The National Ataxia Foundation is dedicated to improving the lives of persons affected by Ataxia through support, education, and research.
A huge thanks to Did You Know for their podcast about the Joint Mission Bataan. Check it out and hear from NAF's Development Director, Joel Sutherland.
Did You Know
The National #Ataxia Foundation is supporting Mike De Rosa and @Ed Brand in their quest to complete the Bataan Memorial Death March. Ed and Mike have been battling #Ataxia and are now taking on another great challenge with the March. Right now is your opportunity to support them too! Be a part of the Joint Mission #Bataan- an operation to raise awareness of Ataxia.
#kNOwATAXIA #JMB #JMB1 #JMB2 #JMB8 National Ataxia Foundation
app.mobilecause.com/vf/JMB
AT RISK for SCA1 or SCA3?
Participants are needed in a multi-site clinical and MRI study to get ready for future clinical trials. The study led by Houston Methodist Hospital has 20 sites. If your genetic testing results are unknown, results will only be provided to you if you like to receive them.
Travel expenses will be reimbursed for MRI scans.
If you are interested or have questions, please contact: Titilayo Olubajo
(346) 238-5021
U01SCA1&3@houstonmethodist.org
Meet two men with Ataxia - Mike, an Army veteran, and Ed, an active Ataxia advocate - who have joined together in a mission to help others learn about Ataxia. They will march 26 miles in the deserts of New Mexico in March. Learn more: www.ataxia.org/jointmissionbataan
Panel sessions are back! The 2019 Annual Ataxia Conference will feature 2 panel sessions. Check out info about the sessions and submit your questions or topic suggestions.
What do you want to hear discussed at the AAC Panel Sessions?
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For more information contact Susan Masse: Phone #: 860-528-1875 or E-mail: Smasse1875@gmail.com Read More…
We meet the 3rd Saturday or every month, location to be determined. For more information contact Linda Snider at:402-212-3060 or lindasnider@cox.net Hope you can join us! Read More…
We hope to see you there! For more information contact: Dave Cantrell dcantr7358@aol.com Read More…
We hope to see you there! We will have a guest speaker to talk about fundraising opportunities. For more information contact: Tyler Kalina at 541-892-3519 or tyler.kalina@gmail.com Facebook Group: www.facebook.com/groups/388993597939205 Read More…
“We had time to process the diagnosis and vowed not to let it change who we are or alter our daily lives. We found a neurologist who specializes in movement disorders and Ataxia. We also joined two support groups, one at Johns Hopkins Medical Center, and the other with the Chesapeake Chapter NAF.” Read More…
“I want to help the NAF and spread awareness about Ataxia. One way I could help support NAF and also bring about awareness was by having fundraisers. I have approximately 2 fundraisers per year. Introducing the NAF to my friends and acquaintances or by telling them to go directly to the website www.ataxia.org.” Read More…
“Ataxia is the biggest challenge I have ever had to face in my life. About twenty three years ago I began to fall down in the dark. Then after experiencing symptom s of 6 other disorders over the next 20 years, and a seizure – like reaction to the composite collection of drugs I was taking, I wrecked my truck!” Read More…
“I’m Jonathan Zilles. I was diagnosed with Friedreich’s Ataxia when I was 11 years old. Life as a kid with
Friedreich’s was pretty normal, but I fell down a lot. My symptoms started early and included hand-eye coordination issues….” Read More…
