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NAF has launched a petition on Change.org calling on the FDA to prioritize treatment options for rare diseases with urgent unmet needs, including Spinocerebellar Ataxia (SCA)
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Our Vision:

A World Without Ataxia.

Ensuring no one experiences Ataxia alone, until no one experiences Ataxia, period.

Our Mission

To accelerate the development of treatments and a cure while working to improve the lives of those living with Ataxia.

Bill Nye: The Ataxia Advocate Guy

We’re honored to have worked with Bill Nye the Science Guy to launch the largest Ataxia awareness campaign to-date!

In the series of videos, Bill Nye opens up about his personal connection to Ataxia. He lost his father to Ataxia and has many family members who are affected, including his sister and brother. He teaches people about Ataxia in his classic “science guy” style with simple information and light humor.

Check out all his videos at www.ataxia.org/BillNye.

Become a Member of NAF for FREE!

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Join the growing number of people that want to stay connected with the Ataxia community! Sign up today. It only takes a few moments. Our members receive:

  • News and research opportunities about their specific type of Ataxia as it becomes available.
  • Early access to free webinars
  • NAF’s eNewsletter and Generations publications. 

NAF BLOGS

Recent NAF News

Impact Story

Dodgeball for a Cause

Thank you for 15 Years of Chuck and Duck! We guarantee you will get a kick out of this! For the15th year, Charlton Heights Elementary Read More…

Recent Blogs

Xtreme Hike

Xtreme Hike 2025: Rim to Rim 18 hikers. 1 Grand Canyon. 1 mission: A world without Ataxia. MEET THE HIKERS FULL PARTICIPANT LIST FOLLOW THE Read More…

Ataxia Tips

Ataxia Tips Real advice from real people living with Ataxia. SUBMIT A TIP RECENT TIPS FOLLOW #AtaxiaTipTuesday Living with Ataxia means adapting every day—and sometimes, Read More…

Recent Member Stories

Christina Rakshys

Hereditary Ataxia and Genetic Testing: A Family Affair Original Member Story Published in Generations – Spring 2009 When I was given the diagnosis of “Spinocerebellar Read More…

Mika

I am Spanish, I am 30 years old and I am a carrier of SCA3 ataxia. My grandmother and my aunt died due to the Read More…

Karen W

As a child, in the 1969’s-1970’s, I can remember my paternal grandfather walking with a wide, somewhat unbalanced gait. He was born in 1896 in Read More…

Robin C. Lee

Milian’s Journey with Ataxia – Searching for Answers, Hope, and Guidance My wife, Milian, has always been the picture of health—an active yoga practitioner and Read More…

WHAT IS ATAXIA?

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EVENTS

Aug 29, 2025 01:00 pm - 02:30 pm
Western North Carolina Support Group Meeting

EASTERN TIME Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led Read More…

Aug 29, 2025 03:00 pm - 05:00 pm
Global Support Group (Hope for Ataxia) 1st Session

EASTERN TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is Read More…

Aug 29, 2025 06:00 pm - 08:00 pm
Global Support Group (Hope for Ataxia) 2nd Session

EASTERN TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is Read More…

Sep 01, 2025 03:00 pm - 04:00 pm
Ataxia Resources and Discussion Support Group Meeting

EASTERN TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is Read More…

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