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The Ataxia Community Comes Together in Orlando April 9–11, 2026 for the Annual Ataxia Conference! LEARN MORE

Our Vision:

A World Without Ataxia.

Ensuring no one experiences Ataxia alone, until no one experiences Ataxia, period.

Our Mission

To accelerate the development of treatments and a cure while working to improve the lives of those living with Ataxia.

Share Your Story. Strengthen Our Voice.

Cameryn’s story is a powerful reminder of why we can’t wait for progress in Ataxia treatment development. While Ataxia affects each person differently, every voice matters in the fight for treatments and a cure. Watch her story, then share your own on social media with #KnowAtaxia to raise awareness and bring us closer—together—to a world without Ataxia.

Share your story about living with Ataxia. For Cameryn. For everyone still fighting. Every voice brings us closer to a cure!

Become a Member of NAF for FREE!

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Join the growing number of people that want to stay connected with the Ataxia community! Sign up today. It only takes a few moments. Our members receive:

  • News and research opportunities about their specific type of Ataxia as it becomes available.
  • Early access to free webinars
  • NAF’s eNewsletter and Generations publications. 

NAF Blog

Recent Articles

University of Florida Brain Bank

Location Gainesville, FL USA  Website www.neurogenetics.med.ufl.edu/patients/brain-donation-program/ Phone Number (352) 273-5189  Email dgmorrison@ufl.edu  Geographic Restrictions Continental USA   Other Restrictions Donations are restricted to forms of Ataxia characterized Read More…

Recent Member Stories

Keith Heiken

I am 62 years young. I was diagnosed with SCA8 when I was 24. Dr. Byrd took a skin sample to help with other types Read More…

Sarah Altis

It started about 12 years ago. My dad was diagnosed with Ataxia. I wasn’t really sure what that meant, but I spent the next several Read More…

Bella

I’m Bella and from China, thanks to this platform so I could share my story here. My diagnosis was very easy, not that complicating. I Read More…

Michal

Hello Everyone, I’m a pharmacist and have been living for half a century. I learned about my wife’s Ataxia in October of this year. I Read More…

What Is Ataxia?

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EVENTS

Feb 20, 2026 03:00 pm - 05:00 pm
Global (Hope for Ataxia) Support Group Meeting- 1st Session

Global (Hope for Ataxia) Support Group Meeting- 1st Session EASTERN TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. Read More…

Feb 20, 2026 06:00 pm - 08:00 pm
Global Support Group (Hope for Ataxia) – 2nd Session

Global Support Group (Hope for Ataxia) – 2nd Session EASTERN TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. Read More…

Feb 21, 2026 10:00 am - 11:30 am
Ataxia Connection Support Group Meeting

CENTRAL TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is Read More…

Feb 21, 2026 10:00 am - 12:00 pm
Twin Cities Support Group Meeting

CENTRAL TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is Read More…

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