Support Groups

International Support Groups & Ambassadors


Ottawa Support Group Leader

Prentis Clairmont
Ottawa, Ontario
Phone #: 613-864-8545
Facebook Group:

Toronto Area Support Group Leader

Mark Desa
Mississauga, Ontario
Phone #: 416-418-2475
Facebook Group:

India Support Group Leader (SAMAG)

"Seek a Miracle Ataxia Group"

Chandu Prasad George
Hyderabad, Secunderabad, India
Phone #: 0091-9989899919
Alternate Phone #: 0091-9885199918
Facebook Group:
Support Group Email:


Pakistan Ambassador

Sajjad Haider
Karachi, Pakistan 0092
Phone #: 300- 828-1784

Under 30 with Ataxia Support Group

You must have Ataxia yourself and be ages 16-30 to join this group. Parents/Spouses/Friends of people with Ataxia are not permitted.

Lauren Sormani
Washington, DC
Phone #: 908-577-6245
Facebook Group:

Parents of Kids with Ataxia Support Group

This group is for parents who have a child who has Ataxia. This is our spot to learn from one another, vent, have fun, and discuss topics important to us!.
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