Board of Directors & Medical Research Advisory Board

Board of Directors

  • President
    William P. Sweeney *
    Minneapolis, MN 55419-1214
  • Vice-President
    Camille Daglio *
    Hattiesburg, MS 39404
  • Treasurer
    Charlene Danielson *
    Minnetonka, MN 55345
  • Secretary
    Dave Zilles *
    Atlanta, GA 30350
  • Joseph DeCrescenzo *
    Newark, DE
  • Sam Kirton *
    NFairfax, VA 22030
  • John Mauro *
    Auburn, MA 01501-1822

  • Medical Liaison
    Lawrence Schut, MD
    Maple Lake, MN 55358
  • NAF Research Director
    Harry T. Orr, PhD
    University of Minnesota
    Minneapolis, MN
  • NAF Medical Director
    Susan Perlman, MD
    UCLA Neurological Services
    David Geffen School of Medicine
    Los Ángeles, CA 90025
  • Assoc. Research Director
    Laura Ranum, PhD
    University of Florida, College of Medicine
    Gainesville, FL 32610-3610

  • Directors
  • Harold Crawford
    Terry, MS 39170
  • Denise Drake
    Kenner, LA
  • Julie Schuur
    Luverne, MN
  • Greg Rooks
    Atlanta, GA 30313-1132
  • Wilson Romero
    New Iberia, LA 70560-9234
  • Marilyn Schut Lee
    St. Cloud, MN 56301
  • Michael Leader
    Hershey, PA 17033

* Executive Committee Members


Key Personnel

  • Joel Sutherland
    Executive Director
    National Ataxia Foundation
    Minneapolis, MN
  • Susan Hagen
    Patient and Research Services Director
    National Ataxia Foundation
    Minneapolis, MN


Medical Research Advisory Board

  • Research Director
    Harry T. Orr, PhD
    Director of Institute for Translational Neuroscience
    Tulloch Professor of Genetics
    University of Minnesota
    Minneapolis, MN
  • Associate Research Director
    Laura Ranum, PhD
    Professor of Molecular Genetics and Microbiology
    Director, Center for Gene Discovery and Neurological Disease
    University of Florida, College of Medicine
    Gainesville, FL
  • Medical Director
    Susan Perlman, MD
    Clinical Professor
    UCLA Neurological Services
    David Geffen School of Medicine
    Los Angeles, CA
  • Medical Liaison
    Lawrence Schut, MD
    Maple Lake, MN
  • Tetsuo Ashizawa, MD, FAAN
    Methodist Hospital Research Institute
    Houston, TX
  • Khalaf Bushara, MD, MRCP
    University of Minnesota
    Minneapolis, MN
  • Beverly Davidson, PhD
    Children’s Hospital of Philadelphia
    Philadelphia, PA
  • Brent L. Fogel, MD, PhD
    David Geffen School of Medicine
    University of California, Los Angeles
    Los Angeles, CA
  • Christopher M. Gomez, MD, PhD
    University of Chicago
    Chicago, IL
  • Joanna Jen, MD, PhD
    UCLA School of Medicine
    Los Angeles, CA
  • Bronya Keats, PhD
    Bungendore, New South Wales, Australia
  • Albert La Spada, MD, PhD, FACMG
    University of California, San Diego
    La Jolla, CA
  • David Lynch, MD
    Univ. of Pennsylvania
    Philadelphia, PA
  • Puneet Opal, MD, PhD
    Northwestern University Feinberg School of Medicine
    Chicago, IL
  • Gülin Öz, PhD
    Center for Magnetic Resonance Research
    University of Minnesota
    Minneapolis, MN
  • Massimo Pandolfo, MD
    Universite Libre de Bruxelles-Hopital
    BruxellesBelgium
  • Henry Paulson, MD, PhD
    University of Michigan Medical Center
    Ann Arbor, MI
  • Christopher Pearson, PhD
    The Hospital for Sick Children
    Toronto, Ontario
  • Stefan Pulst, MD
    University of Utah Health Sciences Center
    Salt Lake City, Utah
  • Jeremy D. Schmahmann, MD
    Harvard Medical School
    Boston, MA
  • Vikram Shakkottai, MD, PhD
    University of Michigan
    Ann Arbor, MI
  • S.H. Subramony, MD
    University of Florida
    Gainesville, FL
  • George ”Chip” Wilmot, MD, PhD
    Emory University
    Atlanta, GA
  • Robert B. Wilson, MD, PhD
    University of Pennsylvania
    Philadelphia, PA
  • Huda Zoghbi, MD
    Baylor College of Medicine
    Houston, TX