In a continued effort to protect our Ataxia community, we’ve been monitoring the news about COVID-19. We have also been in contact with members of NAF’s Medical Research Advisory Board (MRAB). Their advice is to cancel any non-essential meetings, until further notice, because a person with Ataxia is at risk of complications if they contract the virus.
At this time, NAF recommends cancellation of all in-person support group meetings.
Please check the events calendar for up-to-date meeting cancellations and virtual meeting options.
Read recaps about the latest Support Group meetings at www.ataxia.org/SupportGroupNews.
Select your state to reveal contact information for Support Groups and Ambassadors in your area. If there are no Support Groups in your area, try one of our virtual support group options.
Interested in starting an Ataxia Support Group in your community? We are always looking for volunteers to be an ambassador or Support Group Leader. Email Lori Shogren, Community Program and Services Director, at lori@ataxia.org for more information.
Prentis Clairmont
Ottawa, Ontario
Phone #: 613-864-8545
E-mail: prentis.clairmont@gmail.com
Facebook Group: www.facebook.com/groups/1468963499991380/
Mark Desa
Mississauga, Ontario
Phone #: 416-418-2475
E-mail: mark@hopeforataxia.org
Facebook Group: www.facebook.com/groups/hfacommunity
Sajjad Haider
Karachi, Pakistan 0092
Phone #: 300- 828-1784
E-mail: sajjadhaiderb@hotmail.com
This is an online group for anyone affected by Ataxia. Persons with Ataxia, friends, and family members are all welcome!
Facebook Group: https://www.facebook.com/groups/NAFmail
You must have Ataxia yourself and be ages 16-30 to join this group. Parents/Spouses/Friends of people with Ataxia are not permitted.
Lauren Sormani
Washington, DC
Phone #: 908-577-6245
E-mail: lasormani@gmail.com
Facebook Group: https://www.facebook.com/groups/
Under30withAtaxia/
This group is for spouses and partners without Ataxia who have a spouse or partner with Ataxia. This is our spot to learn from one another, vent, have fun, and discuss topics important to us!
Dana Mauro
E-mail: ataxiafacts@gmail.com
Facebook Group: https://www.facebook.com/groups/
AtaxiaSpousesAndPartners/
This group is for parents who have a child who has Ataxia. This is our spot to learn from one another, vent, have fun, and discuss topics important to us!
Stephanie Leonard
E-mail: stephanie_q007@yahoo.com
Facebook Group: https://www.facebook.com/groups/
ParentsOfKidsWithAtaxia
This group is for African-Americans with Ataxia to connect with each other to share resources and experiences.
Letitia Diggs
E-mail: Letitia.diggs@iCloud.com
Phone #: 202-386-8289
Facebook Group: https://www.facebook.com/groups/501238100417901/
This group is for Military & Veteran members who have been diagnosed with some form/type of Ataxia.
Mike DeRosa
Email: derosam2004@yahoo.com
Phone #: 919-478-5906
Facebook Group: https://www.facebook.com/groups/922015755298690
See what the Support Groups have been up to with the latest Support Group updates.
Submitted by Shannon Dunphy Lazo Happy Holidays, everyone! We’re glad you were able to join us on Saturday. As people arrived, they were greeted, Read More…
Virtual support group meetings will continue on through the winter months. Read the latest support group meeting recaps here. Find an upcoming meeting to join Read More…
Ataxia support groups continued to meet virtually during the pandemic. Find upcoming support group meetings at www.ataxia.org/events. Feel free to join a group outside of your Read More…
Guest Author: Jay Armstrong, NAF Support Group Leader At my 7 year olds son’s first baseball practice the coach asked if a parent would be Read More…
As the summer gets going, many of our Support Groups have been meeting virtually to stay connected. Check our events calendar for upcoming virtual meetings. Below Read More…
COVID-19 is affecting many areas of life. While our Support Groups haven’t been able to meet in person because of Stay At Home orders across Read More…
Our generous donors help us fund promising Ataxia research and offer support services to people with Ataxia. Your gift today will help us continue to deliver on our mission to improve the lives of persons affected by Ataxia.
Join for FREE today! Become a part of the community that is working together to find a cure. As a member you will receive access to the latest Ataxia news with our e-newsletter and Generations publication.
