In a continued effort to protect our Ataxia community, we’ve been monitoring the news about COVID-19. We have also been in contact with members of NAF’s Medical Research Advisory Board (MRAB). Their advice is to cancel any non-essential meetings, until further notice, because a person with Ataxia is at risk of complications if they contract the virus.
At this time, NAF recommends cancellation of all in-person support group meetings.
Please check the events calendar for up-to-date meeting cancellations and virtual meeting options.
Select your state to reveal contact information for Support Groups and Ambassadors in your area. If there are no Support Groups in your area, try one of our virtual support group options.
Interested in starting an Ataxia Support Group in your community? We are always looking for volunteers to be an ambassador or Support Group Leader. Email Lori Shogren, Community Program and Services Director, at lori@ataxia.org for more information.
Prentis Clairmont
Ottawa, Ontario
Phone #: 613-864-8545
E-mail: prentis.clairmont@gmail.com
Facebook Group: www.facebook.com/groups/1468963499991380/
Mark Desa
Mississauga, Ontario
Phone #: 416-418-2475
E-mail: mark@hopeforataxia.org
Facebook Group: www.facebook.com/groups/ataxiafitness
Chandu Prasad George
Hyderabad, Secunderabad, India
Phone #: 0091-9989899919
Alternate Phone #: 0091-9885199918
E-mail: sam_ataxiaindia@yahoo.com
Facebook Group: www.facebook.com/groups/135999194491/
Support Group Email: india.ataxiagroup@gmail.com
Sajjad Haider
Karachi, Pakistan 0092
Phone #: 300- 828-1784
E-mail: sajjadhaiderb@hotmail.com
This is an online group for anyone affected by Ataxia. Persons with Ataxia, friends, and family members are all welcome!
Facebook Group: https://www.facebook.com/groups/NAFmail
You must have Ataxia yourself and be ages 16-30 to join this group. Parents/Spouses/Friends of people with Ataxia are not permitted.
Lauren Sormani
Washington, DC
Phone #: 908-577-6245
E-mail: lasormani@gmail.com
Facebook Group: https://www.facebook.com/groups/
Under30withAtaxia/
This group is for spouses and partners without Ataxia who have a spouse or partner with Ataxia. This is our spot to learn from one another, vent, have fun, and discuss topics important to us!
Dana Mauro
E-mail: danamauro63@msn.com
Facebook Group: https://www.facebook.com/groups/
AtaxiaSpousesAndPartners/
This group is for parents who have a child who has Ataxia. This is our spot to learn from one another, vent, have fun, and discuss topics important to us!
Stephanie Leonard
E-mail: stephanie_q007@yahoo.com
Facebook Group: https://www.facebook.com/groups/
ParentsOfKidsWithAtaxia
Community support is vital to the work that NAF does. Our generous donors help us fund promising Ataxia research and offer support services to people with Ataxia. Your gift today will help us continue to deliver on our mission to improve the lives of persons affected by Ataxia.
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