The National Ataxia Foundation is dedicated to improving the lives of persons affected by Ataxia through support, education, and research.
This Ataxia Advocacy panel spoke at #2019AAC to discuss global efforts to make a difference for individuals affected by Ataxia. Learn more: ataxia.org/advocacy
Mike De Rosa, a military veteran from the Special Forces (Green Berets), and Ed Brand, an advocate for ataxia awareness, share a common goal: fight for a cure for ataxia. Both men have ataxia. They marched 26.2 miles through the desert in New Mexico to honor veterans and raise money to support NAF. Watch to learn about their story and their journey.
Donate to Support their Mission: app.mobilecause.com/form/8CRuEQ?vid=401i
Learn More About NAF:
www.ataxia.org
NAF Support Group Leader Doug Place is in the Chopps Champions contest for his work in the community. Vote for him to help him win $2000 for NAF! Go to the Community section and vote for "Doug P." a.pgtb.me/HQbVz2 Thanks for your help! 😃👍
a.pgtb.me
For more information contact Susan Masse: Phone #: 860-528-1875 or E-mail: Smasse1875@gmail.com Read More…
Stop by the NAF Awareness booth at the SoCo Socials 2nd Annual Event. More information found here! Read More…
We hope to see you there! For more information contact: Lenore Healey Schultz at 612-724-3784 or schultz.lenore@yahoo.com Maryann Sweeney at 612-924-4947 or maryann.sween@gmail.com Read More…
Please join us at the Millard Branch Public Library where our speaker will be from Mobilis Medical talking about durable medical equipment. For more information contact Linda Snider at:402-212-3060 or lindasnider@cox.net Hope to see you there! Read More…
“We had time to process the diagnosis and vowed not to let it change who we are or alter our daily lives. We found a neurologist who specializes in movement disorders and Ataxia. We also joined two support groups, one at Johns Hopkins Medical Center, and the other with the Chesapeake Chapter NAF.” Read More…
“I want to help the NAF and spread awareness about Ataxia. One way I could help support NAF and also bring about awareness was by having fundraisers. I have approximately 2 fundraisers per year. Introducing the NAF to my friends and acquaintances or by telling them to go directly to the website www.ataxia.org.” Read More…
“Ataxia is the biggest challenge I have ever had to face in my life. About twenty three years ago I began to fall down in the dark. Then after experiencing symptom s of 6 other disorders over the next 20 years, and a seizure – like reaction to the composite collection of drugs I was taking, I wrecked my truck!” Read More…
“I’m Jonathan Zilles. I was diagnosed with Friedreich’s Ataxia when I was 11 years old. Life as a kid with
Friedreich’s was pretty normal, but I fell down a lot. My symptoms started early and included hand-eye coordination issues….” Read More…
