Education

Coronavirus Precautions for Ataxia Patients

The coronavirus (COVID-19) pandemic is affecting communities worldwide. The health and safety of the Ataxia community is a priority at NAF. We have consulted with our Medical Research Advisory Board, infectious disease specialists, the World Health Organization, and the Centers for Disease Control and Prevention to learn about the best ways that Read More…

Reflections On a Challenging Week

Author: Andrew Rosen, Executive Director Hello Ataxia Community: As I sit at my desk on this Friday afternoon, I am amazed that it was less than one week ago that NAF, on the strong and wise counsel of our Medical and Research Advisory Board (MRAB), made the difficult decision to Read More…

2020 AAC Cancelled Due to Coronavirus Concerns

We regrettably announce that the 2020 Annual Ataxia Conference has been cancelled due to evolving concerns over the fast moving situation with coronavirus COVID-19. We want everyone to know that this decision was not made lightly. The health and safety of our Ataxia community is our main priority. We did Read More…

How to Qualify for Social Security Disability Benefits with Ataxia

Guest Author: Rachel Gaffney, Outreach Specialist at Disability Benefits Help If you have Ataxia, you may experience a variety of challenges. Ataxia can be disabling, and if you are unable to work and earn a living because of the severity of the condition, you may qualify for disability benefits from the Social Read More…

Don’t Skip AAC in Denver Because of Weather – Here’s Why

Author: Linda Snider Sidwell, MD, NAF Board Member and Support Group Leader The 2020 Annual Ataxia Conference in Denver, Colorado is going to be a world class conference with scientists, pharmaceutical companies, and of most importantly, Ataxians. I’m hoping to see you there. Why do you want to come to Denver you Read More…

Meet Others Under 30 with Ataxia at 2020 AAC

Author: Lauren Sormani, NAF Support Group Leader I was diagnosed with Spinocerebellar Ataxia Type 8 in 2017 when I was 21 years old. A few months after my diagnosis I found a support group near me and I attended. I was thrilled to meet other people with Ataxia, but what Read More…

Ataxia Genetic Test Options

Working with your doctor to obtain a diagnosis can be difficult, especially with a rare disease. Medical history, family history, and a neurological evaluation are used to diagnose Ataxia. Various blood tests may also be used to rule out other disorders. Your doctor may recommend genetic testing if a hereditary Read More…

Clinical Trials in Ataxia: Hope, Opportunity, and Caveats

We’ve been talking a lot lately about Ataxia clinical trials. But what is a clinical trial? Should you sign up to participate when there is one available for your type of Ataxia? What happens during a clinical trial? Learn everything that you need to know at our exclusive FREE webinar: Read More…

11 Exercises for Ataxia Patients

Guest Authors: Sheng-Han Kuo MD, Chen-Ya Yang, MD, MPH, and Geraldine Yu, PT, DPT Technical Support: Tiffany Chen BS, Johns Hopkins University Ataxia is a neurologic disorder that affects people across all ages. People living with Ataxia may experience problems including incoordination of movement, slurred speech, poor balance, and gait Read More…

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