The National Ataxia Foundation is dedicated to improving the lives of persons affected by Ataxia through support, education, and research.
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Author: Linda Snider Sidwell, MD, NAF Board Member and Support Group Leader The 2020 Annual Ataxia Conference in Denver, Colorado is going to be a world class Read More…
It can be hard to connect with other people who have Ataxia. NAF has a number of support groups around the country to help you Read More…
Author: Lauren Sormani, NAF Support Group Leader I was diagnosed with Spinocerebellar Ataxia Type 8 in 2017 when I was 21 years old. A few Read More…
Working with your doctor to obtain a diagnosis can be difficult, especially with a rare disease. Medical history, family history, and a neurological evaluation are Read More…
Author: Dana Mauro, NAF Support Group Leader Hi, let’s talk about Ataxia. When my husband, John, was diagnosed with Ataxia, we were desperate for information. Read More…
Author: Lori Shogren, Community Program and Services Director It was a pleasure to attend the Twin Cities Ataxia Support Group Meeting on November 16. This Read More…
The 2020 Annual Ataxia Conference is less than a month away. If you haven't registered yet - do it before February 21st to save $50 from the onsite registration price! See you there!
Don't Skip AAC in Denver Because of Weather - Here's Why
ataxia.org
Did you know Denver is sunnier than Miami and San Diego? There are many misconceptions about weather in Colorado. Find out why you don't want to miss outDid you miss the Clinical Trials in Ataxia webinar? Learn all about clinical trials from the experts. Don’t miss our next free webinar! Become a member for free: ataxia.org/JoinNAF
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Clinical Trials in Ataxia Webinar
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As Ataxia research moves forward, there will be more opportunities to participate in clinical trials. What does this mean for you, the Ataxia patient? Watch ...We have a brand new social event for young adults with Ataxia at this year's Annual Ataxia Conference! Lauren Sormani, the Support Group Leader of our Under 30 with Ataxia Group, tells us about her past experiences and the fun, informal meet-up planned for Thursday, March 5th.
Meet Others Under 30 with Ataxia at 2020 AAC
ataxia.org
Learn about the brand new meet-up scheduled in Denver this year!We'd like to introduce you to one of our 2020 Annual Ataxia Conference sponsors. uniQure is a company that has a pipeline of gene therapies.
We'll have a Pharmaceutical Industry Panel session at AAC this year. Come learn about what's new: ataxia.org/2020-annual-ataxia-conference/
Company Profile - About - uniQure
www.uniqure.com
Our focus is to advance the future of medicine through gene therapyLeveraging our more than 20 years of gene therapy leadership.An Ataxia Support Group serving Western NY and the surrounding area will meet the 3rd Wednesday of the month! All are welcome. You need not have Ataxia to attend. If you have an agenda topic of interest, please contact jesse.diehl61@gmail.com. She can also be reached by phone or text at 585-315-1578. Hope that we see Read More…
For more information contact Susan Masse: Phone #: 860-528-1875 or E-mail: Smasse1875@gmail.com Read More…
For more information or to RSVP contact Jason Armstrong at 215-378-3496 or writeonfighton@gmail.com Read More…
For more information contact Sarah Stuker at 907-947-1011 | sarahestuker@gmail.com Join our Facebook Group! Read More…
Community support is vital to the work that NAF does. Our generous donors help us fund promising Ataxia research and offer support services to people with Ataxia. Your gift today will help us continue to deliver on our mission to improve the lives of persons affected by Ataxia.
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