Current issues of the National Ataxia Foundation’s quarterly newsletter, Generations, is available to those who become members of the National Ataxia Foundation. Over the years of publication there have been articles that are excellent resources of information regarding many aspects of ataxia. Below you will find pdf files of some of these articles that are helpful for those affected by ataxia and their family members. Clicking an item in the Index (below) takes you to links related to that heading:
- Cognition and Emotion in Cerebellar Disorders
- Financial Matters
- Genetic Testing
- Management of Ataxia
- Physical Therapy and Exercise
- Sporadic Ataxia and Multiple System Atrophy (MSA)
- Stem Cell Information
- Tissue Donation
Cognition and Emotion in Cerebellar Disorders
- Cognition, Emotion and the Cerebellum
Jeremy Schmahmann M.D., Summer 2009
This article is an excerpt of a presentation given at the annual meeting in 2008 that provides a brief background on how the cerebellum plays a role in cognition and emotion.
- The Cerebellum in Behavioral Neurology and Neuropsychiatry
Jeremy Schmahmann M.D., Spring 2008
This article is an excerpt of a presentation given at the annual meeting in 2007 which discusses the new field of the cognitive neuroscience of the cerebellum and its direct implications for the ataxia patient population.
- Cerebellum: New Concepts and Directions for Treatment
Jeremy Schmahmann M.D., Summer 2006
This article is an excerpt of a presentation given at the annual meeting in 2006 which discusses diagnosis and treatment of ataxia and the more recent understanding that problems with intellectual and emotional functioning in those with ataxia may in fact be a consequence of the disease of the cerebellum.
- Psychiatric and Cognitive Complications of Diseases Affecting the Cerebellum
Russell L. Margolis M.D., Winter 2002-03
This article discusses research into the psychiatric and cognitive aspects of diseases causing cerebellar degeneration and what can be done to treat individuals with cognitive and psychiatric disorders related to their ataxia.
- Planning for the Financial Future of a Person with a Disability
Arnie Gruetzmacher, 2007-08
This five part series of articles explains the four major planning components necessary to develop a Comprehensive Life Plan if you have a family member with a disability.
- Eight Steps to Future Care Planning for a Loved One with Special Needs
Mary Anne Ehlert, Summer 2011
Suggestions for creating a great foundation for managing current and future financial planning with your family and a family member with special needs.
- Social Security Disability – Application Process Information
Jon Rodis, Summer 2010
In a Question and Answer format you will find answers to some common questions about the Social Security Disability program and eligibility requirements. Please use this guide for information-gathering purposes.
- Genetic Testing
Lisa Demers MS, Summer 2006
This article discusses the who, what, when, why, where and how of genetic testing and an explanation of what happen at a genetic counseling sessions.
- Implications of Genetic Testing
and Ataxia on Families
Melissa Gibbons, MS, CGC, Summer 2015
This article is an excerpt of a presentation give at the annual meeting in 2015 that provides information on types of genetic testing, discusses the reasons to have genetic testing, how genetic information is protected, how to share genetic test results with family members and family planning options.
- Psychological Aspects of Genetic Testing
John Rolland M.D., Summer 2010
Ataxia affects all aspects of family life. This article provides the important questions to ask and issues to consider as decisions about genetic testing are made, remembering that the entire family is impacted in decisions related to genetic testing. This article provides practical advice and reminds the reader that there are many things to consider and how relationships and individual lives can be affected.
Management of Ataxia
- Diet for Ataxia - Lyle Brecht
Lyle Brecht, Spring 2010
This article describes how diet and exercise play a part in the reduction of ataxia symptoms.
- Managing Ataxia and Your Neurologist
Susan Perlman M.D., Summer 2009
In this article, you will learn how to work closely with your doctor so that you can receive the best care for your ataxia symptoms. Also discussed are the Seven Habits of living well with ataxia.
- Management of Neurogenic Bladder
Andrea Staack, M.D., Ph.D., Summer 2011
This article is from a presentation given at the NAF annual meeting in 2011. It provides a better understanding of how the bladder may be affected for those with ataxia and strategies to help with bothersome symptoms.
- Managing Ataxia-Related Symptoms
Michael Wilensky M.D., Winter 2012-13
Whether it is fatigue, muscle cramps, bladder control, tremor or other symptoms of ataxia, this article will be helpful in providing strategies and therapies to help manage ataxia related symptoms.
- Progression of Ataxia
Susan Perlman M.D., Fall 2014
This article explains that not everything can be predicted. There are many things that influence the progression of ataxia.
- Medical Considerations of Ataxia
Lawrence J. Schut M.D., Summer 2008
This articles contain ten general principles to consider regarding medication intervention and a discussion of potential medications to try for relief of specific symptoms related to ataxia.
- Using Medication and Therapy to Treat Ataxia
Susan Perlman M.D., Winter 02-03
A comprehensive article that includes a review of neuroanatomy, a discussion of worrisome symptoms in ataxia and a list of medications that treat the more common symptoms related to ataxia.
Physical Therapy and Exercise
- Four Components to an Effective Physical Therapy
Program for Ataxia
Polly Swingle, PT, Fall 2013
This article provides the essential components of an effective physical therapy program for persons with ataxia and a description of exercises with complete instructions for a 60-minute physical therapy session.
Stem Cell Information
- Stem Cell Research for Ataxia
Clive Svendsen, Ph.D., Summer 2011
A brief look at the emerging field of regenerative medicine and its exciting prospects
- Brain Donation Program
Christopher Gomez, M.D., Ph.D., Spring 2014
This article explains the value of being seen at an ataxia center which is helpful if you are interested in brain donation for ataxia research.
- The Vexing Ataxia Lexicon
Brent L. Fogel, MD, PhD, Summer 2012
This article contains six questions and answers to help adrift patients navigate the sea of ataxia nomenclature.
- What MRI Can Do for Ataxias and Why More MRI Research is Needed
Gülin Öz, PhD, Summer 2013
The importance magnetic resonance imaging (MRI) a non-invasive neuroimaging technology tool used in clinical care of those with ataxia and to further ataxia research.