Support Groups

Spring 2020 Virtual Support Group Meeting Recaps

COVID-19 is affecting many areas of life. While our Support Groups haven’t been able to meet in person because of Stay At Home orders across the country, many have gone virtual. Check our events calendar for upcoming virtual meetings. Below are recaps about some recent Support Group meetings. Greater Atlanta Read More…

How the Central Indiana Ataxia Support Group Was Started

Author: Amy Draves Upon learning that I (Amy) for sure had Ataxia of some kind, I joined the Facebook page of the National Ataxia Foundation. Connecting with people who knew so much more than I did was important to me. On a post by Teressa Cocarro, I saw she was Read More…

Winter 2019-2020 Support Group News

Check out the latest news and meeting recaps from our Ataxia Support Groups around the country. Chicago Ataxia Support Group – December Meeting Recap The Chicago Ataxia Support Group Meeting was held on Saturday, December 14. It was a good turn out with 17 people attending. We all enjoyed lots Read More…

Central Indiana Ataxia Support Group Meeting Recap

Submitted by Amy Draves We had a relatively small in numbers meeting but LOTS of encouragement and support from each other. We had two speakers – Karen Lawrence from RHI and an enthusiastic, wheelchair athlete named Deb. Karen is in charge of the adaptive sports program which is growing with Read More…

Ataxia Community Links

It can be hard to connect with other people who have Ataxia. NAF has a number of support groups around the country to help you learn and meet others. There are also lots of great online resources from other members of the Ataxia community. Finding them can be difficult if Read More…

Meet Others Under 30 with Ataxia at 2020 AAC

Author: Lauren Sormani, NAF Support Group Leader I was diagnosed with Spinocerebellar Ataxia Type 8 in 2017 when I was 21 years old. A few months after my diagnosis I found a support group near me and I attended. I was thrilled to meet other people with Ataxia, but what Read More…

Twin Cities Ataxia Support Group Brainstorms 2020 Programming

Author: Lori Shogren, Community Program and Services Director It was a pleasure to attend the Twin Cities Ataxia Support Group Meeting on November 16. This was a working meeting to develop the group’s 2020 programming. It was great to see everyone participate in this process by sharing their ideas and Read More…

Fall 2019 Support Group News

Author: NAF Support Group Leaders St. Louis Ataxia Support Group Recognized on CBS News for IAAD The St Louis Ataxia Support Group and CBS Channel 4 celebrated International Ataxia Awareness Day for the entire month of September 2019! Our group and logo were profiled each weekday night on a segment Read More…

Greater Atlanta Support Group Summer Update

Author: Greg Rooks, NAF Support Group Leader The Greater Atlanta Ataxia Support Group held its annual picnic at Lake Lanier on June 15th. We had a wonderful gathering of approximately 30 individuals. The weather could not have had better. The support group provided grilled hot dogs and hamburgers. Members brought Read More…

Want to be a guest blogger?

Submit your name and blog topic. We’ll follow up with submission instructions.

Translate »