Events Calendar

Saturday, May 27, 2017

Los Angeles Ataxia Support Group Meeting

2-4pm at the Veterans Memorial Complex, 4117 Overland Ave, Culver City, CA 90230. For more information contact Lora Morn at loramorn@gmail.com or Harvey Kahn at 562-686-9720.

Saturday, May 27, 2017

New Hampshire Ataxia Support Group Meeting

10am - Noon at the Villa Crest Nursing and Retirement Home, 1276 Hanover St, Manchester, NH. For more information or to RSVP contact Jill Porter at 603-626-0129 or jilleporter@comcast.net.

Friday, June 2, 2017

FRDA Patient Focused Drug Development Meeting

8:00 a.m. to 12:30 p.m. at College Park Marriott Hotel & Conference Center. This meeting is an opportunity to tell the FDA and drug developers about challenges and burdens you have experienced with Friedreich Ataxia. This marks the first time that patients and family members affected by FRDA will be able to speak directly to the FDA. If you cannot attend in-person, join online via streaming webcast. Applications for Travel Scholarships will be accepted from April 15-April 25. For more information contact Sue Hagen at susan@ataxia.org. Visit the link below to register.
http://www.curefa.org/conference

Saturday, June 3, 2017

Greater Atlanta Ataxia Support Group Picnic

1pm at Lake Lanier, 1360 Buford Dam Rd, Buford, GA 30518. For more information contact atlantaataxia@gmail.com or 404-822-7451.

Saturday, June 3, 2017

Rhode Island Ataxia Support Group Meeting

11am - 2pm at the Bristol Community Center, 101 Asylum Road, Bristol, RI. For more information contact Anabela Azevedo at azevedo70anabela@gmail.com or 401-297-8627.

Saturday, June 3, 2017

Seattle Rare Disease Fair

11am - 4pm at Westlake Park, Seattle, WA. One in ten people in the United States suffer from a rare disease. That is 30 million people in the US. Come learn about what makes a disease or disorder "rare," learn about different rare medical conditions, what questions remain unanswered, and what you can do about it. Come get inspired!
http://www.rarediseaseseattle.org/

Saturday, June 3, 2017

Treasure Coast Ataxia Support Group Meeting

11:30am - 3:30pm at the Buffalo Chophouse, 918 SW Gatlin Blvd, Port St. Lucie, FL 39453. Come and make new connections, share your experiences, and learn from others. For more information or to be added to this group’s mailing list contact Lisa Cole at lisacoleataxia@gmail.com or 772-370-3041.

Monday, June 5, 2017

Rare on the Road - Rare Disease Leadership Tour

8:30am at the Kauffman Foundation Conference Center, 4801 Rockhill Road, Kansas City, MO 64410. RARE on the Road will bring critical education and insights to rare disease patients, advocates and caregivers, while collaborating in an interactive and engaging environment. Building on the successful 2016 EveryLife Foundation Regional Legislative Conferences, RARE on the Road will focus on an expanded agenda that includes topics from Capacity Building to the Patients’ Role in Drug Development, including breakout sessions and hands-on workshops. Visit the event website for more information.
http://action.everylifefoundation.org/p/salsa/event/common/public/?event_KEY=8866

Wednesday, June 7, 2017

Western PA Ataxia Support Group Meeting

7pm at the Bethel Park Community Center, 5151 Park Avenue, Pittsburgh, PA. For more information contact Ed Schwartz at eds@ataxia.org or 724-941-2210.

Saturday, June 10, 2017

Central Minnesota Ataxia Support Group Meeting

10am - 12pm at 1038 Sunset Ridge Rd, St. Cloud, MN 56303. For more information contact Marsha Binnebose at 320-248-9851 or mbinnebose@hotmail.com.

Saturday, June 10, 2017

Greater Houston Ataxia Support Group Meeting

9:30am at the Houston Food Bank, 535 Portwall St, Houston, Texas, TX 77029. For more information contact Dolly Richards at 979-900-6660 or lumoos@hotmail.com.
https://www.facebook.com/groups/ataxia.houston/permalink/1119322904844146/

Saturday, June 10, 2017

Kansas City Ataxia Support Group Meeting

12-2 pm at the Northeast Library, 6000 Wilson Rd, Kansas City, MO 64123. For more information contact Stephanie Wilkins at 816-623-3318 or sfwilkins@yahoo.com.

Saturday, June 10, 2017

Mid-Atlantic Ataxia Social Group Sailing and Lunch Event

10am - Noon at Downtown Sailing Center - Dock A, Baltimore, MD. Admission is free. Assistance, coaching, and guidance is provided. The sailboats are non-capsizable accessible dinghies. This is a great opportunity to have fun and meet the Johns Hopkins Ataxia Center Team. Following the event appetizers will be provided at Little Havana Restaurant, Space for this event is limited and registration is required. to register for the is event visit the link below. For more information contact Donna Neuworth at 410-616-2811 or ddeleno@jhmi.edu.
http://downtownsailing.org/event-2389698

Saturday, June 10, 2017

North Texas Area Ataxia Support Group Meeting

10am - Noon at the Ben Washington Baptist Church - Rev Jr Sheppard Educational Center, 615 Davis St, Irving, TX 75061. There is lots of parking and it is handicap accessible. The meeting room is in a separate bldg from the church. For more information contact David Henry at cheve11e@sbcglobal.net.

Saturday, June 10, 2017

Oklahoma Ataxia Support Group Meeting

1-4pm at Hibachi Supreme Buffet (in the Private Room),1012 W. I-240 Service Road, Oklahoma City, OK 73139. Directions: Between Penn and Western in South Oklahoma City on South side of I-240. For more information contact Christopher DeHaven at photoman94@gmail.com or 405-387-9227.
https://www.facebook.com/groups/421890291503549/permalink/428669084159003/

Sunday, June 11, 2017

Bike Journey to Cure Ataxia

On June 11, 2017 Dana Creighton will be participating in a 60 mile bike journey to benefit the National Ataxia Foundation(NAF). My goal is to raise $10,000 for all those affected by this cruel and mysterious disease. Help Dana raise awareness and funds to fight back against this heartless disease. Raising awareness is important but raising money is ESSENTIAL for everyone living with Ataxia, those who provide care to people with Ataxia, and those who will someday be affected personally by it.
https://ataxia.donorpages.com/201760For60/ataxiadonorpagescom/

Wednesday, June 14, 2017

Willamette Valley Ataxia Support Group Meeting - Albany Location

11:30am-1pm at Albany Hospital – 4th Floor Conference Room, 1046 6th Ave SW, Albany, OR 97321. For more information contact Jason Wolfer at wolfer.jason@gmail.com or 503-502-2633.

