The Ataxia Community Comes Together in Orlando April 9–11, 2026 for the Annual Ataxia Conference! LEARN MORE
Cameryn’s story is a powerful reminder of why we can’t wait for progress in Ataxia treatment development. While Ataxia affects each person differently, every voice matters in the fight for treatments and a cure. Watch her story, then share your own on social media with #KnowAtaxia to raise awareness and bring us closer—together—to a world without Ataxia.
Share your story about living with Ataxia. For Cameryn. For everyone still fighting. Every voice brings us closer to a cure!
Join the growing number of people that want to stay connected with the Ataxia community! Sign up today. It only takes a few moments. Our members receive:
Written by Taylor Stolberg Faces of Ataxia Research highlights scientists whose work is supported by grants from NAF. Each story shows how our donors are Read More…
Location Gainesville, FL USA Website www.neurogenetics.med.ufl.edu/patients/brain-donation-program/ Phone Number (352) 273-5189 Email dgmorrison@ufl.edu Geographic Restrictions Continental USA Other Restrictions Donations are restricted to forms of Ataxia characterized Read More…
Written by Victoria Martinez Faces of Ataxia Research highlights scientists whose work is supported by grants from NAF. Each story shows how our donors are Read More…
Written by Celeste Suart Faces of Ataxia Research highlights scientists whose work is supported by grants from NAF. Each story shows how our donors are Read More…
I am 62 years young. I was diagnosed with SCA8 when I was 24. Dr. Byrd took a skin sample to help with other types Read More…
It started about 12 years ago. My dad was diagnosed with Ataxia. I wasn’t really sure what that meant, but I spent the next several Read More…
I’m Bella and from China, thanks to this platform so I could share my story here. My diagnosis was very easy, not that complicating. I Read More…
Hello Everyone, I’m a pharmacist and have been living for half a century. I learned about my wife’s Ataxia in October of this year. I Read More…
Disclaimer: This event is not affiliated with NAF. We are sharing this information as a resource for the Ataxia community. Sharing this information does not imply endorsement by NAF. Rare Disease Read More…
Global (Hope for Ataxia) Support Group Meeting- 1st Session EASTERN TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. Read More…
Global Support Group (Hope for Ataxia) – 2nd Session EASTERN TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. Read More…
Disclaimer: This event is not affiliated with NAF. We are sharing this information as a resource for the Ataxia community. Sharing this information does not imply endorsement by NAF. Rare Disease Read More…
