Dirk Desserault
January 20, 2021
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The Glass Half Full I have always tried to live my life seeing the glass as half full. Even being diagnosed with Friedreich’s Ataxia (FA) Read More…
The National Ataxia Foundation is dedicated to improving the lives of persons affected by Ataxia through support, education, and research.
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The Glass Half Full I have always tried to live my life seeing the glass as half full. Even being diagnosed with Friedreich’s Ataxia (FA) Read More…
Friedreich’s Ataxia Research Alliance (FARA) is encouraging Reata Pharmaceuticals to submit a New Drug Application (NDA) for Omaveloxolone, which recently completed a Phase III clinical Read More…
Below are lay summaries submitted for research completed in fiscal year 2019. Each study received a grant from NAF to support their research. To check Read More…
Submitted by Shannon Dunphy Lazo Happy Holidays, everyone! We’re glad you were able to join us on Saturday. As people arrived, they were greeted, Read More…
Virtual support group meetings will continue on through the winter months. Read the latest support group meeting recaps here. Find an upcoming meeting to join Read More…
Ataxia support groups continued to meet virtually during the pandemic. Find upcoming support group meetings at www.ataxia.org/events. Feel free to join a group outside of your Read More…
An Ataxia Support Group serving Western NY and the surrounding area will meet the 3rd Wednesday of the month at 5:30pm Eastern Time! All are welcome. You need not have Ataxia to attend. For meeting access information contact jesse.diehl61@gmail.com | 585-315-1578. Hope that we see you there! Read More…
We meet at 7pm Eastern every third Wednesday of the month. For meeting access information Join our Facebook Group: www.facebook.com/groups/1468963499991380/ For more information contact Susan Harding at susangmharding@gmail.com or Prentis Clairmont at Phone #: 613-864-8545| E-mail: prentis.clairmont@gmail.com Read More…
Please join us for a presentation COVID-19 Vaccine and Ataxia by Arita McCoy, M.S.N., C.R.N.P., JHU Ataxia Center, followed by a Q & A 1-2pm EST No Registration is required. CLICK HERE to join For more information contact: Donna DeLeno Neuworth, Ataxia Center Health Educator Johns Hopkins University, Department of Neurology Ddeleno1@jhmi.edu Read More…
Meetings are at 3PM and 6PM EST Click here to register For more information contact Mark Desa at 416-418-2475 or mark@hopeforataxia.org. Read More…
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