JHU Ataxia Center Webinar: National Organization of Rare Disorders (NORD) Services

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JHU Ataxia Center Webinar: National Organization of Rare Disorders (NORD) Services

September 18 @ 1:00 pm - 2:00 pm

Please join us for a presentation on National Organization of Rare Disorders (NORD) Services. Learn about what NORD has to offer patients and their support networks-including their Patient & Caregiver Resource Center; Rare Disease Database; Patient Assistance Program and Rare Action Advocacy Network and more.

Register by Thursday, September 17 here https://jhjhm.zoom.us/meeting/register/tJ0tduqhqTsiG9NB7RA1x_mcpoqEiicpz41x. Once you register, you will receive an approval to join the presentation and session shortly thereafter.
For more information contact:Donna DeLeno Neuworth, Ataxia Center Health EducatorJohns Hopkins University, Department of NeurologyDdeleno1@jhmi.edu
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Details

Date:
September 18
Time:
1:00 pm - 2:00 pm