Light at the End of the Tunnel
May 21, 2020
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Author: Sue Hagen, Research Services Director I heard a story about a father and his son out on a bike ride who came upon a Read More…
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Author: Sue Hagen, Research Services Director I heard a story about a father and his son out on a bike ride who came upon a Read More…
Author: Lori Shogren, NAF Community Program and Services Director The first ever virtual Hill Day on March 18th was a tremendous success! This event was Read More…
COVID-19 is affecting many areas of life. While our Support Groups haven’t been able to meet in person because of Stay At Home orders across Read More…
Guest Author: Dr. Pravin Khemani Swedish Neuroscience Institute; NAF Medical and Research Advisory Board Member Hi folks! Social distancing is not social disengagement, so please Read More…
We’re excited to announce that NAF will award $940,000 in Ataxia research grants this year! NAF’s Board of Directors approved funding for 25 Ataxia research grants in Read More…
NAF staff will be working remotely until further notice, doing our small part in slowing the spread of the COVID-19 virus. What this means is Read More…
Did you miss the COVID-19 and Ataxia Webinar with Dr. Pravin Khemani and Dr. Jeremy D. Schmahmann? The video is available now at the link, check it out.
Coronavirus Precautions for Ataxia Patients
ataxia.org
Learn what you can do to decrease your risk of contracting COVID-19.All your questions answered – now! The COVID-19 and Ataxia Webinar with Dr. Pravin Khemani and Dr. Jeremy D. Schmahmann JUST started! 💻 You can still join us: register.gotowebinar.com/register/8070270618785816589
Our Community Programs and Services Director, Lori Shogren, attended the first "virtual" Hill Day with Alliance for a Stronger FDA. Learn about her experience and the advocacy efforts in her latest blog.
NAF Attends First Ever Virtual Hill Day - National Ataxia Foundation
ataxia.org
Author: Lori Shogren, NAF Community Program and Services Director The first ever virtual Hill Day on March 18th was a tremendous success! This event was organized by the Alliance for a Stronger FDA which is an advocacy organization that NAF is proud to be a member of. For Alliance members and Hill s...RAREwithCOVID is a new patient registry for rare disease patients who have or had COVID-19. Information will be used by researchers, public health departments, and those interested in COVID-19 among rare disease populations. Our efforts are made stronger when we work together. #RAREwithCOVID-19
Visit: www.rarewithcovid.com
This event was scheduled as a virtual meeting due to NAF’s coronavirus precaution recommendations. Please join us on Zoom on Thursday, May 28th at 7:30pm for an Ataxia Trivia Night. Bring your drink of choice and a favorite snack and we will make a fun social. Then we’ll get competitive and see who has the most Read More…
Meetings are at 3PM and 6PM EST Click on the links below to register. If we haven’t seen you in a while, it would be nice to talk with you! Timeslot #1 – 3pm EST (8PM in the UK, 5am Saturday in Sydney, AU) Timeslot #2 – 6pm EST (11PM in the UK, 8am Saturday Read More…
This event was scheduled as a virtual meeting due to NAF’s coronavirus precaution recommendations. Register in advance for this meeting: https://us02web.zoom.us/meeting/register/vpIldu6hrz4rsLMjGnyaW4NUpICqZ_0yFA After registering, you will receive a confirmation email containing information about joining the meeting. For more information contact Lisa Cole at 772-370-3041 or lisacoleataxia@gmail.com Join our Facebook Group! Read More…
Please join us for our first Las Vegas Support Group Meeting! Please arrive to the meeting 10 minutes early if you need assistance. If using your phone please download the Zoom App in advance. Join Zoom Meeting https://us04web.zoom.us/j/76649692081?pwd=T01Qa1RCek43d2plVkg4SmgzK3Zldz09 Meeting ID: 766 4969 2081 Password: Ataxia For Phone Audio Call +1 253 215 8782 US or Read More…
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