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NEWS

Posted on May 31, 2018
You Rose to the Challenge! Goal EXCEEDED!

The Clementz Foundation issued a match donation challenge and pledged $50,000. Act now to have your donation DOUBLED and help us earn the pledge! Read More…

Posted on April 12, 2018
NAF Rated 4-Stars by Charity Navigator for 5th Time in a Row

We’re excited to announce that NAF has received the top rating by Charity Navigator – the largest independent evaluator of charities – for the 5th time in a row! Why is that a big deal? Because only 9% of charities evaluated have received at least five consecutive 4-star ratings! The coveted 4-star rating means that Read More…

Events

Nov 16, 2018 11:00 am - 12:00 pm
Connecticut Ataxia Support Group Meeting

For more information contact Susan Masse: Phone #: 860-528-1875 or E-mail: Smasse1875@gmail.com Read More…

Nov 17, 2018 11:00 am - 01:00 pm
Nebraska Ataxia Support Group Meeting

Join us for lunch and a tour of the SAC Air Museum! Please RSVP to Nancy at nlbrook41@hotmail.com Read More…

Nov 17, 2018 12:30 pm - 03:00 pm
Tampa Bay Ataxia Support Group Meeting

For more information contact Darlene Harris 813-431-2859 E-mail: Msdee004@gmail.com Read More…

Nov 17, 2018 01:00 pm - 03:00 pm
Sacramento Ataxia Support Group Meeting

We meet on the third Saturday of each month. For more information or to be added to this group’s mailing list contact Teresa Bredberg at 916-215-2686 or tbredberg@sbcglobal.net. *Location/Room Subject to change: Please contact facilitator to confirm location. Read More…

Member Stories

DeCrescenzo Family
DeCrescenzo Family

“We had time to process the diagnosis and vowed not to let it change who we are or alter our daily lives. We found a neurologist who specializes in movement disorders and Ataxia. We also joined two support groups, one at Johns Hopkins Medical Center, and the other with the Chesapeake Chapter NAF.” Read More…

Lisa Cole and daughter
Lisa Cole

“I want to help the NAF and spread awareness about Ataxia. One way I could help support NAF and also bring about awareness was by having fundraisers. I have approximately 2 fundraisers per year. Introducing the NAF to my friends and acquaintances or by telling them to go directly to the website www.ataxia.org.” Read More…

Ed Schwartz
Ed Schwartz

“Ataxia is the biggest challenge I have ever had to face in my life. About twenty three years ago I began to fall down in the dark. Then after experiencing symptom s of 6 other disorders over the next 20 years, and a seizure – like reaction to the composite collection of drugs I was taking, I wrecked my truck!” Read More…

Jonathan Zilles
Jonathan Zilles

“I’m Jonathan Zilles. I was diagnosed with Friedreich’s Ataxia when I was 11 years old. Life as a kid with
Friedreich’s was pretty normal, but I fell down a lot. My symptoms started early and included hand-eye coordination issues….” Read More…

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