The National Ataxia Foundation is dedicated to improving the lives of persons affected by Ataxia through support, education, and research.
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Author: Joel Sutherland, Development Director Mark your calendar for Saturday, October 3rd beginning at 1:00pm EDT for the 2020 National Ataxia Foundation Virtual Walk N’ Roll. Read More…
NAF and FARA held our second Hill Day on Thursday, September 10, 2020! The event raised awareness about Ataxia and supported legislation that directly impacts our Read More…
Author: Lori Shogren, Community Program and Services Director A Note About the 2021 Annual Ataxia Conference We know how valuable it is for those living Read More…
Guest Author: Amber Trzeciak, Cadent Therapeutics Clinical trial phases can be a confusing concept to understand. The purpose of clinical trials is to determine how Read More…
Visit this page and fill out the form below on September 25, 2020 between 10am and 3pm Eastern to gain access to the Externally-Led Patient Read More…
We have been shaken, saddened, and angered by the death of George Floyd here in NAF’s hometown of Minneapolis. We have also been strengthened by the Read More…
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The Externally-Led Patient Focused Drug Development Meeting for Polyglutamine Ataxias is coming up later this month. It's time for you to get involved! If you are a person living with SCA 1, 2, 3, 6, 7, 8, 17, DRPLA, or a caregiver, please visit our website to share your experiences regarding symptoms, current treatments and the effects on your daily life.
Register now for tomorrow's Hill Day Advocacy webinar! Members of NAF and FARA will cover what we plan to discuss with Senators on Hill Day and how you can make your voice heard. Join us online 💻https://us02web.zoom.us/webinar/register/WN_YB9VihfqTDudLzV73znqzQ
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Save the date for our Externally-Led Patient-Focused Drug Development Meeting on September 25th from 10-3 EDT. NAF and CureDRPLA host this meeting for the Polyglutamine Spinocerebellar Ataxias and DRPLA. We hope you can join us! For more information visit, ataxia.org/el-pfdd-meeting/
We hit a new member record today of 5,000!
Thank you to all our members. Don't forget to join if you haven't yet. www.ataxia.org/JoinNAF
International Ataxia Awareness Day (IAAD) is on September 25th of each year. It is a coordinated effort from individuals and Ataxia organizations around the world to help shed light on this rare disease. NAF is committed to leading the way on this outreach effort – but we need your help! We encourage individuals and disease Read More…
Register in advance for this meeting: https://us02web.zoom.us/meeting/register/tZIof-ygrTkjH9SgOKaUeok_Fm052Ew4lauf After registering, you will receive a confirmation email containing information about joining the meeting. For more information contact Lisa Cole at 772-370-3041 | lisacoleataxia@gmail.com Join our Facebook Group! Read More…
Register in advance for this meeting: https://us02web.zoom.us/meeting/register/tZIof-ygrTkjH9SgOKaUeok_Fm052Ew4lauf After registering, you will receive a confirmation email containing information about joining the meeting. For more information contact Lisa Cole at 772-370-3041 | lisacoleataxia@gmail.com Join our Facebook Group! Read More…
Sunday, September 27, 2020 at 4 PM – 5:30 PM PDT Join Our Zoom Meeting https://us02web.zoom.us/j/87448885259?pwd=SEMyK3c1eDV6ZVMwUXY0RGxTU05LZz09https%3A%2F%2Fus02web.zoom.us%2Fj%2F87448885259%3Fpwd%3DSEMyK3c1eDV6ZVMwUXY0RGxTU05LZz09 Polka music provided by Christina, our Polka hostess. BYO beer, pretzels and other stuff. It’s for the whole family. Meeting ID: 874 4888 5259 Passcode: 076685 For more information join our Facebook Group: https://www.facebook.com/groups/1033349420106652/ or contact Sherry McLaughlin Phone #: 360-344-2445 Read More…
Community support is vital to the work that NAF does. Our generous donors help us fund promising Ataxia research and offer support services to people with Ataxia. Your gift today will help us continue to deliver on our mission to improve the lives of persons affected by Ataxia.
Join for FREE today! Become a part of the community that is working together to find a cure. As a member you will receive access to the latest Ataxia news with our e-newsletter and Generations publication.
