In a continued effort to protect our Ataxia community, we’ve been monitoring the news about COVID-19. We have also been in contact with members of NAF’s Medical Research Advisory Board (MRAB). Their advice is to cancel any non-essential meetings, until further notice, because a person with Ataxia is at risk of complications if they contract the virus.
At this time, NAF recommends cancellation of all in-person support group meetings.
Please check the events calendar for up-to-date meeting cancellations and virtual meeting options.
Read recaps about the latest Support Group meetings at www.ataxia.org/SupportGroupNews.
Select your state to reveal contact information for Support Groups and Ambassadors in your area. If there are no Support Groups in your area, try one of our virtual support group options.
Interested in starting an Ataxia Support Group in your community? We are always looking for volunteers to be an ambassador or Support Group Leader. Email Lori Shogren, Community Program and Services Director, at lori@ataxia.org for more information.
Prentis Clairmont
Ottawa, Ontario
Phone #: 613-864-8545
E-mail: prentis.clairmont@gmail.com
Facebook Group: www.facebook.com/groups/1468963499991380/
Mark Desa
Mississauga, Ontario
Phone #: 416-418-2475
E-mail: mark@hopeforataxia.org
Facebook Group: www.facebook.com/groups/ataxiafitness
Chandu Prasad George
Hyderabad, Secunderabad, India
Phone #: 0091-9989899919
Alternate Phone #: 0091-9885199918
E-mail: sam_ataxiaindia@yahoo.com
Facebook Group: www.facebook.com/groups/135999194491/
Support Group Email: india.ataxiagroup@gmail.com
Sajjad Haider
Karachi, Pakistan 0092
Phone #: 300- 828-1784
E-mail: sajjadhaiderb@hotmail.com
This is an online group for anyone affected by Ataxia. Persons with Ataxia, friends, and family members are all welcome!
Facebook Group: https://www.facebook.com/groups/NAFmail
You must have Ataxia yourself and be ages 16-30 to join this group. Parents/Spouses/Friends of people with Ataxia are not permitted.
Lauren Sormani
Washington, DC
Phone #: 908-577-6245
E-mail: lasormani@gmail.com
Facebook Group: https://www.facebook.com/groups/
Under30withAtaxia/
This group is for spouses and partners without Ataxia who have a spouse or partner with Ataxia. This is our spot to learn from one another, vent, have fun, and discuss topics important to us!
Dana Mauro
E-mail: ataxiafacts@gmail.com
Facebook Group: https://www.facebook.com/groups/
AtaxiaSpousesAndPartners/
This group is for parents who have a child who has Ataxia. This is our spot to learn from one another, vent, have fun, and discuss topics important to us!
Stephanie Leonard
E-mail: stephanie_q007@yahoo.com
Facebook Group: https://www.facebook.com/groups/
ParentsOfKidsWithAtaxia
This group is for African-Americans with Ataxia to connect with each other to share resources and experiences.
Letitia Diggs
E-mail: Letitia.diggs@iCloud.com
Phone #: 202-386-8289
Facebook Group: https://www.facebook.com/groups/501238100417901/
See what the Support Groups have been up to with the latest Support Group updates.
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As the summer gets going, many of our Support Groups have been meeting virtually to stay connected. Check our events calendar for upcoming virtual meetings. Below Read More…
COVID-19 is affecting many areas of life. While our Support Groups haven’t been able to meet in person because of Stay At Home orders across Read More…
Author: Amy Draves Upon learning that I (Amy) for sure had Ataxia of some kind, I joined the Facebook page of the National Ataxia Foundation. Read More…
Check out the latest news and meeting recaps from our Ataxia Support Groups around the country. Chicago Ataxia Support Group – December Meeting Recap The Read More…
Submitted by Amy Draves We had a relatively small in numbers meeting but LOTS of encouragement and support from each other. We had two speakers Read More…
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