International Ataxia Awareness Day

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International Ataxia Awareness Day

September 25

International Ataxia Awareness Day (IAAD) is on September 25th of each year. It is a coordinated effort from individuals and Ataxia organizations around the world to help shed light on this rare disease. NAF is committed to leading the way on this outreach effort – but we need your help! We encourage individuals and disease

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10:00 am

Externally-Led Patient Focused Drug Development Meeting

September 25 @ 10:00 am - 3:00 pm

We’re excited to announce that NAF and Cure DRPLA will Host an Externally-Led Patient-Focused Drug Development Meeting for Polyglutamine Spinocerebellar Ataxias and DRPLA!  Visit our website for more information about the meeting and to watch our informational webinar to learn more about what this meeting means, how the process will work, and how you can get

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1:00 pm

VIRTUAL JHU Support Group Meeting

September 25 @ 1:00 pm - 2:00 pm

Sep 25, 2020 01:00 PM in Eastern Time (US and Canada) Register for the meeting at https://jhjhm.zoom.us/meeting/register/tJAkc-qorjsiGd1vFkZTEwaEEBWnqU5nC0t0 Join this support group for persons with ataxia, family members, care partners for informal discussion and support For more information contact: Donna DeLeno Neuworth Ataxia Center Health Educator Johns Hopkins University, Department of Neurology Green Spring Falls Concourse

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2:00 pm

VIRTUAL Chicago Ataxia Support Group Meeting

September 25 @ 2:00 pm - 3:30 pm

Join us for our virtual meeting! For the Zoom meeting access information contact Julia Pantoga at Phone #: 414-899-5195 | E-mail: sharpturninstitute@gmail.com

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3:00 pm

VIRTUAL Global Ataxia Support Group Meeting

September 25 @ 3:00 pm - 8:00 pm

Meetings are at 3PM and 6PM EST Click here to register For more information contact Mark Desa at 416-418-2475 or mark@hopeforataxia.org.

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7:00 pm

VIRTUAL Ottawa Ataxia Support Group Meeting

September 25 @ 7:00 pm - 8:30 pm

For meeting access information Join our Facebook Group: www.facebook.com/groups/1468963499991380/ For more information contact Susan Harding at susangmharding@gmail.com or Prentis Clairmont at Phone #: 613-864-8545| E-mail: prentis.clairmont@gmail.com

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