The National Ataxia Foundation is dedicated to improving the lives of persons affected by Ataxia through support, education, and research.
Today we are pleased to announce our search for a new Executive Director! Help us spread the word.
We're excited to find a person that will lead us in growth toward our commitment to Ataxia discovery and support for persons affected by this rare disease. Position is based in Minneapolis - must be willing to relocate. Check out the press release for more info: bit.ly/NAF_ExecutiveDirector
Interested in learning about reproductive options for people with hereditary Ataxia that could reduce the chances of having a child with that gene change? This article discusses some.
Using PGT for Spinocerebellar Ataxia
sharinghealthygenes.com
Struggling with spinocerebellar ataxia and curious what your family planning options are? Read on for more information.2019 AAC Registration is NOW OPEN! Join us for Dr. Susan Perlman's Keynote Address, "Ataxia: A Treatable Disease". Discounted pricing available for a limited time - get it while you can! bit.ly/Register_2019AAC
ADA room reservation requests will be accepted beginning today at 12pm Central. Call 763-553-0020 or email lori@ataxia.org with your request.
Ataxia science has moved forward because of people like YOU. When NAF was founded, little was known about the disease. Now there is a robust network of brilliant scientists working together to find treatments and a cure. Support the 2018 Ataxia Research Drive to keep that work going. Donate today and your donation will be matched! Text NAF to 71777 or use the donate button on this post.
Please join us we will be viewing The Ataxian, enjoying great food and sharing stories! Read More…
For more information contact Jonas Cepkauskas 708-381-5555 E-mail: jonas@fightataxia.org Read More…
We meet the third Sunday of each month at 2:00 p.m. Even numbered months will be support only meetings and odd numbered months will be programmed. Each meeting will include introductions and a show and tell time. All meetings are confidential, except for agendas and presenter materials. We will meet at the offices of Sharp Read More…
A newly formed Ataxia Support Group serving Western NY and the surrounding area will meet the 3rd Wednesday of the month! All are welcome. You need not have Ataxia to attend. If you have an agenda topic of interest, please contact jesse.diehl61@gmail.com He can also be reached by phone or text at 585-315-1578. Hope that Read More…
“We had time to process the diagnosis and vowed not to let it change who we are or alter our daily lives. We found a neurologist who specializes in movement disorders and Ataxia. We also joined two support groups, one at Johns Hopkins Medical Center, and the other with the Chesapeake Chapter NAF.” Read More…
“I want to help the NAF and spread awareness about Ataxia. One way I could help support NAF and also bring about awareness was by having fundraisers. I have approximately 2 fundraisers per year. Introducing the NAF to my friends and acquaintances or by telling them to go directly to the website www.ataxia.org.” Read More…
“Ataxia is the biggest challenge I have ever had to face in my life. About twenty three years ago I began to fall down in the dark. Then after experiencing symptom s of 6 other disorders over the next 20 years, and a seizure – like reaction to the composite collection of drugs I was taking, I wrecked my truck!” Read More…
“I’m Jonathan Zilles. I was diagnosed with Friedreich’s Ataxia when I was 11 years old. Life as a kid with
Friedreich’s was pretty normal, but I fell down a lot. My symptoms started early and included hand-eye coordination issues….” Read More…
