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Cameryn’s story is a powerful reminder of why we can’t wait for progress in Ataxia treatment development. While Ataxia affects each person differently, every voice matters in the fight for treatments and a cure. Watch her story, then share your own on social media with #KnowAtaxia to raise awareness and bring us closer—together—to a world without Ataxia.
Share your story about living with Ataxia. For Cameryn. For everyone still fighting. Every voice brings us closer to a cure!
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People with Ataxia who rely on Medicaid coverage may be impacted by new Medicaid community engagement requirements and may be required to provide proof of Read More…
For many families affected by Ataxia, becoming a caregiver isn’t something that happens all at once. It happens gradually through driving to more appointments, helping Read More…
When Mark Minkin signed up for Xtreme Hike, he wasn’t just taking on a mountain. He was taking on a challenge that would honor his Read More…
Enhancing Community Through Professional Support For decades, NAF Support Groups have provided a welcoming place for people living with Ataxia, caregivers, family members, and loved Read More…
It all started with a change in my speech. I honestly thought I may have suffered a stroke whilst sleeping or something because it suddenly Read More…
I was diagnosed with SCA1 in 2010, five years ago I had to stop work due to it becoming too hazardous, I lost my ability Read More…
Hi, I’m Rochelle I am 60 years old mother of three adult children and grandmother to 3. All of my life even as a teenager Read More…
My story started about four years ago. It has been a long road. Finally on the 13th of August 25 I was diagnosed with Ataxia Read More…
EASTERN TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is Read More…
Join us for the 2026 Central Ohio Walk n’ Roll to Cure Ataxia! October 24, 2026 9:00 am – 11:00 am Westerville Community Center 350 N. Cleveland Ave. Westerville, OH 43082 Read More…
PACIFIC TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is Read More…
MOUNTAIN TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is Read More…
