We’re honored to have worked with Bill Nye the Science Guy to launch the largest Ataxia awareness campaign to-date!
In the series of videos, Bill Nye opens up about his personal connection to Ataxia. He lost his father to Ataxia and has many family members who are affected, including his sister and brother. He teaches people about Ataxia in his classic “science guy” style with simple information and light humor.
Check out all his videos at www.ataxia.org/BillNye.
Join the growing number of people that want to stay connected with the Ataxia community! Sign up today. It only takes a few moments. Our members receive:
Session focused on the importance of funding research and approving new treatments for rare diseases, especially those with no FDA-approved treatment options like Spinocerebellar Ataxia Read More…
The well-known science educator joins with the National Ataxia Foundation on campaign to build broad understanding of Ataxia, a progressive brain disease that impacts a Read More…
This designation is important to raising awareness of ataxia, ataxia research, and the search for a cure. Minneapolis, MN (September 20, 2024) – The National Read More…
Bill Nye opens up about his personal connection to Ataxia, a progressive hereditary disease. He lost is father to Ataxia and has many family members Read More…
We’re proud to announce that we funded 18 research grants for 2025 totaling $730K! For the funding term of March 1, 2025 – February 28, Read More…
Guest Author: Ellie Martin Traveling can be stressful, but it gives us the opportunity to go exploring. Whether it’s traveling to meet a friend, going Read More…
In clinical research, scientists design studies to learn more about diseases and answer questions about new treatment options. Interventional clinical trials are used to better Read More…
Guest Author: Ellie Martin Over the years, technology has become a widely used tool for therapeutic programs and rehabilitation research. By replicating real-life scenarios in Read More…
My Ataxia journey started some years ago. Even before I was diagnosed, my wife commented that I walked like “Gypsy Mc Staggers”, and I had Read More…
My name is Julie Guillot, and my son, John, has Ataxia. John’s journey began on January 19, 1998, just a few weeks after he was born. As Read More…
My name is Terrence A Reed Jr, retired U.S. Army. I also served in four combat zones (1 Afghanistan, 3 Iraq). Now that I think Read More…
I have a genetic disorder called Batten Disease-CLN2. Doctors don’t know why I didn’t start showing symptoms until I was in my forties- this usually Read More…
EASTERN TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is Read More…
We would like to invite you to join our next virtual series of the Let’s Move exercise and wellness program facilitated by our neurological specialized physical therapists from Johns Hopkins. Read More…
At this annual gathering attendees meet and learn from world-leading Ataxia researchers and clinicians, network, and reunite with old friends. Hundreds of people – from patients, to caregivers, to medical Read More…
CENTRAL TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion Read More…
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