ACE applications are now open through October 15. Join a national network committed to providing high-quality, comprehensive Ataxia care. Apply Now!
Cameryn’s story is a powerful reminder of why we can’t wait for progress in Ataxia treatment development. While Ataxia affects each person differently, every voice matters in the fight for treatments and a cure. Watch her story, then share your own on social media with #KnowAtaxia to raise awareness and bring us closer—together—to a world without Ataxia.
Share your story about living with Ataxia. For Cameryn. For everyone still fighting. Every voice brings us closer to a cure!
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For many families affected by Ataxia, becoming a caregiver isn’t something that happens all at once. It happens gradually through driving to more appointments, helping Read More…
When Mark Minkin signed up for Xtreme Hike, he wasn’t just taking on a mountain. He was taking on a challenge that would honor his Read More…
Enhancing Community Through Professional Support For decades, NAF Support Groups have provided a welcoming place for people living with Ataxia, caregivers, family members, and loved Read More…
Guest Author: Pinalben “Pinky” Patel My vision has never been 20/20. Okay, maybe it was up until my preteen years. This disease I have affects Read More…
My name is Amir Hossein Bagerzade. I am 26 years old, and for nearly nine years I have been living with a rare genetic disease. Read More…
“So what we think you have is something called autoimmune cerebellar ataxia.” Cool. Cool. Cool- No idea what that is. Countless blood tests, a few MRIs and a Read More…
As a child I experienced hypnogogic states REM dysfunction and night terrors. As I go older I developed sleep attacks and falling. I went to a sleep specialist and was diagnosed w Read More…
I am Lucas Marins, Brazilian, 31 years old. My grandfather died with ataxia SCA3, my aunt is completely paralyzed already, my mother is 64 years Read More…
CENTRAL TIME ZONE The St. Louis Walk N’ Roll will bring together families, friends, co-workers, neighbors, and the community to support NAF’s mission to accelerate the development of treatments and Read More…
CENTRAL TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is Read More…
EASTERN TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is Read More…
EASTERN TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is Read More…
