The National Ataxia Foundation is dedicated to improving the lives of persons affected by Ataxia through support, education, and research.
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Guest Author: Jay Armstrong, NAF Support Group Leader At my 7 year olds son’s first baseball practice the coach asked if a parent would be Read More…
Author: Mary Ann Peterson, NAF Research Associate Many feel powerless when they are first diagnosed with Ataxia. Brain donation gives the donor and family the Read More…
As the summer gets going, many of our Support Groups have been meeting virtually to stay connected. Check our events calendar for upcoming virtual meetings. Below Read More…
Author: Joel Sutherland, Development Director Mark your calendar for Saturday, October 3rd beginning at 1:00pm EDT for the 2020 National Ataxia Foundation Virtual Walk N’ Roll. Read More…
NAF and FARA held our second Hill Day on Thursday, September 10, 2020! The event raised awareness about Ataxia and supported legislation that directly impacts our Read More…
Author: Lori Shogren, Community Program and Services Director A Note About the 2021 Annual Ataxia Conference We know how valuable it is for those living Read More…
Today is the last day to submit your comments for The Voice of the Patient report that will be prepared by NAF and presented to the FDA. If you or a loved one have a Polyglutamine SCA (SCA 1,2,3,6,7,8,17, or DRPLA), we encourage you to submit your feedback before the end of the day.
Join us for our next Ataxia webinar on the 4th of November at 4:00 pm CDT. Our topic is occupational therapy strategies to increase access and independence with performing activities of daily living within the home and community. Register here, register.gotowebinar.com/register/9137320268994548238
There is one week left for written comments to be accepted for The Voice of the Patient Report. If you are a loved one have a Polyglutamine SCA (SCA 1,2,3,6,7,8,17, or DRPLA) we encourage you to submit your feedback. Head to the website to submit your comments or watch a recording of the full meeting.
Time: Oct 25, 2020 04:00 PM Central Time (US and Canada) Join Zoom Meeting https://us02web.zoom.us/j/82701220271 Meeting ID: 827 0122 0271 One tap mobile +13126266799,,82701220271# US (Chicago) +19292056099,,82701220271# US (New York) For more information contact Becky Donnelly at 205-987-2883 or donnelly6132b@aol.com Join Our Facebook Group! Read More…
Come join our next Western North Carolina Ataxia Support Group meeting at 1:00 pm EST. We hope to see you there! For access information contact Jodie Kawa at Phone #: 828-384-8414E | mail: jodiekawa@comporium.net Join our Facebook Group: https://www.facebook.com/groups/919905244740316/ Read More…
Join us for our virtual meeting! For the Zoom meeting access information contact Julia Pantoga at Phone #: 414-899-5195 | E-mail: sharpturninstitute@gmail.com Read More…
Meetings are at 3PM and 6PM EST Click here to register For more information contact Mark Desa at 416-418-2475 or mark@hopeforataxia.org. Read More…
Community support is vital to the work that NAF does. Our generous donors help us fund promising Ataxia research and offer support services to people with Ataxia. Your gift today will help us continue to deliver on our mission to improve the lives of persons affected by Ataxia.
Join for FREE today! Become a part of the community that is working together to find a cure. As a member you will receive access to the latest Ataxia news with our e-newsletter and Generations publication.
