Welcome to the National Ataxia Foundation

 

2017 “I Am The Strength Behind The National Ataxia Foundation” Award Winners

   
     Marc Alessi    Kathleen Gingerelli


Sweeney Family


Schut Family

 

Honored 2017 Ataxia Clinicians & Researchers

   
Distinguished Achievement Award
Huda Zoghbi, MD
Exceptional Service Award
Henry Paulson, MD, PhD

 

NAF unveiled a brand new logo at the AAC! The new logo was designed to encompass our proud past and prepare us to move into our focused future. The concepts incorporated in the design: the font and the bold color of the "NAF" symbolize strength. The circle connected to the A is to demonstrate NAF's philosophy of bringing ataxia families, researchers, clinicians, and the community together. The gold portion of the circle represents hope for finding treatment and a cure. The light blue represents compassion felt through our entire community.

Read our latest E-newsletter for more details. To receive the E-newsletter sign up for NAF E-blasts at http://www.ataxia.org/contact/contact-form.aspx#OCF. If you have previously opted out of receiving emails from the NAF through Constant Contact you can opt back into receiving emails from NAF through Constant Contact, but you will need to complete this form http://tinyurl.com/j2tsqon.

 

Legislative Action Alert

  The National Ataxia Foundation strongly opposes H.R. 1313. This bill will undermine decades of patient protections such as the Americans with Disabilities Act, (ADA) and Genetic Information Nondiscrimination Act (GINA) which forbids employers from requiring or requesting genetic testing. Fight with NAF to preserve your right to privacy and protection from workplace and societal discrimination. Speak out now! Write to your local representative and spread the word. If you would like your voice heard on this important issue, you may contact your local house and senate representatives to speak out against H.R. 1313.
 To Track the Status of the Bill:
https://www.congress.gov/bill/115th-congress/house-bill/1313
To Contact Local House Representative:
http://www.house.gov/representatives/find/
To Contact Local Senate Representative:
https://www.senate.gov/senators/contact/

 

2017 Research Lay Summaries are now available

Learn what your generous donations will support in ataxia research. Click on this link.

 

Ataxia Research Prepares for Clinical Trials


The NAF Board of Directors approved funding of a Clinical Research Consortium for Ataxia. This program will provide financial support for one year to academic medical centers across the United States. These sites will develop the tools necessary to perform clinical Ataxia research. Initial funding was provided by a generous donation from the Gordon and Marilyn Macklin Foundation. This is a significant time in Ataxia research and the National Ataxia Foundation will continue to support these important endeavors that will find treatments and a cure. For more information visit http://www.ataxia.org/research/clinical-research-consortium.aspx.


 


Member Stories

NAF would like to invite members to share their story to increase Ataxia awareness and support for the NAF mission. NAF would like to extend a huge thank you to our members that have so generously shared their story. Share your member story by email with naf@ataxia.org. Member Stories can be read on the Member Stories Page.