Welcome to the National Ataxia Foundation

 

Joel Sutherland named Executive Director of the National Ataxia Foundation

The National Ataxia Foundation Board of Directors is pleased to announce that Joel Sutherland has been named Executive Director of NAF. Joel joined NAF in March 2016 as National Director of Development after spending four years as Executive Director of the Minnesota / Dakota Chapter of the Cystic Fibrosis Foundation. Along with his experience in disease-specific patient advocacy and fundraising Joel brings great energy and enthusiasm…and the goal to “build the development engine of NAF to better serve our families and fund research”. His experience in sports and corporate marketing also gives Joel a unique perspective on how NAF can tell the Ataxia story to build awareness and make a meaningful impact on Ataxia families and researchers. Joel wants everyone touched by Ataxia to keep his personal mantra in mind: “Money buys research …. Research finds answers.” (Full Announcement)

 

International Ataxia Awareness Day (IAAD)

Thank you for participating in IAAD.  Many of you have been recognizing IAAD through various events, videos, proclamations, resolutions, and Walk n' Rolls throughout the United States.  

Many IAAD events and Walk n' Rolls have been held over the last few weeks to bring better Ataxia awareness across the country. You can continue to support these important events and ask others to also support these events.

Let us know what you did to recognize IAAD

We welcome you to share your experiences and ask you to submit for NAF's newsletter "Generations" an article on how you recognized IAAD. Your story gives inspiration and direction to others to get involved in IAAD activities. You can submit your experience to joan@ataxia.org.

Thank You!

 


Charity Navigator Awards NAF Four-Star Rating

Charity Navigator, America’s premier charity evaluator, has announced that the National Ataxia Foundation received a four out of four star rating. This is the fourth consecutive year NAF has received this exceptional four-star rating.

“NAF’s coveted 4-star rating puts it in a very select group of high-performing charities,” according to Michael Thatcher, President & CEO of Charity Navigator. “Out of the thousands of nonprofits Charity Navigator evaluates, only one out of four earns 4 stars -- a rating that demands rigor, responsibility and commitment to openness. NAF’s supporters should feel much more confident that their hard-earned dollars are being used efficiently and responsibly when it acquires such a high rating.”


 


Member Stories

NAF would like to invite members to share their story to let others know that they are not alone and increase Ataxia awareness. NAF would like to extend a huge thank you to our members that have so generously shared their story. Share your member story by email to naf@ataxia.org. Member Stories can be read on the Member Stories Page.


 David Henry Jr.  DeCresenzo Family
 David Henry Jr.
 DeCresenzo Family
 
Mary Fuchs
 
Michelle DeCiantis
 Mary Fuchs
 Michelle DeCiantis


 

Ataxia Research Studies Awarded
Funding for FY 2016


The National Ataxia Foundation (NAF) is pleased to announce that 20 promising ataxia research studies from the United States, Italy, Canada, United Kingdom, France and Portugal  were awarded funding at the December 2015 NAF Board of Directors meeting for fiscal year 2016.

A listing and summaries of these studies are now available on the Foundation’s web site: Here...