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NEWS

Posted on May 31, 2018
You Rose to the Challenge! Goal EXCEEDED!

The Clementz Foundation issued a match donation challenge and pledged $50,000. Act now to have your donation DOUBLED and help us earn the pledge! Read More…

Posted on April 12, 2018
NAF Rated 4-Stars by Charity Navigator for 5th Time in a Row

We’re excited to announce that NAF has received the top rating by Charity Navigator – the largest independent evaluator of charities – for the 5th time in a row! Why is that a big deal? Because only 9% of charities evaluated have received at least five consecutive 4-star ratings! The coveted 4-star rating means that Read More…

Events

Aug 17, 2018 11:00 am - 12:00 pm
Connecticut Ataxia Support Group Meeting

Come join us as we get to know each other and give each other support. For more information or questions contact: Susan Masse at 860-528-1875 or smasse1875@gmail.com  Read More…

Aug 18, 2018 10:00 am - 12:00 pm
Twin Cities Ataxia Social Group Meeting

The Twin Cities Ataxia Support Group meets once a month. Family and friends of an afflicted individual are always welcome! We meet on the third Saturday of every month at 10:00am for 2 hours in a meeting room at Langton Place which is located on the south side of the road on County Road D Read More…

Aug 18, 2018 12:30 pm - 03:30 pm
Treasure Coast Ataxia Support Group

Join us for our on Satruday the 18th of August we will have Dr. Subramony Skyping in at 1:00. We hope you can join us! For more information contact: Lisa Cole at: 772-370-3041 or lisacoleataxia@gmail.com Read More…

Aug 18, 2018 01:00 pm - 03:00 pm
Sacramento Ataxia Support Group Meeting

We meet on the third Saturday of each month. For more information or to be added to this group’s mailing list contact Teresa Bredberg at 916-215-2686 or tbredberg@sbcglobal.net. *Location/Room Subject to change: Please contact facilitator to confirm location. Read More…

Member Stories

DeCrescenzo Family
DeCrescenzo Family

“We had time to process the diagnosis and vowed not to let it change who we are or alter our daily lives. We found a neurologist who specializes in movement disorders and Ataxia. We also joined two support groups, one at Johns Hopkins Medical Center, and the other with the Chesapeake Chapter NAF. We met so many wonderful, inspiring people who were struggling with Ataxia but always stayed positive, which we admired. Our next step was to join the National Ataxia Foundation (NAF). We are so thankful we took that step. Our first encounter with NAF was attending the Annual Ataxia Conference (AAC) five years ago in San Antonio, TX. I must also admit that the first conference had a huge impact on our lives. It made us realize we are not alone and it gave us strength to move forward…. Since then, we have become advocates, started our own support group in Delaware, and organized many fundraisers for NAF.” Read More…


Lisa Cole and daughter
Lisa Cole

“I want to help the NAF and spread awareness about Ataxia. One way I could help support NAF and also bring about awareness was by having fundraisers. I have approximately 2 fundraisers per year. Introducing the NAF to my friends and acquaintances or by telling them to go directly to the website www.ataxia.org. In early 2013, I was on a treadmill for a stress test and almost fell. I blamed it on my knees. I went to an orthopedist, then to a neurologist. It was that neurologist that listened to me and sent me to Gainesville for a second opinion. I’m glad to get the correct diagnosis even though it is not a good one. I am starting a support group here on the east coast of Florida. I have ataxia, which won’t change, but I do want to help as many people that I can. The NAF is a great resource. I will definitely get as much information I can from the NAF. I want to help others plus it’s helping me.” Read More…


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