Support Groups

The National Ataxia Foundation provides a variety of ways to connect with others affected by Ataxia.

In a continued effort to protect our Ataxia community, we’ve been monitoring the news about COVID-19. We have also been in contact with members of NAF’s Medical Research Advisory Board (MRAB). Their advice is to cancel any non-essential meetings, until further notice, because a person with Ataxia is at risk of complications if they contract the virus.

At this time, NAF recommends cancellation of all in-person support group meetings. 

Please check the events calendar for up-to-date meeting cancellations and virtual meeting options.

Read recaps about the latest Support Group meetings at www.ataxia.org/SupportGroupNews.

US Support Groups & Ambassadors

Select your state to reveal contact information for Support Groups and Ambassadors in your area. If there are no Support Groups in your area, try one of our virtual support group options.

Interested in starting an Ataxia Support Group in your community? We are always looking for volunteers to be an ambassador or Support Group Leader. Email Lori Shogren, Community Program and Services Director, at lori@ataxia.org for more information. 

International Support Groups & Ambassadors

Canada

Ottawa Support Group Leader

Prentis Clairmont
Ottawa, Ontario
Phone #: 613-864-8545
E-mail: prentis.clairmont@gmail.com
Facebook Group: www.facebook.com/groups/1468963499991380/

Global Ataxia Support Group Leader

Mark Desa
Mississauga, Ontario
Phone #: 416-418-2475
E-mail: mark@hopeforataxia.org
Facebook Group: www.facebook.com/groups/ataxiafitness

India Support Group Leader (SAMAG)

"Seek a Miracle Ataxia Group"

Chandu Prasad George
Hyderabad, Secunderabad, India
Phone #: 0091-9989899919
Alternate Phone #: 0091-9885199918
E-mail: sam_ataxiaindia@yahoo.com
Facebook Group: www.facebook.com/groups/135999194491/
Support Group Email: india.ataxiagroup@gmail.com

 

Pakistan Ambassador

Sajjad Haider
Karachi, Pakistan 0092
Phone #: 300- 828-1784
E-mail: sajjadhaiderb@hotmail.com

Facebook Support Groups

NAF Community Ataxia Support Group

This is an online group for anyone affected by Ataxia. Persons with Ataxia, friends, and family members are all welcome!

Under 30 with Ataxia Support Group

You must have Ataxia yourself and be ages 16-30 to join this group. Parents/Spouses/Friends of people with Ataxia are not permitted.

Lauren Sormani
Washington, DC
Phone #: 908-577-6245
E-mail: lasormani@gmail.com
Facebook Group: https://www.facebook.com/groups/
Under30withAtaxia/

Spouses and Partners of Loved Ones with Ataxia Support Group

This group is for spouses and partners without Ataxia who have a spouse or partner with Ataxia. This is our spot to learn from one another, vent, have fun, and discuss topics important to us!

Parents of Kids with Ataxia Support Group

This group is for parents who have a child who has Ataxia. This is our spot to learn from one another, vent, have fun, and discuss topics important to us!

African Americans with Ataxia Support Group

This group is for African-Americans with Ataxia to connect with each other to share resources and experiences.

Support Group News

See what the Support Groups have been up to with the latest Support Group updates.

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Your gift to Ataxia research DOUBLED through December 31st

Contributions to the Annual Research Drive help NAF fund the very best Ataxia research. An anonymous donor will match every dollar donated during this campaign, up to $50,000.

Your donation means more Ataxia research! Thank you for supporting NAF as we seek effective treatments for Ataxia.

Thank you so much!