Friday, June 16, 2017

Palo Alto Ataxia Support Group Meeting

1-2:30pm at the Stanford Neuroscience Health Center, Room 3871, Stanford, CA. For more information contact Victoria Tanoury, RN, CNRN at 650-736-1399 vtanoury@stanfordhealthcare.org or Sarah Kahn, Nurse Coordinator at skahn@standfordhealth.org.

Saturday, June 17, 2017

NCASG - Sacramento Area Ataxia Support Group Meeting

1-4pm at Sutter Roseville Medical Center - Meeting Room 8, 1 Medical Plaza Dr, Roseville, CA 95661. We meet on the third Saturday of each month. For more information or to be added to this group's mailing list contact Teresa Bredberg at 916-215-2686 or tbredberg@sbcglobal.net.

Saturday, June 17, 2017

Nebraska Ataxia Support Group Meeting

11am-1pm at Creighton Prep High School, 7400 Western Ave, Omaha, NE. Guest speaker will talk about respite care. For more information contact Linda Snider at 402-212-3060 or lindasnider@cox.net.

Saturday, June 17, 2017

Orange County Ataxia Support Group Meeting

2-4pm at Orange Coast Memorial Medical Center Hospital, Breast Cancer Center-Pacific Coast Room, 9900 Talbert Ave, Fountain Valley, CA 92708. For more information contact Cindy DeMint at cindyocataxia@gmail.com.
http://orangecountyataxia.org/

Saturday, June 17, 2017

Twin Cities Ataxia Social Group

The Twin Cities Ataxia Support Group meets once a month. Family and friends of an afflicted individual are always welcome! We meet on the third Saturday of every month at 10:00am for 2 hours in a meeting room at Langton Place which is located on the south side of the road on County Road D roughly four tenths of a mile east of I35W in Roseville at 1910 W. CTY. RD. D., ROSEVILLE, MN 55112. We wanted to provide a central location that it easy to access which is why we picked this place. Please join us, and make new connections! For more information contact Lenore Healey Schultz at 612- 724-3784 or schultz.lenore@yahoo.com.

Friday, June 23, 2017

Chicago Abilities Expo

June 23-25, 2017 at the Renaissance Schaumburg Convention Center, 1551 North Thoreau Dr, Schaumburg, IL 60173
http://www.abilities.com/chicago/

Saturday, June 24, 2017

New Hampshire Ataxia Support Group Meeting

10am - Noon at the Villa Crest Nursing and Retirement Home, 1276 Hanover St, Manchester, NH. For more information or to RSVP contact Jill Porter at 603-626-0129 or jilleporter@comcast.net.

Saturday, June 24, 2017

Treasure Coast 60 for 60 Walk n' Roll to Cure Ataxia

9:30am Meet | 9:45am 1.5 mile Walk from Jaycee Park to Jetty Park. Jaycee Park is Located at the intersection of South Ocean Drive and Melaleuca Drive on the Indian River Lagoon, Fort, Pierce, FL 34950. To join our Team or Donate please visit our event website. All proceeds benefit the National Ataxia Foundation (NAF). For more information please contact Lisa Cole at 772-370-3041 or lisacoleataxia@gmail.com.
https://ataxia.donorpages.com/201760For60/TreasureCoastAtaxiaSupportGroup/

Friday, June 30, 2017

NCATS Advocacy Day — Partnering with Patients for Smarter Science

John Edward Porter Neuroscience Research Center - National Institutes of Health, 35 Convent Drive, Bethesda, Maryland. Save the date for the inaugural NCATS Advocacy Day — Partnering with Patients for Smarter Science. The purpose of the event is to inform patients and their advocates about NCATS and its programs, identify patient needs, and collectively discuss ways for improved patient inclusion in NCATS’ translational science activities. The full day event features presentations, interactive activities and a poster session. Designed for patients, families, caregivers and patient advocacy groups, the event will foster an open dialogue among patients and their advocates to discuss common translational science roadblocks, brainstorm ideas for improvement, and apply that knowledge to strengthen patient and community engagement at NCATS.
https://ncats.nih.gov/events#advocacy

Wednesday, July 5, 2017

Western PA Ataxia Support Group Meeting

7pm at the Bethel Park Community Center, 5151 Park Avenue, Pittsburgh, PA. For more information contact Ed Schwartz at eds@ataxia.org or 724-941-2210.

Saturday, July 8, 2017

Central Minnesota Ataxia Support Group Meeting

10am - 12pm at 1038 Sunset Ridge Rd, St. Cloud, MN 56303. For more information contact Marsha Binnebose at 320-248-9851 or mbinnebose@hotmail.com.

Saturday, July 8, 2017

North Texas Area Ataxia Support Group Meeting

10am - Noon at the Ben Washington Baptist Church - Rev Jr Sheppard Educational Center, 615 Davis St, Irving, TX 75061. There is lots of parking and it is handicap accessible. The meeting room is in a separate bldg from the church. For more information contact David Henry at cheve11e@sbcglobal.net.

Saturday, July 8, 2017

Northern California Ataxia Support Group Meeting

11am - 3pm at Our Savior's Lutheran Church, 1035 Carol Ln, Lafayette, CA 94549. You can RSVP to the meeting directly from the group website below and then clicking on the meetings and entering your name and the number in your party.
http://www.norcalataxia.org

Saturday, July 8, 2017

Treasure Coast Ataxia Support Group Meeting

12-3pm at the Palm Beach Gardens Clubhouse, 2104 Canterbury Dr, Palm Beach Gardens, FL 33418. Gate attendees can provide directions to the clubhouse. For more information contact Lisa Cole at 772-370-3041 or lisacoleataxia@gmail.com.

