NAF

2020 NAF Funded Research

We’re excited to announce that NAF will award $940,000 in Ataxia research grants this year! NAF’s Board of Directors approved funding for 25 Ataxia research grants in 2020. Nearly 60 applications were reviewed by a team of the the world’s top Ataxia researchers. They selected the highest quality Ataxia research grant applications Read More…

NAF Office is Working Remote

NAF staff will be working remotely until further notice, doing our small part in slowing the spread of the COVID-19 virus. What this means is business as usual, just remote: In-person meetings for our staff (external and internal) will be rescheduled as phone/video calls. NAF staff will work from their Read More…

Coronavirus Precautions for Ataxia Patients

The coronavirus (COVID-19) pandemic is affecting communities worldwide. The health and safety of the Ataxia community is a priority at NAF. We have consulted with our Medical Research Advisory Board, infectious disease specialists, the World Health Organization, and the Centers for Disease Control and Prevention to learn about the best ways that Read More…

Reflections On a Challenging Week

Author: Andrew Rosen, Executive Director Hello Ataxia Community: As I sit at my desk on this Friday afternoon, I am amazed that it was less than one week ago that NAF, on the strong and wise counsel of our Medical and Research Advisory Board (MRAB), made the difficult decision to Read More…

2020 AAC Cancelled Due to Coronavirus Concerns

We regrettably announce that the 2020 Annual Ataxia Conference has been cancelled due to evolving concerns over the fast moving situation with coronavirus COVID-19. We want everyone to know that this decision was not made lightly. The health and safety of our Ataxia community is our main priority. We did Read More…

Twin Cities Ataxia Support Group Brainstorms 2020 Programming

Author: Lori Shogren, Community Program and Services Director It was a pleasure to attend the Twin Cities Ataxia Support Group Meeting on November 16. This was a working meeting to develop the group’s 2020 programming. It was great to see everyone participate in this process by sharing their ideas and Read More…

Support NAF for #GivingTuesday

Giving Tuesday is a global day of giving that is recognized on the Tuesday after Thanksgiving each year, usually through social media efforts. To celebrate, people donate time, talents, and/or resources to causes that are important to them. This year, #GivingTuesday is on December 3, 2019. At NAF, Giving Tuesday Read More…

NAF Seeks Support of a Resolution for National Ataxia Awareness Day

Author: Lori Shogren, Community Program and Services Director NAF partnered with FARA and the EveryLife Foundation for Rare Diseases to bring International Ataxia Awareness Day to Capitol Hill. United Against Ataxia Hill Day happened on September 25, 2019. We are so grateful for all the support in planning the day and will cherish the relationships that were built Read More…

A Week in the Life of NAF’s Executive Director

Photo: Andrew Rosen (right) presents a Certificate of Appreciation at the Orange County Walk N’ Roll to Cure Ataxia Author: Andrew Rosen, Executive Director The life of an Executive Director at a nonprofit like NAF is filled with many different tasks. While I enjoy coming to the office and working Read More…

Preparing for the Annual Ataxia Conference in Denver

Author: Andrew Rosen, Executive Director A Note from Andrew Hi Everyone: August in Minnesota. It is hot and humid, and thoughts have turned to my three teenagers getting ready to go back to school. I love the pace of summer – everything slows down a bit, the days are long, Read More…

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