The National Ataxia Foundation is dedicated to improving the lives of persons affected by Ataxia through support, education, and research.
Check out some pics from Mike De Rosa and Ed Brand's grueling 26.2 mile hike through the desert to raise awareness about Ataxia and support NAF. 👏 Congrats to them both for completing the Joint Mission Bataan!
Donate: ataxia.org/supportjointmission/
All proceeds support NAF's fight to end Ataxia.
Mike De Rosa and Ed Brand completed their 26.2 mile march today! Their quest, the Joint Mission Bataan, is an operation to raise awareness about Ataxia and honor veterans. Both men have the disease themselves. Way to go guys! Thanks for your hard work!
Learn more and support their mission: ataxia.org/jointmissionbataan/
Attendees interaction with a representative from the National Ataxia Foundation.
Did You Know
Did You Know Mike De Rosa is gearing up to raise awareness and funds for Ataxia. He will be participating in the Bataan Death March on March 17th. Listen in as he explains to Dana Mauro the story behind this historic event and what drives him to participate in it for the second year in a row. #kNOwATAXIA #JMB #JMB1 #JMB2 #2019AAC
Visit ataxia.org/jointmissionbataan to learn more, join the mission, or contribute. Text “JMB” to 71777 to donate.
A newly formed Ataxia Support Group serving Western NY and the surrounding area will meet the 3rd Wednesday of the month! All are welcome. You need not have Ataxia to attend. If you have an agenda topic of interest, please contact jesse.diehl61@gmail.com He can also be reached by phone or text at 585-315-1578. Hope that we see Read More…
The National Ataxia Foundation and Western Region Conference Hosts invite you to be part of the largest Ataxia gathering in the world to learn, share, network, and have fun! We are excited to announce the title for this conference is “Ataxia: A Treatable Disease”. This theme will be woven throughout the conference sessions. Our goal Read More…
For nearly 40 years, Abilities Expo has been the go-to source for the Community of people with disabilities, their families, seniors, veterans and healthcare professionals. Every event opens your eyes to new technologies, new possibilities, new solutions and new opportunities to change your life. Read More…
We hope you can join us! For more information contact: David Henry Jr Phone #:817-739-2886 (contact by email preferred) Email: cheve11e@sbcglobal.net Facebook Group: https://www.facebook.com/Ataxiasupport Read More…
“We had time to process the diagnosis and vowed not to let it change who we are or alter our daily lives. We found a neurologist who specializes in movement disorders and Ataxia. We also joined two support groups, one at Johns Hopkins Medical Center, and the other with the Chesapeake Chapter NAF.” Read More…
“I want to help the NAF and spread awareness about Ataxia. One way I could help support NAF and also bring about awareness was by having fundraisers. I have approximately 2 fundraisers per year. Introducing the NAF to my friends and acquaintances or by telling them to go directly to the website www.ataxia.org.” Read More…
“Ataxia is the biggest challenge I have ever had to face in my life. About twenty three years ago I began to fall down in the dark. Then after experiencing symptom s of 6 other disorders over the next 20 years, and a seizure – like reaction to the composite collection of drugs I was taking, I wrecked my truck!” Read More…
“I’m Jonathan Zilles. I was diagnosed with Friedreich’s Ataxia when I was 11 years old. Life as a kid with
Friedreich’s was pretty normal, but I fell down a lot. My symptoms started early and included hand-eye coordination issues….” Read More…