Sunday, July 9, 2017

Disability Pride NYC Parade & Festival

11am Gather at Union Square - March, Roll, Ride down 5th Ave to Washington Square Park. 12-3pm Festival with music, dance, comedy, and speakers. Celebrate ADA's 27th anniversary. For more information visit the event website.
http://disabilitypridenyc.org/

Wednesday, July 12, 2017

Willamette Valley Ataxia Support Group Meeting - Albany Location

11:30am-1pm at Albany Hospital – 4th Floor Conference Room, 1046 6th Ave SW, Albany, OR 97321. For more information contact Jason Wolfer at wolfer.jason@gmail.com or 503-502-2633.

Thursday, July 13, 2017

Tri State Ataxia Support Group Meeting

6:30pm - 8:30pm at Mount Sinai Beth Israel Medical Center - Phillips Ambulatory Care Center - 2nd Floor, Conference Room, 10 Union Square East, New York, NY. Please join us! We look forward to seeing you! For more information, please contact Kathleen Gingerelli at kgingerelli@msn.com.

Saturday, July 15, 2017

Denver Area Ataxia Support Group Meeting

1-4pm at the Swedish Medical Center, 501 E Hampden Ave, Englewood, CO 80113 - 2nd floor Conference Rooms. For more information or to be added to this group's mailing list contact Charlotte DePew at 720-379-6887 or cldepew77@comcast.net.

Saturday, July 15, 2017

Greater Atlanta Ataxia Support Group Meeting

1-3pm at Emory Rehabilitation Hospital, 1441 Clifton Road, NE Room 101, Atlanta, GA 30322. For more information contact atlantaataxia@gmail.com or 404-822-7451.

Saturday, July 15, 2017

NCASG - Sacramento Area Ataxia Support Group Meeting

1-4pm at Sutter Roseville Medical Center - Meeting Room 8, 1 Medical Plaza Dr, Roseville, CA 95661. We meet on the third Saturday of each month. For more information or to be added to this group's mailing list contact Teresa Bredberg at 916-215-2686 or tbredberg@sbcglobal.net.

Saturday, July 15, 2017

Nebraska Ataxia Support Group Grill Out

11am-2pm at Lake Zorinsky, Omaha, NE. Burgers and hot dogs provided. For more information contact Linda Snider at 402-212-3060 or lindasnider@cox.net.

Saturday, July 15, 2017

Rare on the Road - Rare Disease Leadership Tour

8:30am at the Shriners Hospital for Children, 3101 SW Sam Jackson Park Road, Portland, OR 97239 . RARE on the Road will bring critical education and insights to rare disease patients, advocates and caregivers, while collaborating in an interactive and engaging environment. Building on the successful 2016 EveryLife Foundation Regional Legislative Conferences, RARE on the Road will focus on an expanded agenda that includes topics from Capacity Building to the Patients’ Role in Drug Development, including breakout sessions and hands-on workshops. Visit the event website for more information.
http://action.everylifefoundation.org/p/salsa/event/common/public/?event_KEY=8867

Saturday, July 15, 2017

Twin Cities Ataxia Social Group

The Twin Cities Ataxia Support Group meets once a month. Family and friends of an afflicted individual are always welcome! We meet on the third Saturday of every month at 10:00am for 2 hours in a meeting room at Langton Place which is located on the south side of the road on County Road D roughly four tenths of a mile east of I35W in Roseville at 1910 W. CTY. RD. D., ROSEVILLE, MN 55112. We wanted to provide a central location that it easy to access which is why we picked this place. Please join us, and make new connections! For more information contact Lenore Healey Schultz at 612- 724-3784 or schultz.lenore@yahoo.com.

Saturday, July 22, 2017

New Hampshire Ataxia Support Group Meeting

10am - Noon at the Villa Crest Nursing and Retirement Home, 1276 Hanover St, Manchester, NH. For more information or to RSVP contact Jill Porter at 603-626-0129 or jilleporter@comcast.net.

Saturday, July 22, 2017

Wisconsin Ataxia Support Group Meeting

12-2 at the Sequoya Library, 4340 Tokay Blvd, Madison, WI. For more information contact Kory Tabor at kstab77@yahoo.com or 608-237-6090.

Saturday, July 29, 2017

Central Pennsylvania Ataxia Support Group Meeting

11am - 1pm at Muhlenberg Community Library, Laureldale, PA. For more information contact Mike Cammer at 610-996-5814 or michael.cammer62@hotmail.com.

Wednesday, August 2, 2017

Western PA Ataxia Support Group Meeting

7pm at the Bethel Park Community Center, 5151 Park Avenue, Pittsburgh, PA. For more information contact Ed Schwartz at eds@ataxia.org or 724-941-2210.

Friday, August 4, 2017

Houston Abilities Expo

August 4-6, 2017 at NRG Center, Hall E, One NRG Park, Houston, TX 77054
http://www.abilities.com/houston/

Saturday, August 5, 2017

Arizona Ataxia Support Group Meeting

1pm at Ability 360, 5025 E Washington Street, Phoenix, AZ 85034. For more information contact Mary Fuchs at 480-212-6425 or mary11115@msn.com.

Saturday, August 5, 2017

Rhode Island Ataxia Support Group Meeting

11am - 2pm at the Bristol Community Center, 101 Asylum Road, Bristol, RI. For more information contact Anabela Azevedo at azevedo70anabela@gmail.com or 401-297-8627.

Saturday, August 5, 2017

Treasure Coast Ataxia Support Group Meeting

1-4pm at PSL Community Center, 2195 SE Airoso Blvd, Port St Lucie, FL 34984. For more information contact Lisa Cole at 772-370-3041 or lisacoleataxia@gmail.com.

Wednesday, August 9, 2017

Willamette Valley Ataxia Support Group Meeting - Albany Location

11:30am-1pm at Albany Hospital – 4th Floor Conference Room, 1046 6th Ave SW, Albany, OR 97321. For more information contact Jason Wolfer at wolfer.jason@gmail.com or 503-502-2633.

Saturday, August 12, 2017

Central Minnesota Ataxia Support Group Meeting

10am - 12pm at 1038 Sunset Ridge Rd, St. Cloud, MN 56303. For more information contact Marsha Binnebose at 320-248-9851 or mbinnebose@hotmail.com.

