The National Ataxia Foundation is dedicated to improving the lives of persons affected by Ataxia through support, education, and research.
The Clementz Foundation issued a match donation challenge and pledged $50,000. Act now to have your donation DOUBLED and help us earn the pledge! Read More…
We’re excited to announce that NAF has received the top rating by Charity Navigator – the largest independent evaluator of charities – for the 5th time in a row! Why is that a big deal? Because only 9% of charities evaluated have received at least five consecutive 4-star ratings! The coveted 4-star rating means that Read More…
For more information contact Jonas Cepkauskas 708-381-5555 E-mail: jonas@chitownataxia.org Read More…
Please joing us for our next support group meeting where Dr. Durate Machado, neurologist and Medical Director at the Chase Family Movement Disordes Center will be in attendence speaking about clinical trials and medications. For more information contact Susan Masse at smassee1875@gmail.com Read More…
Join us for our next support group meeting July 21st at Penn State Hershey Medical Group, 30 Hope Drive, Entrancea, Room 1710A. The topic will be “Genetice Counseling/Testing for Hereditary Ataxia Syndromes” Our guest speaker will be Melissa Yelton, MGC, LCGC, Licensed Genetic Counselor, Penn State Health Hershey Medical Center, Pediatric Neurology and Maternal Fetal Read More…
For more information contact Darlene Harris 813-431-2859 E-mail: Msdee004@gmail.com Read More…
“We had time to process the diagnosis and vowed not to let it change who we are or alter our daily lives. We found a neurologist who specializes in movement disorders and Ataxia. We also joined two support groups, one at Johns Hopkins Medical Center, and the other with the Chesapeake Chapter NAF. We met so many wonderful, inspiring people who were struggling with Ataxia but always stayed positive, which we admired. Our next step was to join the National Ataxia Foundation (NAF). We are so thankful we took that step. Our first encounter with NAF was attending the Annual Ataxia Conference (AAC) five years ago in San Antonio, TX. I must also admit that the first conference had a huge impact on our lives. It made us realize we are not alone and it gave us strength to move forward…. Since then, we have become advocates, started our own support group in Delaware, and organized many fundraisers for NAF.” Read More…
“I want to help the NAF and spread awareness about Ataxia. One way I could help support NAF and also bring about awareness was by having fundraisers. I have approximately 2 fundraisers per year. Introducing the NAF to my friends and acquaintances or by telling them to go directly to the website www.ataxia.org. In early 2013, I was on a treadmill for a stress test and almost fell. I blamed it on my knees. I went to an orthopedist, then to a neurologist. It was that neurologist that listened to me and sent me to Gainesville for a second opinion. I’m glad to get the correct diagnosis even though it is not a good one. I am starting a support group here on the east coast of Florida. I have ataxia, which won’t change, but I do want to help as many people that I can. The NAF is a great resource. I will definitely get as much information I can from the NAF. I want to help others plus it’s helping me.” Read More…
