Blog

Clinical Trials in Ataxia: Hope, Opportunity, and Caveats

We’ve been talking a lot lately about Ataxia clinical trials. But what is a clinical trial? Should you sign up to participate when there is one available for your type of Ataxia? What happens during a clinical trial? Learn everything that you need to know at our exclusive FREE webinar: Read More…

Only 26 JMB Spots Remain. Want One?

Author: Joel Sutherland, NAF Development Director Only 26 spots remain in the 2020 Joint Mission Bataan to Cure Ataxia campaign.  Would you like to join us? To refresh your memory, this campaign, that we call JMB, is an expansion of last years’ effort led by North Carolina resident, Mike De Rosa and Read More…

Support NAF for #GivingTuesday

Giving Tuesday is a global day of giving that is recognized on the Tuesday after Thanksgiving each year, usually through social media efforts. To celebrate, people donate time, talents, and/or resources to causes that are important to them. This year, #GivingTuesday is on December 3, 2019. At NAF, Giving Tuesday Read More…

11 Exercises for Ataxia Patients

Guest Authors: Sheng-Han Kuo MD, Chen-Ya Yang, MD, MPH, and Geraldine Yu, PT, DPT Technical Support: Tiffany Chen BS, Johns Hopkins University Ataxia is a neurologic disorder that affects people across all ages. People living with Ataxia may experience problems including incoordination of movement, slurred speech, poor balance, and gait Read More…

How to Host a Successful Facebook Fundraiser

Facebook fundraisers make a big difference for us at NAF. More than $200,000 has been raised because people like you took the time to support our cause. Thank you so much! Your efforts will directly impact the Ataxia community. The funds that you raise help us offer Ataxia research grants, Read More…

NAF Seeks Support of a Resolution for National Ataxia Awareness Day

Author: Lori Shogren, Community Program and Services Director NAF partnered with FARA and the EveryLife Foundation for Rare Diseases to bring International Ataxia Awareness Day to Capitol Hill. United Against Ataxia Hill Day happened on September 25, 2019. We are so grateful for all the support in planning the day and will cherish the relationships that were built Read More…

Fall 2019 Support Group News

Author: NAF Support Group Leaders St. Louis Ataxia Support Group Recognized on CBS News for IAAD The St Louis Ataxia Support Group and CBS Channel 4 celebrated International Ataxia Awareness Day for the entire month of September 2019! Our group and logo were profiled each weekday night on a segment Read More…

A Week in the Life of NAF’s Executive Director

Photo: Andrew Rosen (right) presents a Certificate of Appreciation at the Orange County Walk N’ Roll to Cure Ataxia Author: Andrew Rosen, Executive Director The life of an Executive Director at a nonprofit like NAF is filled with many different tasks. While I enjoy coming to the office and working Read More…

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