Support Groups

International Support Groups & Ambassadors

Canada

Ottawa Support Group Leader

Prentis Clairmont
Ottawa, Ontario
Phone #: 613-864-8545
E-mail: prentis.clairmont@gmail.com
Facebook Group: www.facebook.com/groups/1468963499991380/

Toronto Area Support Group Leader

Mark Desa
Mississauga, Ontario
Phone #: 416-418-2475
E-mail: mark@hopeforataxia.org
Facebook Group: www.facebook.com/groups/ataxiafitness

India Support Group Leader (SAMAG)

"Seek a Miracle Ataxia Group"

Chandu Prasad George
Hyderabad, Secunderabad, India
Phone #: 0091-9989899919
Alternate Phone #: 0091-9885199918
E-mail: sam_ataxiaindia@yahoo.com
Facebook Group: www.facebook.com/groups/135999194491/
Support Group Email: india.ataxiagroup@gmail.com

 

Pakistan Ambassador

Sajjad Haider
Karachi, Pakistan 0092
Phone #: 300- 828-1784
E-mail: sajjadhaiderb@hotmail.com

Under 30 with Ataxia Support Group

You must have Ataxia yourself and be ages 16-30 to join this group. Parents/Spouses/Friends of people with Ataxia are not permitted.

Lauren Sormani
Washington, DC
Phone #: 908-577-6245
E-mail: lasormani@gmail.com
Facebook Group: https://www.facebook.com/groups/Under30withAtaxia/

Parents of Kids with Ataxia Support Group

This group is for parents who have a child who has Ataxia. This is our spot to learn from one another, vent, have fun, and discuss topics important to us!.