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Our Mission

The National Ataxia Foundation is dedicated to improving the lives of persons affected by Ataxia through support, education, and research.


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This Ataxia Advocacy panel spoke at #2019AAC to discuss global efforts to make a difference for individuals affected by Ataxia. Learn more: ...

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Mike De Rosa, a military veteran from the Special Forces (Green Berets), and Ed Brand, an advocate for ataxia awareness, share a common goal: fight for a cure for ataxia. Both men have ataxia. They marched 26.2 miles through the desert in New Mexico to honor veterans and raise money to support NAF. Watch to learn about their story and their journey.

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3 weeks ago

National Ataxia Foundation

Ataxia A Treatable Disease 62nd NAF Annual Ataxia Conference

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Apr 19, 2019 11:00 am - 12:00 pm
Connecticut Ataxia Support Group Meeting

For more information contact Susan Masse: Phone #: 860-528-1875 or E-mail: Read More…

Apr 20, 2019 08:00 am - 05:00 pm
NAF Booth at SoCo Socials 2nd Annual Event

Stop by the NAF Awareness booth at the SoCo Socials 2nd Annual Event. More information found here! Read More…

Apr 20, 2019 10:00 am - 12:30 pm
Twin Cities Ataxia Support Group Meeting

We hope to see you there! For more information contact: Lenore Healey Schultz at 612-724-3784 or Maryann Sweeney at 612-924-4947 or Read More…

Apr 20, 2019 11:00 am - 01:00 pm
Nebraska Ataxia Support Group Meeting

Please join us at the Millard Branch Public Library where our speaker will be from Mobilis Medical talking about durable medical equipment. For more information contact Linda Snider at:402-212-3060 or Hope to see you there! Read More…

Member Stories

DeCrescenzo Family
DeCrescenzo Family

“We had time to process the diagnosis and vowed not to let it change who we are or alter our daily lives. We found a neurologist who specializes in movement disorders and Ataxia. We also joined two support groups, one at Johns Hopkins Medical Center, and the other with the Chesapeake Chapter NAF.” Read More…

Lisa Cole and daughter
Lisa Cole

“I want to help the NAF and spread awareness about Ataxia. One way I could help support NAF and also bring about awareness was by having fundraisers. I have approximately 2 fundraisers per year. Introducing the NAF to my friends and acquaintances or by telling them to go directly to the website” Read More…

Ed Schwartz
Ed Schwartz

“Ataxia is the biggest challenge I have ever had to face in my life. About twenty three years ago I began to fall down in the dark. Then after experiencing symptom s of 6 other disorders over the next 20 years, and a seizure – like reaction to the composite collection of drugs I was taking, I wrecked my truck!” Read More…

Jonathan Zilles
Jonathan Zilles

“I’m Jonathan Zilles. I was diagnosed with Friedreich’s Ataxia when I was 11 years old. Life as a kid with
Friedreich’s was pretty normal, but I fell down a lot. My symptoms started early and included hand-eye coordination issues….” Read More…


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Community support is vital to the work that NAF does. Our generous donors help us fund promising Ataxia research and offer support services to people with Ataxia. Your gift today will help us continue to deliver on our mission to improve the lives of persons affected by ataxia.

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Join for FREE today! Become a part of the community that is working together to find a cure. As a member you will receive access to the latest ataxia news with our e-newsletter and Generations publication.