Our Mission

The National Ataxia Foundation is dedicated to improving the lives of persons affected by Ataxia through support, education, and research.

NEWS

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We still have some spots available for the webinar that is today at 12pm CDT. You'll hear from Kristin Barañano, MD, PhD and Eric Chin, MD about Diagnosis and Management of Pediatric Ataxia.
Register now: attendee.gotowebinar.com/register/9005220533622654219
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Our Community Programs and Services Director, Lori Shogren, attended the Rare on the Road Leadership Tour in Sioux Falls, SD last weekend. Great rare disease advocacy info from Global Genes, EveryLife Foundation for Rare Diseases, and Rare Disease Legislative Advocates! ...

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Uh-oh. Time is almost up. A little more than 24 hours to go for our Summer Match Challenge. The Michael and Patricia Clementz-Peterson Family Fund will DOUBLE your donation. You can help us reach the $100,000 goal! Which will mean $200,000 raised that will directly impact the Ataxia community.
Donate right now using the "Donate" button on this post - or online at bit.ly/2019SummerMatch
Thanks everyone for your support! We couldn't do our work without you!
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Events

Jul 26, 2019 01:00 pm - 03:00 pm
Western North Carolina Ataxia Support Group Meeting

Foster 7th Day Adventist Church is right off Highway 40, so it is easy to get to. Please bring a covered dish and we will have lunch, listen to a speaker, and have confidential group time. For more information or questions contact: Jodie Kawa at jodiekawa@comporium.net or (828)384-8414 or Maggie Dentremont at (828)777-7411 Read More…

Jul 27, 2019 11:00 am - 01:00 pm
Central PA Ataxia Support Group Meeting & Picnic

Join us for a meeting & Picnic! Entrance A, Room 1710 of the Penn State Hershey Medical Center. Following the meeting is a family picnic at the Leader Farm, 26 Shetland Dr., Hummelstown, PA 17036-9238. The Leaders are providing the hamburgers, hot dogs and drinks. You will just have to bring a salad, side dish Read More…

Jul 27, 2019 01:30 pm - 04:00 pm
Florida Ataxia Support Groups Meeting

Join us for the All Florida Ataxia Support Groups Meeting in Orlando! Nantesha Chen, DPT, PT – Doctor of physical therapy will be our speaker on improving mobility through home exercise For more information contact: Darlene Harris 813-431-2859 msdee004@yahoo.com, Jose de Castro Fernandez 954-864-1436 or  josefernandezdecastro@ymail.com, Lisa Cole  772-370-3041 or lisacoleataxia@gmail.com Dennis Hill 407-399-8332 or Read More…

Aug 02, 2019 12:00 am - 11:59 pm
Abilities Expo – Houston

For nearly 40 years, Abilities Expo has been the go-to source for the Community of people with disabilities, their families, seniors, veterans and healthcare professionals. Every event opens your eyes to new technologies, new possibilities, new solutions and new opportunities to change your life. Read More…

Member Stories

DeCrescenzo Family
DeCrescenzo Family

“We had time to process the diagnosis and vowed not to let it change who we are or alter our daily lives. We found a neurologist who specializes in movement disorders and Ataxia. We also joined two support groups, one at Johns Hopkins Medical Center, and the other with the Chesapeake Chapter NAF.” Read More…

Lisa Cole and daughter
Lisa Cole

“I want to help the NAF and spread awareness about Ataxia. One way I could help support NAF and also bring about awareness was by having fundraisers. I have approximately 2 fundraisers per year. Introducing the NAF to my friends and acquaintances or by telling them to go directly to the website www.ataxia.org.” Read More…

Ed Schwartz
Ed Schwartz

“Ataxia is the biggest challenge I have ever had to face in my life. About twenty three years ago I began to fall down in the dark. Then after experiencing symptom s of 6 other disorders over the next 20 years, and a seizure – like reaction to the composite collection of drugs I was taking, I wrecked my truck!” Read More…

Jonathan Zilles
Jonathan Zilles

“I’m Jonathan Zilles. I was diagnosed with Friedreich’s Ataxia when I was 11 years old. Life as a kid with
Friedreich’s was pretty normal, but I fell down a lot. My symptoms started early and included hand-eye coordination issues….” Read More…