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What is the Ataxia Patient Registry?

Author: Sue Hagen, Patient and Research Services Director A Community Mobilized Toward Treatments One of the goals of a disease-specific patient organization is to provide resources that will help in the discovery of treatments for their disease. And that is absolutely true of the National Ataxia Foundation. We want treatments Read More…

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Greater Atlanta Support Group Summer Update

Author: Greg Rooks, NAF Support Group Leader The Greater Atlanta Ataxia Support Group held its annual picnic at Lake Lanier on June 15th. We had a wonderful gathering of approximately 30 individuals. The weather could not have had better. The support group provided grilled hot dogs and hamburgers. Members brought Read More…

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Preparing for the Annual Ataxia Conference in Denver

Author: Andrew Rosen, Executive Director A Note from Andrew Hi Everyone: August in Minnesota. It is hot and humid, and thoughts have turned to my three teenagers getting ready to go back to school. I love the pace of summer – everything slows down a bit, the days are long, Read More…

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St. Louis Ataxia Support Group Meeting

Author: Shannon Dunphy Lazo, NAF Support Group Leader Our June 8th meeting was held at the Center for Advanced Medicine. Melinda McAliney, our guest speaker, started us off. She introduced herself and explained her goals. Melinda is from Vario Philanthropy, and she wants to explore our support group and provide Read More…

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Summer 2019 Support Group News

Photo: Treasure Coast Ataxia Support Group Author: NAF Support Group Leaders Treasure Coast Ataxia Support Group Meeting On June 29, at the Chop House we had a great lunch and get together. Our guest speaker, Mark Bozzo, a massage therapist, talked about massage therapy and how it’s maintenance helps with Read More…

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NAF Participates in Global Initiative for Ataxia Research

SCA Global Launches Website The inaugural meeting of the SCA Global initiative was held at NAF’s Annual Ataxia Conference in April of 2018. Researchers from around the world created a global collaboration in clinical research efforts for Spinocerebellar Ataxias (SCA). SCA Global was created to address the obstacles that clinical Read More…

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