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Support Groups

The National Ataxia Foundation provides a variety of ways to connect with others affected by Ataxia. Join our Facebook group and view our interactive support group map below.

Under 30 with Ataxia Support Group

(You must have Ataxia yourself and be ages 16-30 to join this group. Parents/Spouses/Friends of people with Ataxia are not permitted to join this group.)

Lauren Sormani
Washington, DC
Phone #: 908-577-6245
E-mail: lasormani@gmail.com
Facebook Group: https://www.facebook.com/groups/Under30withAtaxia/

International Support Groups & Ambassadors

Canada

Ottawa Support Group Leader

Prentis Clairmont
Ottawa, Ontario
Phone #: 613-864-8545
E-mail: prentis.clairmont@gmail.com
Facebook Group: https://www.facebook.com/groups/1468963499991380/

Ambassador

Mark Desa
Mississauga, Ontario
Phone #: 416-418-2475
E-mail: mark@marked4glory.com

India Support Group Leader (SAMAG)

"Seek a Miracle Ataxia Group"

Chandu Prasad George
Hyderabad, Secunderabad, India
Phone #: 0091-9989899919
Alternate Phone #: 0091-9885199918
E-mail: sam_ataxiaindia@yahoo.com
Facebook Group: https://www.facebook.com/groups/135999194491/
Support Group Email: india.ataxiagroup@gmail.com

 

Pakistan Ambassador

Sajjad Haider
Karachi, Pakistan 0092
Phone #: 300- 828-1784
E-mail: sajjadhaiderb@hotmail.com

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