Rare Disease Day
There are many ways you can raise awareness and participate in Rare Disease Day activities while staying in the safety and comfort of your own home:
- Advocate with other members of the rare community in your state by attending a virtual Rare Action Network Event. The HEART Act and the Access to Rare Indications Act will both be reintroduced in Feb. Email your Representatives in Washington, D.C. through the ACT NOW button on Haystack’s website.
- Pledge to light up a building, monument or landmark or dress up in Rare Disease Day colors.
- Join the movement on social media by posting a picture of yourself in stripes and using #RareDiseaseDay and #ShowYourStripes.