assume that an activity isn’t accessible! Jessica, who has Ataxia and uses a wheelchair, traveled to the Florida Keys with her parents in June 2023. Read More…

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Intro to Centers for Independent Living

According to the National Council on Independent Living, Centers for Independent Living (or CILs) are community-based, cross-disability, non-profit organizations that are designed and operated by people with disabilities. Kory Macy, Read More…

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Parna Mukherjee

I was born in a family with SCA2 back in India. My father had the symptoms of Ataxia as well as all his five siblings. At that time, it was Read More…

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Jency W

I got diagnosed at 40 after always walking awkward and 2 years of being unsteady. Now I’m going to start physical therapy and apply for SSDI. It’s sad for me, Read More…

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2024 NAF Research Grants

NAF Awarded a Record Number of Projects in 2024 18 Studies Funded Totaling $845k Funded! We had our most competitive year ever for Ataxia research grant applications! As a result Read More…

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WHAT IS ATAXIA?

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EVENTS

Apr 24, 2024 12:00 pm - 01:00 pm
NAF Science Showcase: Dr. Hannah Shorrock

CENTRAL TIME ZONE Explore a past NAF research grant awardee’s funded study, gaining scientific insights about their Ataxia research. Dr. Hannah Shorrock will present the research, “A CAG expansion selective Read More…

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Apr 24, 2024 01:00 pm - 02:00 pm
Johns Hopkins University Music Therapy Session

EASTERN TIME ZONE This group is based around music listening: sharing songs, listening together, and reflecting on the music and lyrics.   Meeting Information Spring Music Therapy sessions run every Read More…

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Apr 26, 2024 03:00 pm - 05:00 pm
Global Support Group (Hope For Ataxia) Meeting – 1st Session

EASTERN TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is Read More…

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Apr 26, 2024 06:00 pm - 08:00 pm
Global Support Group (Hope For Ataxia) Meeting – 2nd Session

EASTERN TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is Read More…

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