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Our Mission

The National Ataxia Foundation is dedicated to improving the lives of persons affected by Ataxia through support, education, and research.


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Last call for the advance registration discount to #2019AAC! Join us in Vegas NEXT WEEK for 2 days of great Ataxia information. Advance registration closes March 23rd. Register now to save $50: ...

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Check out some pics from Mike De Rosa and Ed Brand's grueling 26.2 mile hike through the desert to raise awareness about Ataxia and support NAF. 👏 Congrats to them both for completing the Joint Mission Bataan!
All proceeds support NAF's fight to end Ataxia.

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3 days ago

National Ataxia Foundation

Mike De Rosa and Ed Brand completed their 26.2 mile march today! Their quest, the Joint Mission Bataan, is an operation to raise awareness about Ataxia and honor veterans. Both men have the disease themselves. Way to go guys! Thanks for your hard work!

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1 week ago

National Ataxia Foundation

Attendees interaction with a representative from the National Ataxia Foundation. ...

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Recent Ataxia Articles

YouTube Channel


Mar 29, 2019 12:00 am - 11:59 pm
NAF Annual Ataxia Conference

The National Ataxia Foundation and Western Region Conference Hosts invite you to be part of the largest Ataxia gathering in the world to learn, share, network, and have fun! We are excited to announce the title for this conference is “Ataxia: A Treatable Disease”. This theme will be woven throughout the conference sessions. Our goal Read More…

Apr 05, 2019 12:00 am - 11:59 pm
Abilities Expo – Toronto

For nearly 40 years, Abilities Expo has been the go-to source for the Community of people with disabilities, their families, seniors, veterans and healthcare professionals. Every event opens your eyes to new technologies, new possibilities, new solutions and new opportunities to change your life. Read More…

Apr 13, 2019 10:00 am - 12:00 pm
North Texas Ataxia Support Group

We hope you can join us! For more information contact: David Henry Jr Phone #:817-739-2886 (contact by email preferred) Email: Facebook Group: Read More…

Apr 13, 2019 11:00 am - 03:00 pm
Norther CA Ataxia Support Group Meeting

For more information visit the Northern California Ataxia Support Group website! Read More…

Member Stories

DeCrescenzo Family
DeCrescenzo Family

“We had time to process the diagnosis and vowed not to let it change who we are or alter our daily lives. We found a neurologist who specializes in movement disorders and Ataxia. We also joined two support groups, one at Johns Hopkins Medical Center, and the other with the Chesapeake Chapter NAF.” Read More…

Lisa Cole and daughter
Lisa Cole

“I want to help the NAF and spread awareness about Ataxia. One way I could help support NAF and also bring about awareness was by having fundraisers. I have approximately 2 fundraisers per year. Introducing the NAF to my friends and acquaintances or by telling them to go directly to the website” Read More…

Ed Schwartz
Ed Schwartz

“Ataxia is the biggest challenge I have ever had to face in my life. About twenty three years ago I began to fall down in the dark. Then after experiencing symptom s of 6 other disorders over the next 20 years, and a seizure – like reaction to the composite collection of drugs I was taking, I wrecked my truck!” Read More…

Jonathan Zilles
Jonathan Zilles

“I’m Jonathan Zilles. I was diagnosed with Friedreich’s Ataxia when I was 11 years old. Life as a kid with
Friedreich’s was pretty normal, but I fell down a lot. My symptoms started early and included hand-eye coordination issues….” Read More…


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