The National Ataxia Foundation is dedicated to improving the lives of persons affected by Ataxia through support, education, and research.
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Author: Lori Shogren, Community Program and Services Director NAF partnered with FARA and the EveryLife Foundation for Rare Diseases to bring International Ataxia Awareness Day to Capitol Hill. United Against Ataxia Hill Day Read More…
Author: NAF Support Group Leaders St. Louis Ataxia Support Group Recognized on CBS News for IAAD The St Louis Ataxia Support Group and CBS Channel Read More…
Photo: Andrew Rosen (right) presents a Certificate of Appreciation at the Orange County Walk N’ Roll to Cure Ataxia Author: Andrew Rosen, Executive Director The Read More…
Author: Lori Shogren, Community Program and Services Director An IAAD Like No Other September 25th is International Ataxia awareness Day (IAAD). Over the last 20 years IAAD has grown from Read More…
Author: Joel Sutherland, Development Director Many people believe there is NOTHING they do to raise funds and teach more people about Ataxia. Wrong! Not only Read More…
Author: Sue Hagen, Patient and Research Services Director A Community Mobilized Toward Treatments One of the goals of a disease-specific patient organization is to provide Read More…
American Academy of Neurology (AAN) featured an article about Ataxia in their last issue of Brain & Life. Check it out!
New Research Gives Hope to Patients with Inherited Ataxias
www.brainandlife.org
Inherited ataxias are rare genetic conditions that cause problems with walking and coordination. Ongoing research may yield a cure or disease-modifying treatments.Our Board Members were in town this week. They were hard at work to plan out priorities in the coming years so that NAF can continue to accelerate the development of Ataxia treatments and support individuals and families affected by Ataxia. We’re excited for the progress being made with research and clinical trials. We look forward to working with the Ataxia community to keep the momentum going!
Introducing a 2019 Annual Ataxia Conference Sponsor: Ionis Pharmaceuticals. Their drug development pipeline includes therapies for many different neurological diseases. Thanks for your support Ionis!
Home | Ionis Pharmaceuticals, Inc.
www.ionispharma.com
As the leader in RNA-targeted therapeutics, our antisense technology treats illnesses where no other therapeutic approaches have proven effective or ever existed.Exciting news from Reata Pharmaceuticals, Inc. for patients with Friedreich's Ataxia! This could be the first approved drug to treat FA. The next step is seeking FDA approval to get the medication to market. 🤞😃 Thank you Reata and participants in the clinical trial!
www.reatapharma.com
ACHIEVED PRIMARY ENDPOINT OF STATISTICALLY SIGNIFICANT IMPROVEMENT IN MFARS COMPARED TO PLACEBO AFTER 48 WEEKS OF TREATMENT CONFERENCE CALL WITH MANAGEMENT SCHEDULED FOR OCTOBER 15, 2019 , AT 8:00 AM ET IRVING, Texas , Oct. 14, 2019 (GLOBE NEWSWIRE) -- Reata Pharmaceuticals, Inc.As technology in rare disease accelerates, and with topics like drug pricing being a top priority in government, we must act now to drive innovation and collaboration to develop stronger resources, better outcomes and find cures for the community. In 2019, we believe The Time is Now to prioritize action in making positive changes for Read More…
For nearly 40 years, Abilities Expo has been the go-to source for the Community of people with disabilities, their families, seniors, veterans and healthcare professionals. Every event opens your eyes to new technologies, new possibilities, new solutions and new opportunities to change your life. Read More…
Foster 7th Day Adventist Church is right off Highway 40, so it is easy to get to. Please bring a covered dish and we will have lunch, listen to a speaker, and have confidential group time. For more information or questions contact: Jodie Kawa at jodiekawa@comporium.net or (828)384-8414 or Maggie Dentremont at (828)777-7411 Read More…
RNE’s mission is to bring together New England patients, families and providers touched by rare and complex disorders. We offer educational opportunities, create awareness of available resources, and build foundations for support to improve patient quality of life. There will be a wide range of speakers covering topics such as a review of diagnostic tools Read More…
Community support is vital to the work that NAF does. Our generous donors help us fund promising Ataxia research and offer support services to people with Ataxia. Your gift today will help us continue to deliver on our mission to improve the lives of persons affected by Ataxia.
Join for FREE today! Become a part of the community that is working together to find a cure. As a member you will receive access to the latest Ataxia news with our e-newsletter and Generations publication.
