Our Mission

The National Ataxia Foundation is dedicated to improving the lives of persons affected by Ataxia through support, education, and research.

Become a Member of NAF for FREE!

NAF Members

Join the growing number of people that want to stay connected with the Ataxia community! Sign up today. It only takes a few moments. Our members receive:

  • News and research opportunities about their specific type of Ataxia as it becomes available.
  • Early access to free webinars
  • NAF’s eNewsletter and Generations publications. 


NAF Blog Posts

United Against Ataxia

Author: Lori Shogren, Community Program and Services Director  An IAAD Like No Other September 25th is International Ataxia awareness Day (IAAD). Over the last 20 years IAAD has grown from Read More…

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The Poker Walk

Author: Joel Sutherland, Development Director Many people believe there is NOTHING they do to raise funds and teach more people about Ataxia.  Wrong! Not only Read More…

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Facebook Posts

Our Board Members were in town this week. They were hard at work to plan out priorities in the coming years so that NAF can continue to accelerate the development of Ataxia treatments and support individuals and families affected by Ataxia. We’re excited for the progress being made with research and clinical trials. We look forward to working with the Ataxia community to keep the momentum going! ...

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Oct 21, 2019 12:00 am - 11:59 pm
NORD Rare Disease Summit

As technology in rare disease accelerates, and with topics like drug pricing being a top priority in government, we must act now to drive innovation and collaboration to develop stronger resources, better outcomes and find cures for the community. In 2019, we believe The Time is Now to prioritize action in making positive changes for Read More…

Oct 25, 2019 12:00 am - 11:59 pm
Abilities Expo – San Mateo

For nearly 40 years, Abilities Expo has been the go-to source for the Community of people with disabilities, their families, seniors, veterans and healthcare professionals. Every event opens your eyes to new technologies, new possibilities, new solutions and new opportunities to change your life. Read More…

Oct 25, 2019 01:00 pm - 03:00 pm
Western North Carolina Ataxia Support Group Meeting

Foster 7th Day Adventist Church is right off Highway 40, so it is easy to get to. Please bring a covered dish and we will have lunch, listen to a speaker, and have confidential group time. For more information or questions contact: Jodie Kawa at jodiekawa@comporium.net or (828)384-8414 or Maggie Dentremont at (828)777-7411 Read More…

Oct 26, 2019 08:00 am - 04:30 pm
Rare New England Annual Conference

RNE’s mission is to bring together New England patients, families and providers touched by rare and complex disorders. We offer educational opportunities, create awareness of available resources, and build foundations for support to improve patient quality of life. There will be a wide range of speakers covering topics such as a review of diagnostic tools Read More…