ACE applications are now open through October 15. Join a national network committed to providing high-quality, comprehensive Ataxia care. Apply Now!
Cameryn’s story is a powerful reminder of why we can’t wait for progress in Ataxia treatment development. While Ataxia affects each person differently, every voice matters in the fight for treatments and a cure. Watch her story, then share your own on social media with #KnowAtaxia to raise awareness and bring us closer—together—to a world without Ataxia.
Share your story about living with Ataxia. For Cameryn. For everyone still fighting. Every voice brings us closer to a cure!
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When Mark Minkin signed up for Xtreme Hike, he wasn’t just taking on a mountain. He was taking on a challenge that would honor his Read More…
Enhancing Community Through Professional Support For decades, NAF Support Groups have provided a welcoming place for people living with Ataxia, caregivers, family members, and loved Read More…
Guest Author: Pinalben “Pinky” Patel My vision has never been 20/20. Okay, maybe it was up until my preteen years. This disease I have affects Read More…
Good Laboratory Practices (GLPs) are standards for nonclinical research studies. These standards must be met before the research data can be accepted and reviewed by a regulatory agency. A nonclinical study involves experiments to determine the safety of a product. But not in people! Read More…
As a child I experienced hypnogogic states REM dysfunction and night terrors. As I go older I developed sleep attacks and falling. I went to a sleep specialist and was diagnosed w Read More…
I am Lucas Marins, Brazilian, 31 years old. My grandfather died with ataxia SCA3, my aunt is completely paralyzed already, my mother is 64 years Read More…
Saga of a CHAIR Prajakta Samant and Amit Patil When we hear a word “chair”, the first thing that comes to an Indian’s mind is electoral seat in politics. But don’t worry—I’m not going there today. To hell with politics. I’m here to talk Read More…
My Mother was diagnosed with a type of ataxia 20 years ago, no one knew what exactly she had. 10 years ago, I started researching Read More…
EASTERN TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is Read More…
EASTERN TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is Read More…
EASTERN TIME Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led Read More…
CENTRAL TIME ZONE Digital biomarkers are an emerging tool that could transform how researchers measure Ataxia symptoms and evaluate potential treatments. Join our experts to learn what digital biomarkers are, Read More…
