The National Ataxia Foundation is dedicated to improving the lives of persons affected by Ataxia through support, education, and research.
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The National Ataxia Foundation (NAF) and the Friedreich’s Ataxia Research Alliance (FARA) applaud the United States Senate on behalf of Ataxia patients and their families Read More…
The National Ataxia Foundation (NAF), the Friedreich’s Ataxia Research Alliance (FARA), and Ataxia UK are pleased to announce the date for the inaugural International Congress Read More…
Guest Author: Movement Disorder Policy Coalition Movement disorders such as Ataxia, Parkinson’s, Huntington’s, and tardive dyskinesia can affect every aspect of a person’s life. That Read More…
Pre-competitive pharma industry consortium looks to accelerate development of treatments for Ataxia The National Ataxia Foundation (NAF) announced today the launch of the NAF Drug Read More…
Guest Author: Jay Armstrong, NAF Support Group Leader At my 7 year olds son’s first baseball practice the coach asked if a parent would be Read More…
Author: Mary Ann Peterson, NAF Research Associate Many feel powerless when they are first diagnosed with Ataxia. Brain donation gives the donor and family the Read More…
Living with Ataxia is a difficult journey. But you are not alone. Sharing your story can inspire others, help someone learn about Ataxia, and reassure a person who has been through similar things. NAF is hoping to feature a member story each month on our website. Are you willing to let us share your story? If so, email your story to: naf@ataxia.org
We would like to send a massive thank you to everyone who works to protect and advance public health. Your efforts save lives. Happy Public Health Thank You Day! #PHTYD #PublicHealthHeroes
We were happy to team up with FARA to get the National Ataxia Awareness Resolution of 2020 passed by the Senate! Thank you to Senator Warren and Senator Cindy Hyde-Smith for co-sponsoring this bipartisan resolution! Read the press release: ataxia.org/bipartisan-national-ataxia-awareness-day-of-2020-resolution-passed
Dr. Paulson was recently elected to the National Academy of Medicine, which is a great honor. He has provided leadership to many scientists who are now involved in the Ataxia research field. He has been a champion for NAF and we would like to congratulate him on this accomplishment. Thank you Dr. Paulson! alzheimers.med.umich.edu/2020/10/19/dr-paulson-elected-to-national-academy-of-medicine-membership/
Meetings are at 9AM, 12PM, 3PM and 6PM EST (2PM, 5PM, 8PM, 11PM in London, UK). The Links to this teleconference will be provided once registration opens. For more information contact Mark Desa at 416-418-2475 or mark@hopeforataxia.org. Read More…
We will have four speakers as follows: 9AM Eastern (2PM in the UK, 11PM in Sydney) – Jan Goldstein-Elman, Physiotherapist from One Step Ahead Mobility 12PM Eastern 12PM EDT (5PM in the UK, 2AM Saturday in Sydney) – Tim Anderson, Owner and Trainer from Original Strength 3PM Eastern (8PM in the UK, 5AM Saturday in Sydney) Read More…
We meet the first Saturday of the month at 10:30 AM Pacific Time Please download and import the following iCalendar (.ics) files to your calendar system. Monthly: https://us04web.zoom.us/meeting/upwkf–grDIpHdQwrwq8z2rPIJiLuwdKEXai/ics?icsToken=98tyKu6gpzMsEtacsx6HR7Y-HYqgM_zzplhegqdsiw3yEnhJMBHGH8hLHqdoFPP1 Join Zoom Meeting https://us04web.zoom.us/j/78986829370?pwd=SEdjTnhEelZSQVNDeTg4b0FFZjQ4UT09 Meeting ID: 789 8682 9370 Passcode: 9Msa3c For more information contact Libby and Rich Hoops at 775-223-2809 or hoops.e.a.hoops@gmail.com Join Our Facebook Group! Read More…
Register in advance for this meeting: https://us02web.zoom.us/meeting/register/tZIof-ygrTkjH9SgOKaUeok_Fm052Ew4lauf After registering, you will receive a confirmation email containing information about joining the meeting. For more information contact Lisa Cole at 772-370-3041 | lisacoleataxia@gmail.com Join our Facebook Group! Read More…
Our generous donors help us fund promising Ataxia research and offer support services to people with Ataxia. Your gift today will help us continue to deliver on our mission to improve the lives of persons affected by Ataxia.
Join for FREE today! Become a part of the community that is working together to find a cure. As a member you will receive access to the latest Ataxia news with our e-newsletter and Generations publication.
Contributions to the Annual Research Drive help NAF fund the very best Ataxia research. An anonymous donor will match every dollar donated during this campaign, up to $50,000.
