Rare on the Road: Rare Disease Leadership Tour – Sioux Falls, SD

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8:00 am

Rare on the Road: Rare Disease Leadership Tour – Sioux Falls, SD

July 13, 2019 @ 8:00 am - 5:00 pm
Sandford Center, 2301 East 60th St N
Sioux Falls, SD 57104 United States
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The EveryLife Foundation and Global Genes are excited to partner for RARE on the Road, a Rare Disease Leadership Tour to bring critical education and insights to rare disease patients, caregivers and other advocates. We are uniting to build and activate the rare disease community at the local level. Whether you’re new to the rare disease

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10:00 am

North Texas Area Ataxia Support Group Meeting

July 13, 2019 @ 10:00 am - 11:45 am
Ben Washington Baptist Church –Rev Jr Sheppard Educational Center, 615 Davis St
Irving, TX 75061 United States
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We hope you can join us! For more information contact: David Henry Jr Phone #:817-739-2886 (contact by email preferred) Email: cheve11e@sbcglobal.net Facebook Group: https://www.facebook.com/Ataxiasupport

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11:00 am

Northern CA Ataxia Support Group Meeting

July 13, 2019 @ 11:00 am - 3:00 pm

For more information visit the Northern California Ataxia Support Group website! N.California Area Support Group Leaders Brian Wong Santa Clara, CA Fernando and Rocio Wu Danville, CA Email: info@norcalataxia.org Facebook Group: https://www.facebook.com/groups/592006361008986/ Support Group Website: http://norcalataxia.org

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St. Louis Ataxia Support Group Meeting

July 13, 2019 @ 11:00 am - 12:15 pm
Paraquad Wellness Center (Gym), 5200 Berthold Ave
St. Louis, 63110 United States
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The venue is around the back of the building . Parking is available behind the building or by the Bloom Café (there isn't an indoor connecting door, so you may have to walk around). After the meeting and tour there is an optional lunch at Paraquad's Bloom Café  We meet every 2nd Saturday of the

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11:30 am

Western WA Ataxia Support Group BBQ

July 13, 2019 @ 11:30 am - 2:30 pm
Lago De Plata Mobile Villa – Sunset Park, 620 112th St SE
Everett, WA 98208 United States
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Dig out your Hawaiian shirts or that Mu Mu favorite dress for our Hawaiian-themed Summer BBQ. WHAT TO BRING: Beverages, a side dish to serve 4-6 people.  BBQ for grilling is available. Hot dogs, buns & condiments provided. All paper goods will be provided as well. The venue is wheelchair friendly with a paved path.

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