The National Ataxia Foundation is dedicated to improving the lives of persons affected by Ataxia through support, education, and research.
Video of our first webinar, "Dietary Considerations for Ataxia," featuring Dr. Susan Perlman and Amanda Gallagher, MA, CCC-SLP, is now available: www.youtube.com/watch?v=HSyTtMuxn5Y
Dietary Considerations in Ataxia Webinar
This webinar, featuring Dr. Susan Perlman and Amanda Gallagher, MA, CCC-SLP, gave helpful tips for healthy food choices and info about specific types of Atax...Attention Ataxia Advocates: Registration is now open for #RareAcrossAmerica! Learn more and register: bit.ly/305v85w
This breaking news was discussed by researchers at the 1st SCA Global Conference in March that was sponsored by NAF. "Researchers said the finding will have direct and immediate implications for patients and families with ataxia worldwide."
Researchers identify genetic defect which is common cause of late-onset ataxia
Researchers have identified a genetic defect as a common cause of late-onset ataxia meaning many patients can receive a definite diagnosis and treatment can be improved.Sign-In: 8:00 am – 9:45 am Tee Time: 10:00 am Read More…
Join us for a StormChasers baseball game! Admission and dinner provided. For more information contact Linda Snider at:402-212-3060 or lindasnider@cox.net Hope you can join us! Read More…
“We had time to process the diagnosis and vowed not to let it change who we are or alter our daily lives. We found a neurologist who specializes in movement disorders and Ataxia. We also joined two support groups, one at Johns Hopkins Medical Center, and the other with the Chesapeake Chapter NAF.” Read More…
“I want to help the NAF and spread awareness about Ataxia. One way I could help support NAF and also bring about awareness was by having fundraisers. I have approximately 2 fundraisers per year. Introducing the NAF to my friends and acquaintances or by telling them to go directly to the website www.ataxia.org.” Read More…
“Ataxia is the biggest challenge I have ever had to face in my life. About twenty three years ago I began to fall down in the dark. Then after experiencing symptom s of 6 other disorders over the next 20 years, and a seizure – like reaction to the composite collection of drugs I was taking, I wrecked my truck!” Read More…
“I’m Jonathan Zilles. I was diagnosed with Friedreich’s Ataxia when I was 11 years old. Life as a kid with
Friedreich’s was pretty normal, but I fell down a lot. My symptoms started early and included hand-eye coordination issues….” Read More…
Community support is vital to the work that NAF does. Our generous donors help us fund promising Ataxia research and offer support services to people with Ataxia. Your gift today will help us continue to deliver on our mission to improve the lives of persons affected by ataxia.
Join for FREE today! Become a part of the community that is working together to find a cure. As a member you will receive access to the latest ataxia news with our e-newsletter and Generations publication.