Saturday, August 12, 2017

Hu-Manifest

9am-Midnight at Playground Production Studios, 5529 Bonna Ave Ste 10 Indianapolis, IN 46219. Hu-Manifest is a yoga music festival located in historic Irvington presenting various forms of health and wellness lifestyles, exercise, discipline, motivational speakers, health education, live music, and dance performances. Hu-Manifest's mission is to raise awareness about Ataxia and celebrate the human creative spirit. All donations and a portion of event ticket sales benefit the National Ataxia Foundation (NAF). For event tickets or more information please contact Playground Productions Studio (317) 678-PLAY (7529) info@PlygroundProductionsStudio.com.

Saturday, August 12, 2017

Kansas City Ataxia Support Group Meeting

12-2 pm at the Northeast Library, 6000 Wilson Rd, Kansas City, MO 64123. For more information contact Stephanie Wilkins at 816-623-3318 or sfwilkins@yahoo.com.

Saturday, August 12, 2017

North Texas Area Ataxia Support Group Meeting

10am - Noon at the Ben Washington Baptist Church - Rev Jr Sheppard Educational Center, 615 Davis St, Irving, TX 75061. There is lots of parking and it is handicap accessible. The meeting room is in a separate bldg from the church. For more information contact David Henry at cheve11e@sbcglobal.net.

Saturday, August 19, 2017

NCASG - Sacramento Area Ataxia Support Group Meeting

1-4pm at Sutter Roseville Medical Center - Meeting Room 8, 1 Medical Plaza Dr, Roseville, CA 95661. We meet on the third Saturday of each month. For more information or to be added to this group's mailing list contact Teresa Bredberg at 916-215-2686 or tbredberg@sbcglobal.net.

Saturday, August 19, 2017

Nebraska Ataxia Support Group Meeting

11am-1pm at Creighton Prep High School, 7400 Western Ave, Omaha, NE. Guest speaker will lead wheelchair yoga session. For more information contact Linda Snider at 402-212-3060 or lindasnider@cox.net.

Saturday, August 19, 2017

Orange County Ataxia Support Group Meeting

2-4pm at Orange Coast Memorial Medical Center Hospital, Breast Cancer Center-Pacific Coast Room, 9900 Talbert Ave, Fountain Valley, CA 92708. For more information contact Cindy DeMint at cindyocataxia@gmail.com.
http://orangecountyataxia.org/

Saturday, August 19, 2017

Tampa Bay Ataxia Support Group Meeting

12:30-3pm at the University of South Florida - Morsani Center, 13330 Laurel Dr #1013, Tampa, FL 33612. For more information contact Darlene Harris msdee004@yahoo.com 813-431-2859 or Linda Farrow at lndfrrw2@gmail.com.

Saturday, August 19, 2017

Twin Cities Ataxia Social Group

The Twin Cities Ataxia Support Group meets once a month. Family and friends of an afflicted individual are always welcome! We meet on the third Saturday of every month at 10:00am for 2 hours in a meeting room at Langton Place which is located on the south side of the road on County Road D roughly four tenths of a mile east of I35W in Roseville at 1910 W. CTY. RD. D., ROSEVILLE, MN 55112. We wanted to provide a central location that it easy to access which is why we picked this place. Please join us, and make new connections! For more information contact Lenore Healey Schultz at 612- 724-3784 or schultz.lenore@yahoo.com.

Saturday, August 26, 2017

New Hampshire Ataxia Support Group Meeting

10am - Noon at the Villa Crest Nursing and Retirement Home, 1276 Hanover St, Manchester, NH. For more information or to RSVP contact Jill Porter at 603-626-0129 or jilleporter@comcast.net.

Saturday, August 26, 2017

Tri-State Walk n' Roll to Cure Ataxia

Liberty State Park, 1 Audrey Zapp Drive, Jersey City, NJ 07305. All proceeds benefit the National Ataxia Foundation. To volunteer or for more information please contact Kathleen Gingerelli kgingerelli@msn.com or 201-681-7639.

Sunday, August 27, 2017

NE Ohio Walk n' Roll to Cure Ataxia

10am Registration / 11am Walk n' Roll at Cleveland Metroparks Lakefront Reservation - Edgewater Park, Upper Edgewater West Reserved Shelter (Located off Route 6/Memorial Shoreway), 6500 Cleveland Memorial Shoreway, Cleveland, OH 44102. No Registration Fee - Donations Gladly Accepted. Participation and donations for our event's silent auction is welcome and appreciated. All proceeds benefit the National Ataxia Foundation (NAF). To volunteer or for more information please contact Julie Clarich at Julieplus3@gmail.com or (440) 666-6078.

Sunday, August 27, 2017

Rockin For Ataxia

1-5pm at Cheers (Formerly Sullivan's Pub), 4660 147th St, Midlothian, IL 60445. Come and have a rockin' good time raising funds to help end Ataxia! All proceeds benefit the National Ataxia Foundation. This event will include live entertainment, raffle, auction, cash bar, and pizza appetizers. Admission is $20 Advance/$25 At Door. Visit the event website for more information.
http://ataxia.org/fundraiser/rockinforataxia

Wednesday, September 6, 2017

Western PA Ataxia Support Group Meeting

7pm at the Bethel Park Community Center, 5151 Park Avenue, Pittsburgh, PA. For more information contact Ed Schwartz at eds@ataxia.org or 724-941-2210.

Friday, September 8, 2017

Boston Abilities Expo

September 8-10, 2017 at the Boston Convention & Exhibition Center - Hall C, 415 Summer Street, Boston, MA 02210
http://www.abilities.com/boston/

Saturday, September 9, 2017

Central Minnesota Ataxia Support Group Meeting

10am - 12pm at 1038 Sunset Ridge Rd, St. Cloud, MN 56303. For more information contact Marsha Binnebose at 320-248-9851 or mbinnebose@hotmail.com.

