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2019 Katie Campbell Clinical Trial Readiness Conference Held in Minneapolis

Author: Kelsey Trace, NAF Research Associate It was an exciting couple of days in Minnesota when prominent Ataxia clinical researchers and research coordinators met in Minneapolis in September for the annual Katie Campbell Clinical Trial Readiness Conference. This conference focuses on the work of the Clinical Research Consortium for the Read More…

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NAF Seeks Support of a Resolution for National Ataxia Awareness Day

Author: Lori Shogren, Community Program and Services Director NAF partnered with FARA and the EveryLife Foundation for Rare Diseases to bring International Ataxia Awareness Day to Capitol Hill. United Against Ataxia Hill Day happened on September 25, 2019. We are so grateful for all the support in planning the day and will cherish the relationships that were built Read More…

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Fall 2019 Support Group News

Author: NAF Support Group Leaders St. Louis Ataxia Support Group Recognized on CBS News for IAAD The St Louis Ataxia Support Group and CBS Channel 4 celebrated International Ataxia Awareness Day for the entire month of September 2019! Our group and logo were profiled each weekday night on a segment Read More…

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A Week in the Life of NAF’s Executive Director

Photo: Andrew Rosen (right) presents a Certificate of Appreciation at the Orange County Walk N’ Roll to Cure Ataxia Author: Andrew Rosen, Executive Director The life of an Executive Director at a nonprofit like NAF is filled with many different tasks. While I enjoy coming to the office and working Read More…

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United Against Ataxia

Author: Lori Shogren, Community Program and Services Director  An IAAD Like No Other September 25th is International Ataxia awareness Day (IAAD). Over the last 20 years IAAD has grown from a day to create awareness about Ataxia into a movement to fight Ataxia through awareness, advocacy, and fundraising. Today, thousands participate in IAAD through social Read More…

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The Poker Walk

Author: Joel Sutherland, Development Director Many people believe there is NOTHING they do to raise funds and teach more people about Ataxia.  Wrong! Not only are they wrong, but they can be missing out on having fun as well.  Earlier this year, I invited five people to invite five others Read More…

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