Global Genes Rare Advocacy Summit

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Global Genes Rare Advocacy Summit

September 18, 2019 - September 20, 2019
Sheraton San Diego Hotel & Marina, 1380 Harbor Island Drive
San Diego, CA United States
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The RARE Patient Advocacy Summit is an unparalleled opportunity to forge meaningful connections with other rare advocates and take home actionable strategies and tools to accelerate change. A jam-packed, two-day program filled with TED-style keynotes and five tracks of compelling educational content ranging from the latest in care to cutting-edge research and therapies. For more

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Toronto ONLINE Support Group Meeting

September 20, 2019

The online meeting will be held at 9am, 12pm, 3pm, and 6pm EST. Cindy Gibson-Horn, Founder/Inventor of BalanceWear will be speaking to the group at the 6pm EST meeting. Here are the links to join the meeting: 9am EST: 12pm EST: 3pm EST: 6pm EST: To join the meetings by phone

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11:30 am

Connecticut Ataxia Support Group Meeting

September 20, 2019 @ 11:30 am - 12:30 pm
The Chase Family Movement Disorder Center, 35 Talcottville Road, Suite 6
Vernon, Connecticut 06066
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For more information contact Susan Masse: Phone #: 860-528-1875 or E-mail:

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