The National Ataxia Foundation is dedicated to improving the lives of persons affected by Ataxia through support, education, and research.
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We’re excited to announce that NAF will award $940,000 in Ataxia research grants this year! NAF’s Board of Directors approved funding for 25 Ataxia research grants in Read More…
NAF staff will be working remotely until further notice, doing our small part in slowing the spread of the COVID-19 virus. What this means is Read More…
The coronavirus (COVID-19) pandemic is affecting communities worldwide. The health and safety of the Ataxia community is a priority at NAF. We have consulted with our Medical Read More…
Author: Andrew Rosen, Executive Director Hello Ataxia Community: As I sit at my desk on this Friday afternoon, I am amazed that it was less Read More…
We regrettably announce that the 2020 Annual Ataxia Conference has been cancelled due to evolving concerns over the fast moving situation with coronavirus COVID-19. We Read More…
Last year, Mike De Rosa Sr. and Ed Brand started the Joint Mission Bataan to Cure Ataxia (JMB). They marched more than 26 miles through the desert to Read More…
Several of our Support Group Leaders are arranging virtual meetings! Rhode Island and Treasure Coast got together over the weekend. Check our events calendar for up-to-date listing of other virtual meetings: ataxia.org/events/
Hope to see you online! 😁 💻
Webinar hosted by NORD tomorrow! Register for free: bit.ly/2JaH8LI
When your boss is surprised that nobody had technical difficulties joining their first virtual meeting...😂
(PS. NAF offices are working remote. Learn more: bit.ly/2UlHynO)
Dr. Jeremy Schmahmann offered up the keynote address he had planned for the Annual Ataxia Conference by webinar. Check out what he has to say about the patient role in drug and therapy development.
Mark Desa is hosting two Ataxia Support Group Teleconferences every Friday for the next 7 weeks (or more depending on how long these closures last). Click one of the links below to register. Friday at 3PM EST (7pm in UK, 6am Saturday in Sydney, AU) – www.hopeforataxia.org/3pm Friday at 6PM EST (10pm in UK, 9am Saturday Read More…
This event was cancelled due to NAF’s coronavirus precaution recommendations. We hope you can join us! Our group meets on the second Saturday of each month at the Texas Health Presbyterian Hospital Dallas (Lower Level of the Perot Building in the Meadows Labs B & C) Parking Information: Parking lot #11 – BOTTOM (two levels Read More…
This event was cancelled due to NAF’s coronavirus precaution recommendations. We meet at 11:00-12:30 on the 2nd Saturday of every month at the Center for Advanced Medicine, Conference Rm 1 on the 3rd floor. For more information or to be added to the mailing list for this group please contact: Shannon Dunphy Lazo at 202-306-2738 Read More…
This event was scheduled as a virtual meeting due to NAF’s coronavirus precaution recommendations. Join the online meeting: https://join.freeconferencecall.com/lisacoleataxia We encourage you to login in 15 minutes early to allow time to complete the steps to join to the meeting. For more information contact Lisa Cole at 772-370-3041 or lisacoleataxia@gmail.com Join our Facebook Group! Read More…
Community support is vital to the work that NAF does. Our generous donors help us fund promising Ataxia research and offer support services to people with Ataxia. Your gift today will help us continue to deliver on our mission to improve the lives of persons affected by Ataxia.
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