Saturday, September 9, 2017

Minnesota Walk, Stroll n' Roll to Cure Ataxia

9am Registration & Social Hour / 10am Walk & Program at Wolfe Park, 3700 Monterey Drive, St. Louis Park, MN (Parking at the St. Louis Park Recreation Center). No Registration Fee - Donations Only. All proceeds benefit the National Ataxia Foundation (NAF). To volunteer or for more information please contact Wendy Sweeney at wendysweeney1@comcast.net.

Saturday, September 9, 2017

North Texas Area Ataxia Support Group Meeting

10am - Noon at the Ben Washington Baptist Church - Rev Jr Sheppard Educational Center, 615 Davis St, Irving, TX 75061. There is lots of parking and it is handicap accessible. The meeting room is in a separate bldg from the church. For more information contact David Henry at cheve11e@sbcglobal.net.

Saturday, September 9, 2017

Treasure Coast Ataxia Support Group Meeting

2-4:30pm at Southwest Library-Community Room, 7255 Della Dr, Orlando, FL 32819. For more information contact Lisa Cole at 772-370-3041 or lisacoleataxia@gmail.com.

Saturday, September 9, 2017

Walk for Dave to Cure Ataxia

12-3pm at Cornell Botanic Gardens - F.R. Newman Arboretum, Arboretum Rd, Ithaca, NY 14850. This walk is to raise ataxia awareness and funds for the National Ataxia Foundation in Memory of David Alessi. Registration $10.00 Per Participant. All proceeds benefit the National Ataxia Foundation (NAF). To volunteer or for more information please contact Marc Alessi at(315) 506-3260 or mja244@cornell.edu.

Sunday, September 10, 2017

Denver Walk n' Roll to Cure Ataxia

8:30am - 10:30am at the Denver City Park, Denver, CO. All proceeds benefit the National Ataxia Foundation. For more information or to volunteer contact Charlotte DePew at cldepew77@comcast.net or 253-720-8132.
http://www.ataxia.org/walk/denver

Wednesday, September 13, 2017

Willamette Valley Ataxia Support Group Meeting - Albany Location

11:30am-1pm at Albany Hospital – 4th Floor Conference Room, 1046 6th Ave SW, Albany, OR 97321. For more information contact Jason Wolfer at wolfer.jason@gmail.com or 503-502-2633.

Thursday, September 14, 2017

Tri State Ataxia Support Group Meeting

6:30pm - 8:30pm at Mount Sinai Beth Israel Medical Center - Phillips Ambulatory Care Center - 2nd Floor, Conference Room, 10 Union Square East, New York, NY. Please join us! We look forward to seeing you! For more information, please contact Kathleen Gingerelli at kgingerelli@msn.com.

Saturday, September 16, 2017

Glow In The Park To Cure Ataxia

6:30pm - 9pm at Hap McLean Park, 6801 N Hydraulic, Park City, KS 67219. Join us an evening of fun and a chance to win a raffle prize to raise ataxia awareness and funds for the National Ataxia Foundation!. For kids there will be a small carnival with a few games including a fish pond, face paint, and a bean bag toss. For adults that come we have Zumba and contests for who get dressed up the most and who can Zumba the longest. All proceeds benefit the National Ataxia Foundation (NAF). For more information or to volunteer contact Jalean Retzlaff at (312) 303-2351 or jlrtrolls@yahoo.com.

Saturday, September 16, 2017

NCASG - Sacramento Area Ataxia Support Group Meeting

1-4pm at Sutter Roseville Medical Center - Meeting Room 8, 1 Medical Plaza Dr, Roseville, CA 95661. We meet on the third Saturday of each month. For more information or to be added to this group's mailing list contact Teresa Bredberg at 916-215-2686 or tbredberg@sbcglobal.net.

Saturday, September 16, 2017

OC Walk n' Roll to Cure Ataxia

8am Registration | 9am 1 mile Walk n' Roll at East Lake Village Community Association - Club House Parking Lot, 5325 Village Center Drive, Yorba Linda, CA. Free event t-shirt to the first 300 participants present at the event. We will have a DJ, opportunity drawing for participants, vendors showing their products/services, children's activities including face painting, balloon animals, and games, and a chance to unite with other affected by ataxiaAll proceeds benefit the National Ataxia Foundation. For more information or to volunteer contact Cindy DeMint at cindyocataxia@gmail.com.
http://orangecountyataxia.org/

Sunday, September 17, 2017

Go On 3! To Cure Ataxia

I'm Mike Cammer and I have ataxia. This year on September 17th, I am entering the "Tour de Shunk" for the 4th year in a row! I have entered to ride my trike the entire 102 miles!!! Please help support my challenge to "GO ON 3! To Cure Ataxia" and complete my ride in the "Tour de Shunk"! All donations benefit the National Ataxia Foundation.
http://ataxia.donorpages.com/2017GoOn3/

Saturday, September 23, 2017

Atlanta Walk n' Roll to Cure Ataxia

9:30am Registration/10:00am Walk at Shorty Howell Park, 2750 Pleasant Hill Rd, Duluth, GA 30096. Come and learn about ataxia while having fun raising funds for NAF. The event is a 1.25 mile Walk or Roll around the Shorty Howell Park. The event is followed by refreshments, ataxia information, and team recognition for the most dollars raised. No Registration Fee - Donations Only. All proceeds benefit the National Ataxia Foundation (NAF). To volunteer or for more information please contact the Atlanta Ataxia Support Group at (404) 822-7451 or atlantaataxia@gmail.com.

Saturday, September 23, 2017

Little Bit Country...Little Bit Rock n' Roll

St. Elizabeth Ann Seton Church Hall, 345 Bear-Christiana Rd, Bear, DE 19701. Join us for a fun evening of music, food, drink, and raffles. Please donate to NAF is lieu of an entry fee by visiting the event website. All proceeds benefit the National Ataxia Foundation (NAF). Thank you for your support! For more information please contact Joe & Cathy Decrescenzo at jdecr26@verizon.net or 302-369-9287.
http://ataxia.donorpages.com/2017LittleBitCountryLittleBitRocknRoll/

Saturday, September 23, 2017

New Hampshire Ataxia Support Group Meeting

10am - Noon at the Villa Crest Nursing and Retirement Home, 1276 Hanover St, Manchester, NH. For more information or to RSVP contact Jill Porter at 603-626-0129 or jilleporter@comcast.net.

