Our Mission

The National Ataxia Foundation is dedicated to improving the lives of persons affected by Ataxia through support, education, and research.

Become a Member of NAF for FREE!

0
NAF Members

Join the growing number of people that want to stay connected with the Ataxia community! Sign up today. It only takes a few moments. Our members receive:

  • News and research opportunities about their specific type of Ataxia as it becomes available.
  • Early access to free webinars
  • NAF’s eNewsletter and Generations publications. 

NEWS

NAF Blog Posts

2020 Walk N Roll Goes Virtual

Author: Joel Sutherland, Development Director Mark your calendar for Saturday, October 3rd beginning at 1:00pm EDT for the 2020 National Ataxia Foundation Virtual Walk N’ Roll. Read More…

Print Friendly, PDF & Email

2020 Ataxia Hill Day

NAF and FARA will hold our second Hill Day on Thursday, September 10, 2020! This event will raise awareness about Ataxia and support legislation that Read More…

Print Friendly, PDF & Email

2021 AAC Is Going Virtual

Author: Lori Shogren, Community Program and Services Director A Note About the 2021 Annual Ataxia Conference We know how valuable it is for those living Read More…

Print Friendly, PDF & Email

How Does a Clinical Trial Work?

Guest Author: Amber Trzeciak, Cadent Therapeutics Clinical trial phases can be a confusing concept to understand. The purpose of clinical trials is to determine how Read More…

Print Friendly, PDF & Email

EL-PFDD Meeting

We’re excited to announce that NAF and Cure DRPLA will Host an Externally-Led Patient-Focused Drug Development Meeting for Polyglutamine Spinocerebellar Ataxias and DRPLA! Save the Date! September Read More…

Print Friendly, PDF & Email

Facebook Posts

This message is only visible to admins.

PPCA Error: Due to Facebook API changes on September 4, 2020, it will no longer be possible to display a feed from a Facebook Page you are not an admin of. The Facebook feed below is not using a valid Access Token for this Facebook page and so will stop updating after this date.

If you are interested in ideas about how to support NAF and the Ataxia community, we have a new page on our website just for you! Visit our Ways to Give page to find an option that best works for you!
www.ataxia.org/ways-to-give/
...

View on Facebook

This message is only visible to admins.

PPCA Error: Due to Facebook API changes on September 4, 2020, it will no longer be possible to display a feed from a Facebook Page you are not an admin of. The Facebook feed below is not using a valid Access Token for this Facebook page and so will stop updating after this date.

Thanks to the generosity of our Ataxia community, we have met our $100,000 goal for the Summer Match Challenge!

Each dollar donated over the last 30 days was matched thanks to contributions from the Michael and Patricia Clementz-Peterson Family Fund and one anonymous donor.
THANK YOU!
...

View on Facebook

YouTube Channel

Print Friendly, PDF & Email

Events

Aug 14, 2020 11:00 am - 05:00 pm
Abilities Expo – NY Metro

Abilities Expo is about bringing necessary products and services together under one roof for the community of people with disabilities, their families, caregivers, seniors, and healthcare professionals. It’s about introducing opportunities that can enrich your life …especially ones that you never knew were out there. From more information visit www.abilitiesexpo.com. Read More…

Print Friendly, PDF & Email
Aug 14, 2020 03:00 pm - 08:00 pm
VIRTUAL Toronto Ataxia Support Group Meeting

Meetings are at 3PM and 6PM EST Click on the links below to register. If we haven’t seen you in a while, it would be nice to talk with you! Timeslot #1 – 3pm EST (8PM in the UK, 5am Saturday in Sydney, AU) Timeslot #2 – 6pm EST (11PM in the UK, 8am Saturday Read More…

Print Friendly, PDF & Email
Aug 15, 2020 10:00 am - 12:30 pm
VIRTUAL Twin Cities Ataxia Support Group Meeting

We meet on the third Saturday of the month. For access information join our Facebook Group https://www.facebook.com/groups/103233603504142/ For other questions contact Lenore Healey Schultz at Phone #: 612-724-3784 | E-mail: schultz.lenore@yahoo.com Read More…

Print Friendly, PDF & Email
Aug 15, 2020 10:00 am - 11:00 am
VIRTUAL Boston Ataxia Support Group Meeting

For access information contact Donna Gorzela at Phone #: 978-490-9552 | Email: Donna.gorzela@gmail.com Join our Facebook Group: https://www.facebook.com/groups/746918332709343 Read More…

Print Friendly, PDF & Email
Translate »