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NEWS

Posted on May 31, 2018
You Rose to the Challenge! Goal EXCEEDED!

The Clementz Foundation issued a match donation challenge and pledged $50,000. Act now to have your donation DOUBLED and help us earn the pledge! Read More…

Posted on April 12, 2018
NAF Rated 4-Stars by Charity Navigator for 5th Time in a Row

We’re excited to announce that NAF has received the top rating by Charity Navigator – the largest independent evaluator of charities – for the 5th time in a row! Why is that a big deal? Because only 9% of charities evaluated have received at least five consecutive 4-star ratings! The coveted 4-star rating means that Read More…

Events

Sep 21, 2018 12:00 am - 11:59 pm
Abilities Expo – Boston

For nearly 40 years, Abilities Expo has been the go-to source for the Community of people with disabilities, their families, seniors, veterans and healthcare professionals. Every event opens your eyes to new technologies, new possibilities, new solutions and new opportunities to change your life. Read More…

Sep 23, 2018 12:00 pm - 03:00 pm
Kansas City Family & Friends Ataxia Awareness Fundraiser & Picnic

We will be having a Silent Auction! There will be Food, Games, Caricature Artist, Massage Therapist, Raffle and a Bake Sale! Donations to support the National Ataxia Foundation will be gladly accepted. Visit the the event website to donate online or to join us in fundraising. “We may wobble but we will never fail!” Please Read More…

Sep 25, 2018 12:00 am - 11:59 pm
International Ataxia Awareness Day (IAAD)

A variety of events are held in conjunction with IAAD to raise awareness about ataxia and funds to help end ataxia. Those events have included picnics, galas, jeans days, parties, fitness gatherings, silent auctions, contests, challenges, raffles and more. Join other Ataxia Fighters by planning your IAAD activity today! Please let us know about the Read More…

Sep 25, 2018 04:00 pm - 09:00 pm
Kozy Nook IAAD Fundraiser

Join Us for Eat-In or Take Out! No certificate or flyer needed. Just mention you visit is to support Ataxia and The National Ataxia Foundation will receive 15% of your total purchase (Excluding Alcohol, Tax and Gratuity). The Kozy Nook Family restaurant is pleased to participate in the memory of Janey R Coyne. Read More…

Member Stories

DeCrescenzo Family
DeCrescenzo Family

“We had time to process the diagnosis and vowed not to let it change who we are or alter our daily lives. We found a neurologist who specializes in movement disorders and Ataxia. We also joined two support groups, one at Johns Hopkins Medical Center, and the other with the Chesapeake Chapter NAF. We met so many wonderful, inspiring people who were struggling with Ataxia but always stayed positive, which we admired. Our next step was to join the National Ataxia Foundation (NAF). We are so thankful we took that step. Our first encounter with NAF was attending the Annual Ataxia Conference (AAC) five years ago in San Antonio, TX. I must also admit that the first conference had a huge impact on our lives. It made us realize we are not alone and it gave us strength to move forward…. Since then, we have become advocates, started our own support group in Delaware, and organized many fundraisers for NAF.” Read More…


Lisa Cole and daughter
Lisa Cole

“I want to help the NAF and spread awareness about Ataxia. One way I could help support NAF and also bring about awareness was by having fundraisers. I have approximately 2 fundraisers per year. Introducing the NAF to my friends and acquaintances or by telling them to go directly to the website www.ataxia.org. In early 2013, I was on a treadmill for a stress test and almost fell. I blamed it on my knees. I went to an orthopedist, then to a neurologist. It was that neurologist that listened to me and sent me to Gainesville for a second opinion. I’m glad to get the correct diagnosis even though it is not a good one. I am starting a support group here on the east coast of Florida. I have ataxia, which won’t change, but I do want to help as many people that I can. The NAF is a great resource. I will definitely get as much information I can from the NAF. I want to help others plus it’s helping me.” Read More…


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