Saturday, September 23, 2017

Utah Walk n' Roll to Cure Ataxia

11am-2pm at Layton Commons Park - Phase 1 Pavilion, 437 N Wasatch Dr, Layton, UT 84041. No Registration Fee - Donations Only. Come and learn about ataxia while having fun raising funds for NAF. All proceeds benefit the National Ataxia Foundation (NAF). To volunteer or for more information please contact Lisa Ord, PhD, LCSW at (801) 585-6635 lisa.ord@hsc.utah.edu or Jenny Durrant jenny@utahataxia.org.
www.utahataxia.org

Saturday, September 23, 2017

Western PA Walk n' Roll to Cure Ataxia

9am Registration | 10am Walk n' Roll at Allegheny County South Park Corrigan Drive, South Park Township, PA 15129. No Registration Fee - Donations Only. Food...Music...Donate...Fun...Learn...Walk. All proceeds benefit the National Ataxia Foundation (NAF). To volunteer or for more information please contact Madalyn Gottschalk at (412) 926-8579 or samgotts32@gmail.com.

Monday, September 25, 2017

60 for 60

Starting Now through International Ataxia Awareness Day of September 25th. Be part of the 60 who will journey 60 miles to each raise $10,000 in recognition of NAF’s 60th Anniversary and in support of NAF’s focused future goals to end Ataxia! All proceeds benefit the National Ataxia Foundation. To register or support this campaign visit the event website below.
https://ataxia.donorpages.com/201760For60/

Monday, September 25, 2017

International Ataxia Awareness Day

The "International Ataxia Awareness Day" is an international effort from ataxia organizations around the world to dedicate September 25 as International Ataxia Awareness Day. The goal of IAAD is for every individual to participate in some activity, creating awareness about ataxia. You could share something you know about ataxia with one other person who has never heard of it, educate a group of people by speaking at a school or civic group, contact the media, or raise financial support.
http://www.ataxia.org/events/international-ataxia-awareness-day.aspx

Saturday, September 30, 2017

Nebraska Ataxia Support Group Engagement Paryy Fundraiser

5pm at Creighton Prep High School, 7400 Western Ave, Omaha, NE. This is a gala style fundraiser with a silent and live auction in addition to a presentation. Dress is casual. A portion of the proceeds from this event benefit the National Ataxia Foundation. For more information contact Linda Snider at 402-212-3060 or lindasnider@cox.net.

Saturday, September 30, 2017

New England Walk n' Roll to Cure Ataxia

9am Registration / 10am Walk n' Roll at Bristol Town Beach, 50 Asylum Rd, Bristol, RI 02809. Come and learn about ataxia while having fun raising funds for NAF. FREE, FAMILY, FUN! Entertainment and Raffle following Walk n' Roll. All proceeds benefit the National Ataxia Foundation (NAF). To volunteer or for more information please contact Jeannette Viveiros at (508) 837-3565 / jeannette@ataxia.org or John Mauro at john@ataxia.org.

Wednesday, October 4, 2017

Western PA Ataxia Support Group Meeting

7pm at the Bethel Park Community Center, 5151 Park Avenue, Pittsburgh, PA. For more information contact Ed Schwartz at eds@ataxia.org or 724-941-2210.

Saturday, October 7, 2017

New Hampshire Walk n' Roll to Cure Ataxia

9am Registration / 10am Walk n' Roll at the Aviation Museum of New Hampshire, 27 Navigator Rd, Londonderry, NH 03053. Come and learn about ataxia while having fun raising funds for NAF. FREE, FAMILY, FUN! Entertainment and Raffle following Walk n' Roll No Registration Fee - Donations Only. All proceeds benefit the National Ataxia Foundation (NAF). John Mauro at 508-736-6084 john@ataxia.org or Jill Porter at 603-626-0129 jilleporter@comcast.net.

Saturday, October 7, 2017

Oklahoma Walk n' Roll to Cure Ataxia

9am Registration / 10am Walk at Coalgate City Park, Coalgate, OK 74538. Come and learn about ataxia while having fun raising funds for NAF. The event is a Walk or Roll around the City Park Track. Walk n' Roll as many laps as you want - 1 Lap = 1 Mile. All proceeds benefit the National Ataxia Foundation (NAF). To volunteer or for more information please contact Tori Wood(580) 927-6566 or torifaye289@gmail.com.
https://www.facebook.com/OklahomaWalknRoll/

Saturday, October 7, 2017

Rhode Island Ataxia Support Group Meeting

11am - 2pm at the Bristol Community Center, 101 Asylum Road, Bristol, RI. For more information contact Anabela Azevedo at azevedo70anabela@gmail.com or 401-297-8627.

Saturday, October 7, 2017

Tea Time to Cure Ataxia

At the Aubrey Rose Tea Room, La Mesa, CA. Due to the overwhelming popularity of this tea, this year you will again have a choice of sitting at 11:00 am - 1:00 PM or 1:30 P.M. - 3:30 P.M. Please help us fill the tea room at both sittings. Ask your friends to join you, and plan now to attend. Cost is $35.00 per person. All proceeds benefit the National Ataxia Foundation. For more information contact Jane Jaffe at 619-286-9745 or sicilianmother@cox.net.

Saturday, October 7, 2017

Treasure Coast Ataxia Support Group Meeting

1-4pm at PSL Community Center, 2195 SE Airoso Blvd, Port St Lucie, FL 34984. For more information contact Lisa Cole at 772-370-3041 or lisacoleataxia@gmail.com.

Wednesday, October 11, 2017

Willamette Valley Ataxia Support Group Meeting - Albany Location

11:30am-1pm at Albany Hospital – 4th Floor Conference Room, 1046 6th Ave SW, Albany, OR 97321. For more information contact Jason Wolfer at wolfer.jason@gmail.com or 503-502-2633.

Saturday, October 14, 2017

Central Minnesota Ataxia Support Group Meeting

10am - 12pm at 1038 Sunset Ridge Rd, St. Cloud, MN 56303. For more information contact Marsha Binnebose at 320-248-9851 or mbinnebose@hotmail.com.

