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The Ataxia Community Comes Together in Orlando April 9–11, 2026 for the Annual Ataxia Conference! LEARN MORE

Our Vision:

A World Without Ataxia.

Ensuring no one experiences Ataxia alone, until no one experiences Ataxia, period.

Our Mission

To accelerate the development of treatments and a cure while working to improve the lives of those living with Ataxia.

Share Your Story. Strengthen Our Voice.

Cameryn’s story is a powerful reminder of why we can’t wait for progress in Ataxia treatment development. While Ataxia affects each person differently, every voice matters in the fight for treatments and a cure. Watch her story, then share your own on social media with #KnowAtaxia to raise awareness and bring us closer—together—to a world without Ataxia.

Share your story about living with Ataxia. For Cameryn. For everyone still fighting. Every voice brings us closer to a cure!

Become a Member of NAF for FREE!

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Join the growing number of people that want to stay connected with the Ataxia community! Sign up today. It only takes a few moments. Our members receive:

  • News and research opportunities about their specific type of Ataxia as it becomes available.
  • Early access to free webinars
  • NAF’s eNewsletter and Generations publications. 

NAF Blog

Recent Articles

University of Florida Brain Bank

Location Gainesville, FL USA  Website www.neurogenetics.med.ufl.edu/patients/brain-donation-program/ Phone Number (352) 273-5189  Email dgmorrison@ufl.edu  Geographic Restrictions Continental USA   Other Restrictions Donations are restricted to forms of Ataxia characterized Read More…

Recent Member Stories

Bella

I’m Bella and from China, thanks to this platform so I could share my story here. My diagnosis was very easy, not that complicating. I Read More…

Michal

Hello Everyone, I’m a pharmacist and have been living for half a century. I learned about my wife’s Ataxia in October of this year. I Read More…

Brenda C

As a 28-year veteran special education teacher at Vandercook Lake Public Schools, I was looking forward to retiring in 2018. I had plans on working Read More…

What Is Ataxia?

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EVENTS

Feb 07, 2026 12:00 pm - 05:00 pm
Skate for a Cure

CENTRAL TIME ZONE Skate for a Cure brings skaters together to complete a high-mileage challenge on the ice, turning every lap into momentum for change. Every lap represents hope, determination, Read More…

Feb 07, 2026 01:00 pm - 04:00 pm
Central Ohio Cabin Fever Relief Meeting

EASTERN TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is Read More…

Feb 07, 2026 06:30 pm - 10:00 pm
Krewe of Ataxia

CENTRAL TIME ZONE Join us for a night of purpose & celebration just 10 days before Mardi Gras, when the city is already bursting with celebration. There’s no better place Read More…

Feb 08, 2026 01:00 pm - 02:00 pm
Ataxia Awareness Las Vegas Support Group Meeting

PACIFIC TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is Read More…

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