Our Mission

The National Ataxia Foundation is dedicated to improving the lives of persons affected by Ataxia through support, education, and research.

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NAF Members

Join the growing number of people that want to stay connected with the Ataxia community! Sign up today. It only takes a few moments. Our members receive:

  • News and research opportunities about their specific type of Ataxia as it becomes available.
  • Early access to free webinars
  • NAF’s eNewsletter and Generations publications. 

NEWS

NAF Blog Posts

Jean Gossip

You can call me Jean Gossip. I am 76 and was born in Aberdeen, Scotland. We moved, as a family (3 children), to Australia in Read More…

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Katie Norton-Bower

Recently, a bright young lady reached out to NAF’s Research Services Director, Sue Hagen, to ask for help with her school project. She wanted to Read More…

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Dirk Desserault

The Glass Half Full I have always tried to live my life seeing the glass as half full. Even being diagnosed with Friedreich’s Ataxia (FA) Read More…

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NAF Supports FARA’s Call to Action

Friedreich’s Ataxia Research Alliance (FARA) is encouraging Reata Pharmaceuticals to submit a New Drug Application (NDA) for Omaveloxolone, which recently completed a Phase III clinical Read More…

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Facebook Posts

Dirk tells us that he always sees the glass as half full, even after his diagnosis of Friedreich’s Ataxia. Learn about his journey with clinical trials to do his part in the fight against FA. ataxia.org/dirk-desserault/ ...
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Worried that this year's AAC won't be as fun? Worry no more! Networking, Raffles, Swag Bags, Photo Booths and Video Games will take center stage alongside conference sessions. Learn more: ataxia.org/2021-annual-ataxia-conference/ ...
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Join us and Dr. Vikram Shakkottai from University of Michigan Health System Ataxia Center at 2021 AAC to learn why research is the key to unmasking Ataxia. Learn more: ataxia.org/2021-annual-ataxia-conference/ ...
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Check out NORD’s upcoming webinar.New webinar: "Advancing Health Equity: A Community Conversation for Rare Disease Day” on Thursday, February 25 at 2:00pm ET. Register: bit.ly/2NbvHsB---------------------People with rare diseases often have limited access to diagnosis, treatment and care. The disparities can be even greater for people from underrepresented racial, ethnic or other minority groups. During this special Rare Disease Day event, the National Organization for Rare Disorders, Inc. (NORD) will bring together two patient organization leaders, a medical professional and a medical student to discuss current initiatives and possible approaches to advancing health equity. ...
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YouTube Channel

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Events

Feb 24, 2021 07:00 pm - 08:00 pm
VIRTUAL Johns Hopkins Ataxia Center Care Partners Support Group Meeting

7-8pm Eastern If you care or support someone living with Ataxia, then please consider joining the JHU Ataxia Center’s Care Partners Support group. If you are interested in participating, please contact Donna DeLeno- Neuworth, JHU Ataxia Center at ddeleno1@jhmi.edu for more information Read More…

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Feb 26, 2021 11:00 am - 05:00 pm
Abilities Expo – Los Angeles

Abilities Expo is about bringing necessary products and services together under one roof for the community of people with disabilities, their families, caregivers, seniors, and healthcare professionals. It’s about introducing opportunities that can enrich your life …especially ones that you never knew were out there. From more information visit www.abilitiesexpo.com. Read More…

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Feb 26, 2021 01:00 pm - 02:30 pm
VIRTUAL Western North Carolina Ataxia Support Group Meeting

Come join our next Western North Carolina Ataxia Support Group meeting at 1:00 pm EST. We hope to see you there! For access information contact Jodie Kawa at Phone #: 828-384-8414E | mail: jodiekawa@comporium.net Join our Facebook Group: https://www.facebook.com/groups/919905244740316/ Read More…

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Feb 26, 2021 01:00 pm - 02:00 pm
VIRTUAL Johns Hopkins Ataxia Center Support Group Meeting

1-2pm EST CLICK HERE to join the meeting on Friday at 12:55 p.m. For more information contact: Donna DeLeno Neuworth, Ataxia Center Health Educator Johns Hopkins University, Department of Neurology Ddeleno1@jhmi.edu Read More…

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