Our Mission

The National Ataxia Foundation is dedicated to improving the lives of persons affected by Ataxia through support, education, and research.

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NAF Members

Join the growing number of people that want to stay connected with the Ataxia community! Sign up today. It only takes a few moments. Our members receive:

  • News and research opportunities about their specific type of Ataxia as it becomes available.
  • Early access to free webinars
  • NAF’s eNewsletter and Generations publications. 

NEWS

NAF Blog Posts

Dirk Desserault

The Glass Half Full I have always tried to live my life seeing the glass as half full. Even being diagnosed with Friedreich’s Ataxia (FA) Read More…

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NAF Supports FARA’s Call to Action

Friedreich’s Ataxia Research Alliance (FARA) is encouraging Reata Pharmaceuticals to submit a New Drug Application (NDA) for Omaveloxolone, which recently completed a Phase III clinical Read More…

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Winter 2020 Support Group Recaps

Virtual support group meetings will continue on through the winter months. Read the latest support group meeting recaps here. Find an upcoming meeting to join Read More…

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Facebook Posts

The time to act is now - join us! FARA has prepared a letter that will be submitted to Reata Pharmaceuticals, Inc. and the U.S. Food and Drug Administration. They are encouraging Reata to submit a New Drug Application and the FDA to consider approval of the new treatment for FA. They are looking for supporters to sign the letter.Sign FARA's Letter: ataxia.org/naf-supports-faras-call-to-action/Read NAF's Letter of Support: bit.ly/3qjU2ug ...
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6 days ago

National Ataxia Foundation
Join the Johns Hopkins Ataxia Center for a webinar about the COVID-19 Vaccine and Ataxia. It will be presented by Arita McCoy, MSN, CRNP on Friday, January 22nd at 1:00 pm EST. There will also be a Q & A session. To join the webinar go to; ataxia.org/event/johns-hopkins-ataxia-center-webinar-covid-19-vaccine-and-ataxia/ ...
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We are happy to announce that we reached our goal of $300,000 for the Annual Ataxia Research Drive! We even surpassed it by more than $20,000! We continue to be amazed by the support of our community. You always rise to the challenge in the fight against Ataxia. Thank you! ...
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Join us in March for the 2021 Annual Ataxia Conference. Our Keynote speaker, Dr. Susan Perlman, will help us understand how a rare disease fits into the drug development "pipeline" model that pharmaceutical companies use to get a medication to market. Register at ataxia.org/2021-annual-ataxia-conference/ ...
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YouTube Channel

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Events

Jan 20, 2021 05:30 pm - 07:00 pm
VIRTUAL Western NY Ataxia Support Group Meeting

An Ataxia Support Group serving Western NY and the surrounding area will meet the 3rd Wednesday of the month at 5:30pm Eastern Time! All are welcome. You need not have Ataxia to attend. For meeting access information contact jesse.diehl61@gmail.com | 585-315-1578. Hope that we see you there! Read More…

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Jan 20, 2021 07:00 pm - 08:00 pm
VIRTUAL Ottawa Ataxia Support Group Meeting

We meet at 7pm Eastern every third Wednesday of the month. For meeting access information Join our Facebook Group: www.facebook.com/groups/1468963499991380/ For more information contact Susan Harding at susangmharding@gmail.com or Prentis Clairmont at Phone #: 613-864-8545| E-mail: prentis.clairmont@gmail.com Read More…

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Jan 22, 2021 01:00 pm - 02:00 pm
Johns Hopkins Ataxia Center Webinar: COVID-19 Vaccine and Ataxia

Please join us for a presentation COVID-19 Vaccine and Ataxia by Arita McCoy, M.S.N., C.R.N.P., JHU Ataxia Center, followed by a Q & A   1-2pm EST No Registration is required. CLICK HERE to join For more information contact: Donna DeLeno Neuworth, Ataxia Center Health Educator Johns Hopkins University, Department of Neurology Ddeleno1@jhmi.edu Read More…

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Jan 22, 2021 03:00 pm - 07:30 pm
VIRTUAL Global Ataxia Support Group Meeting

Meetings are at 3PM and 6PM EST Click here to register For more information contact Mark Desa at 416-418-2475 or mark@hopeforataxia.org. Read More…

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