We are saddened to report that Mr. Arnie Gruetzmacher passed away on Sunday, April 17, 2016. Arnie was on the National Ataxia Foundation’s Board of Directors from 1971 – 2016. Arnie’s passion to help the Ataxia community never wavered, particularly when it came to the NAF Annual Ataxia Conference. Arnie chaired the Annual Ataxia Conference Committee from 1980 - 2016. He had spent countless hours every year helping to create a venue to bring Ataxia families together to share, learn, and network. In Honoring the Memory of Arnie, the Arnie Gruetzmacher Annual Ataxia Conference Travel Grant Fund has been established. This Fund will help those with Ataxia who cannot afford to attend the Annual Ataxia Conference. To support this Fund, please click here. Thank you for fulfilling his legacy.
2016 NAF Award Recipients
Congratulations to you all!
| Michael Cammer
| Jane Jaffe
| Charlotte DePew
| Harry Orr PhD
The National Ataxia Foundation (NAF) is pleased to announce that 20 promising ataxia research studies from the United States, Italy, Canada, United Kingdom, France and Portugal were awarded funding at the December 2015 NAF Board of Directors meeting for fiscal year 2016.
The funding for these important ataxia research projects have been made possible through the generosity of NAF donors and partners who contributed to the 2015 NAF Annual Ataxia Research Drive, the $200,000 matching research gift from an anonymous donor, our corporate and foundation friends, the Michael and Patricia Clementz Family Endowment Fund for SCA 3 Research, NAF chapters and support groups, individual and group donations, individuals and families who conducted fund raising events, and NAF Walk n’ Rolls for Ataxia events.
The National Ataxia Foundation gratefully acknowledges all who supported these important ataxia research studies. It is through your generosity that enables NAF to continue to fund cutting-edge ataxia research studies that brings us closer to ending ataxia. Thank you!
A listing and summaries of these studies are now available on the Foundation’s web site; Here...
The National Ataxia Foundation (NAF) is pleased to announce that a new “Children with Ataxia” booklet has been published. We sincerely thank the parents who have generously shared their challenging and emotional journeys with us. Their stories reveal their heartbreak but also the courage and hope that these children and parents face together. If you would like to receive a hardcopy of the booklet, please email firstname.lastname@example.org. Copies are also available by clicking on this link.