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Our Mission

The National Ataxia Foundation is dedicated to improving the lives of persons affected by Ataxia through support, education, and research.


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Make a huge impact on the Ataxia research grants that receive funding in 2019 with your donation today. Gifts will be matched by a group of anonymous donors through December 31st! ...

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You all made #GivingTuesday a huge success...thank you!! With your help, NAF raised $7,274! All Giving Tuesday donations supported the 2018 Research Drive - where the gifts will be MATCHED. Didn't get a chance to donate yet? We have less than a month to go to reach our goal for the 2018 Research Drive. Help us reach the $200,000 match! Donate now: ...

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Dec 15, 2018 10:00 am - 02:00 pm
Twin Cities Ataxia Social Group Holiday Party

The Twin Cities Ataxia Support Group meets once a month. Family and friends of an afflicted individual are always welcome! We meet on the third Saturday of every month at 10:00am for 2 hours in a meeting room at Langton Place which is located on the south side of the road on County Road D Read More…

Dec 15, 2018 11:00 am - 01:00 pm
Nebraska Ataxia Support Group Meeting

Our guest speaker will be Joel Sutherland from the National Ataxia Foundation. For more information contact Linda Snider at:402-212-3060 or Hope you can join us! Read More…

Dec 15, 2018 01:00 pm - 03:00 pm
Sacramento Ataxia Support Group Meeting

We meet on the third Saturday of each month. For more information or to be added to this group’s mailing list contact Teresa Bredberg at 916-215-2686 or *Location/Room Subject to change: Please contact facilitator to confirm location. Read More…

Dec 16, 2018 02:00 pm - 04:00 pm
Cincinnati Area Support Group Meeting

We meet the third Sunday of each month at 2:00 p.m.  Even numbered months will be support only meetings and odd numbered months will be programmed.  Each meeting will include introductions and a show and tell time.  All meetings are confidential, except for agendas and presenter materials. We will meet at the offices of Sharp Read More…

Member Stories

DeCrescenzo Family
DeCrescenzo Family

“We had time to process the diagnosis and vowed not to let it change who we are or alter our daily lives. We found a neurologist who specializes in movement disorders and Ataxia. We also joined two support groups, one at Johns Hopkins Medical Center, and the other with the Chesapeake Chapter NAF.” Read More…

Lisa Cole and daughter
Lisa Cole

“I want to help the NAF and spread awareness about Ataxia. One way I could help support NAF and also bring about awareness was by having fundraisers. I have approximately 2 fundraisers per year. Introducing the NAF to my friends and acquaintances or by telling them to go directly to the website” Read More…

Ed Schwartz
Ed Schwartz

“Ataxia is the biggest challenge I have ever had to face in my life. About twenty three years ago I began to fall down in the dark. Then after experiencing symptom s of 6 other disorders over the next 20 years, and a seizure – like reaction to the composite collection of drugs I was taking, I wrecked my truck!” Read More…

Jonathan Zilles
Jonathan Zilles

“I’m Jonathan Zilles. I was diagnosed with Friedreich’s Ataxia when I was 11 years old. Life as a kid with
Friedreich’s was pretty normal, but I fell down a lot. My symptoms started early and included hand-eye coordination issues….” Read More…


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