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NEWS

Posted on May 31, 2018
Donations DOUBLED for a Limited Time!

The Clementz Foundation issued a match donation challenge and pledged $50,000. Act now to have your donation DOUBLED and help us earn the pledge! Read More…

Posted on April 12, 2018
NAF Rated 4-Stars by Charity Navigator for 5th Time in a Row

We’re excited to announce that NAF has received the top rating by Charity Navigator – the largest independent evaluator of charities – for the 5th time in a row! Why is that a big deal? Because only 9% of charities evaluated have received at least five consecutive 4-star ratings! The coveted 4-star rating means that Read More…

Events

Jun 17, 2018 02:00 pm - 04:00 pm
Cincinnati Area Support Group Meeting

We meet the third Sunday of each month at 2:00 p.m.  Even numbered months will be support only meetings and odd numbered months will be programmed.  Each meeting will include introductions and a show and tell time.  All meetings are confidential, except for agendas and presenter materials. We will meet at the offices of Sharp Read More…

Jun 22, 2018 11:00 am - 12:00 pm

Dr. Duarte Machado who is a neurologist and Medical Director at the Chase Family Movement Disorder Center will be attending and speaking about trials and medications. For more information please contact Susan Masse Phone #: 860-528-1875 E-mail: Smasse1875@gmail.com Read More…

Jun 22, 2018 11:00 am - 12:00 pm
Connecticut Ataxia Support Group Meeting

Dr. Durate Machado, neurologist and Medical Director at the Chase Family Movement Disordes Center will be in attendence speaking about clinical trials and medications. For more information contact Susan Masse at smassee1875@gmail.com  Read More…

Jun 23, 2018 09:00 am - 12:00 pm
Western North Carolina Walk n’ Roll to Cure Ataxia

Come and learn about ataxia while having fun raising funds for NAF. The event is up to a 1 mile Walk or Roll around the track. To volunteer or for more information please contact Jodie Kawa (828) 384-8414 or jodiekawa@comporium.net No Registration Fee – Donations Gladly Accepted All proceeds benefit the National Ataxia Foundation (NAF). Read More…

Member Stories

Ed Schwartz
Ed Schwartz

“My name is Ed Schwartz. I’m co – chairman of “The Western Pennsylvania Ataxia Support Group of the National Ataxia Foundation (NAF).
…” Read More…


Jonathan Zilles
Jonathan Zilles

“I’m Jonathan Zilles. I was diagnosed with Friedreich’s Ataxia when I was 11 years old. Life as a kid with
Friedreich’s was pretty normal, but I fell down a lot. My symptoms started early and included hand-eye coordination issues….” Read More…


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