Saturday, October 14, 2017

Kansas City Ataxia Support Group Meeting

12-2 pm at the Northeast Library, 6000 Wilson Rd, Kansas City, MO 64123. For more information contact Stephanie Wilkins at 816-623-3318 or sfwilkins@yahoo.com.

Saturday, October 14, 2017

North Texas Area Ataxia Support Group Meeting

10am - Noon at the Ben Washington Baptist Church - Rev Jr Sheppard Educational Center, 615 Davis St, Irving, TX 75061. There is lots of parking and it is handicap accessible. The meeting room is in a separate bldg from the church. For more information contact David Henry at cheve11e@sbcglobal.net.

Saturday, October 14, 2017

Northern California Ataxia Support Group Meeting

11am - 3pm at Our Savior's Lutheran Church, 1035 Carol Ln, Lafayette, CA 94549. You can RSVP to the meeting directly from the group website below and then clicking on the meetings and entering your name and the number in your party.
http://www.norcalataxia.org

Saturday, October 21, 2017

Denver Area Ataxia Support Group Meeting

1-4pm at the Swedish Medical Center, 501 E Hampden Ave, Englewood, CO 80113 - 2nd floor Conference Rooms. For more information or to be added to this group's mailing list contact Charlotte DePew at 720-379-6887 or cldepew77@comcast.net.

Saturday, October 21, 2017

NCASG - Sacramento Area Ataxia Support Group Meeting

1-4pm at Sutter Roseville Medical Center - Meeting Room 8, 1 Medical Plaza Dr, Roseville, CA 95661. We meet on the third Saturday of each month. For more information or to be added to this group's mailing list contact Teresa Bredberg at 916-215-2686 or tbredberg@sbcglobal.net.

Saturday, October 21, 2017

Nebraska Ataxia Support Group Meeting

11am - 1pm at Hide A-way Grill, 744 W Park St, West Point, NE. For more information contact Linda Snider at 402-212-3060 or lindasnider@cox.net.

Saturday, October 21, 2017

Orange County Ataxia Support Group Meeting

2-4pm at Orange Coast Memorial Medical Center Hospital, Breast Cancer Center-Pacific Coast Room, 9900 Talbert Ave, Fountain Valley, CA 92708. For more information contact Cindy DeMint at cindyocataxia@gmail.com.
http://orangecountyataxia.org/

Saturday, October 21, 2017

Twin Cities Ataxia Social Group

The Twin Cities Ataxia Support Group meets once a month. Family and friends of an afflicted individual are always welcome! We meet on the third Saturday of every month at 10:00am for 2 hours in a meeting room at Langton Place which is located on the south side of the road on County Road D roughly four tenths of a mile east of I35W in Roseville at 1910 W. CTY. RD. D., ROSEVILLE, MN 55112. We wanted to provide a central location that it easy to access which is why we picked this place. Please join us, and make new connections! For more information contact Lenore Healey Schultz at 612- 724-3784 or schultz.lenore@yahoo.com.

Friday, October 27, 2017

Bay Area Abilities Expo

October 27-29, 2017
http://www.abilities.com

Saturday, October 28, 2017

Alabama Ataxia Support Group Meeting

10am - 2pm at Covenant Presbyterian Church, Homewood, AL. For more information contact Beck Donnelly at donnelly6132b@aol.com or 205-987-2883.

Saturday, October 28, 2017

Central Pennsylvania Ataxia Support Group Meeting

11am - 1pm at Muhlenberg Community Library, Laureldale, PA. For more information contact Mike Cammer at 610-996-5814 or michael.cammer62@hotmail.com.

Wednesday, November 1, 2017

Western PA Ataxia Support Group Meeting

7pm at the Bethel Park Community Center, 5151 Park Avenue, Pittsburgh, PA. For more information contact Ed Schwartz at eds@ataxia.org or 724-941-2210.

Saturday, November 4, 2017

Greater Atlanta Ataxia Support Group Meeting

1-3pm at Emory Rehabilitation Hospital, 1441 Clifton Road, NE Room 101, Atlanta, GA 30322. For more information contact atlantaataxia@gmail.com or 404-822-7451.

Saturday, November 4, 2017

Los Angeles Ataxia Support Group Meeting

2-4pm at the Veterans Memorial Complex, 4117 Overland Ave, Culver City, CA 90230. For more information contact Lora Morn at loramorn@gmail.com or Harvey Kahn at 562-686-9720.

Wednesday, November 8, 2017

Willamette Valley Ataxia Support Group Meeting - Albany Location

11:30am-1pm at Albany Hospital – 4th Floor Conference Room, 1046 6th Ave SW, Albany, OR 97321. For more information contact Jason Wolfer at wolfer.jason@gmail.com or 503-502-2633.

Thursday, November 9, 2017

Tri State Ataxia Support Group Meeting

6:30pm - 8:30pm at Mount Sinai Beth Israel Medical Center - Phillips Ambulatory Care Center - 2nd Floor, Conference Room, 10 Union Square East, New York, NY. Please join us! We look forward to seeing you! For more information, please contact Kathleen Gingerelli at kgingerelli@msn.com.

Saturday, November 11, 2017

Central Minnesota Ataxia Support Group Meeting

10am - 12pm at 1038 Sunset Ridge Rd, St. Cloud, MN 56303. For more information contact Marsha Binnebose at 320-248-9851 or mbinnebose@hotmail.com.

Saturday, November 11, 2017

North Texas Area Ataxia Support Group Meeting

10am - Noon at the Ben Washington Baptist Church - Rev Jr Sheppard Educational Center, 615 Davis St, Irving, TX 75061. There is lots of parking and it is handicap accessible. The meeting room is in a separate bldg from the church. For more information contact David Henry at cheve11e@sbcglobal.net.

Saturday, November 18, 2017

Arizona Ataxia Support Group Meeting

1pm at Ability 360, 5025 E Washington Street, Phoenix, AZ 85034. For more information contact Mary Fuchs at 480-212-6425 or mary11115@msn.com.

