Our Mission

The National Ataxia Foundation is dedicated to improving the lives of persons affected by Ataxia through support, education, and research.


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Video of our first webinar, "Dietary Considerations for Ataxia," featuring Dr. Susan Perlman and Amanda Gallagher, MA, CCC-SLP, is now available: www.youtube.com/watch?v=HSyTtMuxn5Y ...

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2 weeks ago

National Ataxia Foundation

Attention Ataxia Advocates: Registration is now open for #RareAcrossAmerica! Learn more and register: bit.ly/305v85w ...

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Recent Ataxia Articles

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May 25, 2019 05:00 pm - 09:00 pm
Nebraska Ataxia Support Group Social Outing

Join us for a StormChasers baseball game! Admission and dinner provided. For more information contact Linda Snider at:402-212-3060 or lindasnider@cox.net Hope you can join us! Read More…

May 30, 2019 04:30 pm - 07:00 pm
Spaghetti Dinner
Jun 02, 2019 08:00 am - 05:00 pm
Traveling OH Ataxia Support Group Meeting – Dayton, OH

We hope you will join us for a support Group meeting in Dayton, OH! We will meet at the Dayton Main Library, Conference Room 3A on the 3rd floor in the main library. For more information or questions contact:  William Vetter at: (513) 310-7530 or wjuniorvet@gmail.com Read More…

Jun 08, 2019 10:00 am - 12:00 pm
North Texas Ataxia Support Group Meeting

We hope you can join us! For more information contact: David Henry Jr Phone #:817-739-2886 (contact by email preferred) Email: cheve11e@sbcglobal.net Facebook Group: https://www.facebook.com/Ataxiasupport Read More…

Member Stories

DeCrescenzo Family
DeCrescenzo Family

“We had time to process the diagnosis and vowed not to let it change who we are or alter our daily lives. We found a neurologist who specializes in movement disorders and Ataxia. We also joined two support groups, one at Johns Hopkins Medical Center, and the other with the Chesapeake Chapter NAF.” Read More…

Lisa Cole and daughter
Lisa Cole

“I want to help the NAF and spread awareness about Ataxia. One way I could help support NAF and also bring about awareness was by having fundraisers. I have approximately 2 fundraisers per year. Introducing the NAF to my friends and acquaintances or by telling them to go directly to the website www.ataxia.org.” Read More…

Ed Schwartz
Ed Schwartz

“Ataxia is the biggest challenge I have ever had to face in my life. About twenty three years ago I began to fall down in the dark. Then after experiencing symptom s of 6 other disorders over the next 20 years, and a seizure – like reaction to the composite collection of drugs I was taking, I wrecked my truck!” Read More…

Jonathan Zilles
Jonathan Zilles

“I’m Jonathan Zilles. I was diagnosed with Friedreich’s Ataxia when I was 11 years old. Life as a kid with
Friedreich’s was pretty normal, but I fell down a lot. My symptoms started early and included hand-eye coordination issues….” Read More…