Welcome to the National Ataxia Foundation


Mike Parent Announces His Retirement


At the June NAF Board of Directors Meeting held on June 15, 2016, Mike Parent informed the Board that he had made a decision to retire at the end of July. This was not a easy decision for Mike and he will be missed tremendously. Mike became involved with NAF in 1982 as the Development Director and was promoted to Executive Director in 2004. During this time Mike has lead the National Ataxia Foundation to new heights in membership, research dollars, and most importantly being involved with all of the donors that made significant contributions. Managing the day to day operations of the Foundation is no simple task.

NAF ended the year 2015 with a Net Assets of $1,700,544 and funded 20 Ataxia Research Studies for the amount of $905,162. Under Mike's leadership NAF received the Charities Navigator highest award of 4 stars. Mike's dedication and leadership has increased the attendance at the Annual Membership Meetings and expanded the awareness of Ataxia to the public.

If you would like to send Mike a personal message Mike can be reached at bestwishesmike@ataxia.org.

On behalf of your Board of Directors we wish Mike and Renae all the best on their new journey. Mike, Thank you for all your dedication and support over the years.

The NAF Board of Directors


“Helping Today for a Cure Tomorrow”
The 2016 NAF Annual Membership Drive

Membership plays a crucial role in sustaining NAF’s ability to continue to provide meaningful programs and services for Ataxia families. As a member, you provide those with Ataxia a better life today and hope for a brighter tomorrow. NAF is a membership supported nonprofit organization dedicated to serving Ataxia families. We are grateful for the support of our members and welcome others to also join.

As a thank you for being a valued member, you will receive discounts in attending the next Annual Ataxia Conference as well as a subscription to the NAF’s in-depth quarterly Ataxia news publication, Generations.

Be part of the future…become a member today! Please ask your friends, family, co-workers, and neighbors to also become members. Thank you!

Become A Member
Letter From the President
Recurring Gift Membership


Charity Navigator Awards NAF Four-Star Rating

Charity Navigator, America’s premier charity evaluator, has announced that the National Ataxia Foundation received a four out of four star rating. This is the fourth consecutive year NAF has received this exceptional four-star rating.

“NAF’s coveted 4-star rating puts it in a very select group of high-performing charities,” according to Michael Thatcher, President & CEO of Charity Navigator. “Out of the thousands of nonprofits Charity Navigator evaluates, only one out of four earns 4 stars -- a rating that demands rigor, responsibility and commitment to openness. NAF’s supporters should feel much more confident that their hard-earned dollars are being used efficiently and responsibly when it acquires such a high rating.”


Member Stories

NAF would like to invite members to share their story to let others know that they are not alone and increase Ataxia awareness. NAF would like to extend a huge thank you to our members that have so generously shared their story. Share your member story by email to naf@ataxia.org. Member Stories can be read on the Member Stories Page.

 David Henry Jr.  DeCresenzo Family
 David Henry Jr.
 DeCresenzo Family
Mary Fuchs
Michelle DeCiantis
 Mary Fuchs
 Michelle DeCiantis


Ataxia Research Studies Awarded
Funding for FY 2016

The National Ataxia Foundation (NAF) is pleased to announce that 20 promising ataxia research studies from the United States, Italy, Canada, United Kingdom, France and Portugal  were awarded funding at the December 2015 NAF Board of Directors meeting for fiscal year 2016.

A listing and summaries of these studies are now available on the Foundation’s web site: Here...