Saturday, November 18, 2017

Boston Ataxia Support Group Meeting

12-3pm at Mass General Hospital in the Yawkey Building - Yawkey 4 room 820, 55 Fruit Street, Boston, MA 02114. There is a garage underneath that building but I find that parking in that garage a bit difficult, it may be easier for people to use the garages in front of the hospital. Parking stickers will be available that can be used to comp the parking price. Stickers are good for max of 4 hours. There will be a light lunch and drinks provided donations are welcome to our Sunshine Fund. Please feel free if you like to bring a sweat. For more information contact John Mauro at john@ataxia.org or 508-736-6084.

Saturday, November 18, 2017

NCASG - Sacramento Area Ataxia Support Group Meeting

1-4pm at Sutter Roseville Medical Center - Meeting Room 8, 1 Medical Plaza Dr, Roseville, CA 95661. We meet on the third Saturday of each month. For more information or to be added to this group's mailing list contact Teresa Bredberg at 916-215-2686 or tbredberg@sbcglobal.net.

Saturday, November 18, 2017

Nebraska Ataxia Support Group Social Outing

Climbing Gym tentatively scheduled. For more information contact Linda Snider at 402-212-3060 or lindasnider@cox.net.

Saturday, November 18, 2017

Tampa Bay Ataxia Support Group Meeting

12:30-3pm at the University of South Florida - Morsani Center, 13330 Laurel Dr #1013, Tampa, FL 33612. For more information contact Darlene Harris msdee004@yahoo.com 813-431-2859 or Linda Farrow at lndfrrw2@gmail.com.

Saturday, November 18, 2017

Twin Cities Ataxia Social Group

The Twin Cities Ataxia Support Group meets once a month. Family and friends of an afflicted individual are always welcome! We meet on the third Saturday of every month at 10:00am for 2 hours in a meeting room at Langton Place which is located on the south side of the road on County Road D roughly four tenths of a mile east of I35W in Roseville at 1910 W. CTY. RD. D., ROSEVILLE, MN 55112. We wanted to provide a central location that it easy to access which is why we picked this place. Please join us, and make new connections! For more information contact Lenore Healey Schultz at 612- 724-3784 or schultz.lenore@yahoo.com.

Friday, December 1, 2017

DC Metro Abilities Expo

December 1-3, 2017
http://www.abilities.com/

Saturday, December 2, 2017

Orange County Ataxia Support Group Holiday Party

Location To Be Announced. For more information contact Cindy DeMint at cindyocataxia@gmail.com.
http://orangecountyataxia.org/

Wednesday, December 6, 2017

Western PA Ataxia Support Group Meeting

7pm at the Bethel Park Community Center, 5151 Park Avenue, Pittsburgh, PA. For more information contact Ed Schwartz at eds@ataxia.org or 724-941-2210.

Friday, December 8, 2017

Alabama Ataxia Support Group Social

Social event at B&A Warehouse in Birmingham, AL. For more information contact Becky Donnelly6132b@aol.com or 205-987-2883.

Saturday, December 9, 2017

Central Minnesota Ataxia Support Group Meeting

10am - 12pm at 1038 Sunset Ridge Rd, St. Cloud, MN 56303. For more information contact Marsha Binnebose at 320-248-9851 or mbinnebose@hotmail.com.

Saturday, December 9, 2017

Greater Atlanta Ataxia Support Group Christmas Potluck

1pm at 328 Mell Ave, Suite B, Atlanta, GA 30307. For more information contact atlantaataxia@gmail.com or 404-822-7451.

Saturday, December 9, 2017

Kansas City Ataxia Support Group Meeting

12-3 pm at the Northeast Library, 6000 Wilson Rd, Kansas City, MO 64123. For more information contact Stephanie Wilkins at 816-623-3318 or sfwilkins@yahoo.com.

Saturday, December 9, 2017

North Texas Area Ataxia Support Group Meeting

10am - Noon at the Ben Washington Baptist Church - Rev Jr Sheppard Educational Center, 615 Davis St, Irving, TX 75061. There is lots of parking and it is handicap accessible. The meeting room is in a separate bldg from the church. For more information contact David Henry at cheve11e@sbcglobal.net.

Wednesday, December 13, 2017

Willamette Valley Ataxia Support Group Meeting - Albany Location

11:30am-1pm at Albany Hospital – 4th Floor Conference Room, 1046 6th Ave SW, Albany, OR 97321. For more information contact Jason Wolfer at wolfer.jason@gmail.com or 503-502-2633.

Saturday, December 16, 2017

NCASG - Sacramento Area Ataxia Support Group Meeting

1-4pm at Sutter Roseville Medical Center - Meeting Room 8, 1 Medical Plaza Dr, Roseville, CA 95661. We meet on the third Saturday of each month. For more information or to be added to this group's mailing list contact Teresa Bredberg at 916-215-2686 or tbredberg@sbcglobal.net.

Saturday, December 16, 2017

Nebraska Ataxia Support Group Social Outing

11am-1pm at Creighton Prep High School, 7400 Western Ave, Omaha, NE. Guest speaker TBA. For more information contact Linda Snider at 402-212-3060 or lindasnider@cox.net.

Saturday, December 16, 2017

Twin Cities Ataxia Social Group

The Twin Cities Ataxia Support Group meets once a month. Family and friends of an afflicted individual are always welcome! We meet on the third Saturday of every month at 10:00am for 2 hours in a meeting room at Langton Place which is located on the south side of the road on County Road D roughly four tenths of a mile east of I35W in Roseville at 1910 W. CTY. RD. D., ROSEVILLE, MN 55112. We wanted to provide a central location that it easy to access which is why we picked this place. Please join us, and make new connections! For more information contact Lenore Healey Schultz at 612- 724-3784 or schultz.lenore@yahoo.com.

Saturday, January 20, 2018

Denver Area Ataxia Support Group Meeting

1-4pm at the Swedish Medical Center, 501 E Hampden Ave, Englewood, CO 80113 - 2nd floor Conference Rooms. For more information or to be added to this group's mailing list contact Charlotte DePew at 720-379-6887 or cldepew77@comcast.net.

Monday, April 2, 2018

7th Ataxia Investigators Meeting (AIM)

April 2-5, 2018 Philadelphia, PA

Thursday, April 5, 2018

61st NAF Annual Ataxia Conference (AAC)

April 5-6, 2018 Philadelphia, PA

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