Our Mission

The National Ataxia Foundation is dedicated to improving the lives of persons affected by Ataxia through support, education, and research.

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NAF Members

Join the growing number of people that want to stay connected with the Ataxia community! Sign up today. It only takes a few moments. Our members receive:

  • News and research opportunities about their specific type of Ataxia as it becomes available.
  • Early access to free webinars
  • NAF’s eNewsletter and Generations publications. 

NEWS

NAF Blog Posts

United Against Ataxia

Author: Lori Shogren, Community Program and Services Director  An IAAD Like No Other September 25th is International Ataxia awareness Day (IAAD). Over the last 20 years IAAD has grown from Read More…

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Facebook Posts

The Ataxia field desperately needs an Ataxia-specific PROM (Patient Reported Outcome Measure) to monitor issues that are meaningful to patients. Dr. Jeremy Schmahmann’s Lab at Massachusetts General Hospital has developed a PROM-Ataxia and now needs to determine if it is reliable when completed a few times over a month. They are seeking patients with Cerebellar Ataxia who can complete this scale at home, on 3 separate occasions, over a period of 1 month. This will allow them to assess the test-retest reliability of the PROM-Ataxia. For this project, Dr. Schmahmann’s lab needs access to 140 people with Cerebellar Ataxia. If you are interested in participating, please email Mary Ann Peterson, NAF’s Research Assistant at mary_peterson@ataxia.org so that she can mail you the PROM-Ataxia questionnaire to fill out and mail back to Dr. Schmahmann’s Lab. You will need to provide your postal address in your email to Mary Ann. Thank you for your willingness to participate in this study. ...

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The Annual Ataxia Research Drive plays a crucial role in grants that we award to researchers. Donate today right here on Facebook or online at bit.ly/2pOGSeW. Your gift will be matched. ...

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We're happy to welcome Dr. Jeremy Schmahmann as the keynote speaker for 2020 Annual Ataxia Conference. Join us in Denver to hear his keynote address, "Your Voice in Drug and Therapy Development."
Register now: bit.ly/2MT3eUt
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Events

Nov 15, 2019 11:30 am - 12:30 pm
Connecticut Ataxia Support Group Meeting

For more information contact Susan Masse: Phone #: 860-528-1875 or E-mail: Smasse1875@gmail.com Read More…

Nov 15, 2019 03:15 pm - 05:15 pm
Richmond Area Ataxia Support Group Meeting

Join us to socialize and share ideas! We will also discuss future meeting topics and dates. This location allows us to bring in food, snacks and beverages feel free. For more information contact Karen Russell at: 804-543-8707 or klruss@comcast.net Join our Facebook Group! Read More…

Nov 16, 2019 10:00 am - 12:30 pm
Twin Cities Ataxia Support Group Meeting

We hope to see you there! For more information contact: Lenore Healey Schultz at 612-724-3784 or schultz.lenore@yahoo.com Maryann Sweeney at 612-924-4947 or maryann.sween@gmail.com Read More…

Nov 16, 2019 11:00 am - 01:00 pm
Nebraska Ataxia Support Group Social Outing

Check back for more information regarding our November 2019 Social Outing location! Hope you can join us! Nebraska Support Group Leader Linda Snider Omaha, NE Phone #: 402-212-3060 Email: lindasnider@cox.net Read More…