Support Groups

The National Ataxia Foundation provides a variety of ways to connect with others affected by Ataxia.

NOTICE: NAF Recommends Cancellation of All In-Person Support Group Meetings Until Further Notice

In a continued effort to protect our Ataxia community, we’ve been monitoring the news about coronavirus COVID-19. We have also been in contact with members of NAF’s Medical Research Advisory Board (MRAB). Their advice is to cancel any non-essential meetings, until further notice, because a person with Ataxia is at risk of complications if they contract the virus.

At this time, NAF recommends cancellation of all in-person support group meetings. 

We will continue to monitor the situation and consult with the MRAB. We will notify you when they have deemed it safe to resume normal activities in the community. Please check the events calendar for up-to-date meeting cancellations.

International Support Groups & Ambassadors

Canada

Ottawa Support Group Leader

Prentis Clairmont
Ottawa, Ontario
Phone #: 613-864-8545
E-mail: prentis.clairmont@gmail.com
Facebook Group: www.facebook.com/groups/1468963499991380/

Toronto Area Support Group Leader

Mark Desa
Mississauga, Ontario
Phone #: 416-418-2475
E-mail: mark@hopeforataxia.org
Facebook Group: www.facebook.com/groups/ataxiafitness

India Support Group Leader (SAMAG)

"Seek a Miracle Ataxia Group"

Chandu Prasad George
Hyderabad, Secunderabad, India
Phone #: 0091-9989899919
Alternate Phone #: 0091-9885199918
E-mail: sam_ataxiaindia@yahoo.com
Facebook Group: www.facebook.com/groups/135999194491/
Support Group Email: india.ataxiagroup@gmail.com

 

Pakistan Ambassador

Sajjad Haider
Karachi, Pakistan 0092
Phone #: 300- 828-1784
E-mail: sajjadhaiderb@hotmail.com

Under 30 with Ataxia Support Group

You must have Ataxia yourself and be ages 16-30 to join this group. Parents/Spouses/Friends of people with Ataxia are not permitted.

Lauren Sormani
Washington, DC
Phone #: 908-577-6245
E-mail: lasormani@gmail.com
Facebook Group: https://www.facebook.com/groups/Under30withAtaxia/

Parents of Kids with Ataxia Support Group

This group is for parents who have a child who has Ataxia. This is our spot to learn from one another, vent, have fun, and discuss topics important to us!.
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