The National Ataxia Foundation is dedicated to improving the lives of persons affected by Ataxia through support, education, and research.
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Working with your doctor to obtain a diagnosis can be difficult, especially with a rare disease. Medical history, family history, and a neurological evaluation are Read More…
Author: Dana Mauro, NAF Support Group Leader Hi, let’s talk about Ataxia. When my husband, John, was diagnosed with Ataxia, we were desperate for information. Read More…
Author: Lori Shogren, Community Program and Services Director It was a pleasure to attend the Twin Cities Ataxia Support Group Meeting on November 16. This Read More…
We’ve been talking a lot lately about Ataxia clinical trials. But what is a clinical trial? Should you sign up to participate when there is Read More…
Author: Joel Sutherland, NAF Development Director Only 26 spots remain in the 2020 Joint Mission Bataan to Cure Ataxia campaign. Would you like to join us? To Read More…
Giving Tuesday is a global day of giving that is recognized on the Tuesday after Thanksgiving each year, usually through social media efforts. To celebrate, Read More…
Troriluzole study for Spinocerebellar Ataxia (SCA) | Biohaven
Troriluzole study for Spinocerebellar Ataxia (SCA) | Biohaven
clarahealth.com
The Spinocerebellar Ataxia (SCA) Study is evaluating a new investigational oral medication called troriluzole to see how it may slow down and improve symptoms for people with hereditary ataxia.Courtney has been a professional dancer for over 15 years. She teaches paradance at Fred Astaire Dance Studios of Colorado. Join us for her Wheelchair Dancing Sessions at the 2020 Annual Ataxia Conference! ataxia.org/2020-annual-ataxia-conference/
NAF Apparel On Sale Now Through February 3, 2020! New styles and products to choose from. Men's, women's and youth apparel options available.10% of proceeds donated to NAF. Shop now: bit.ly/39ArYva
Our Annual Ataxia Research Drive is coming to a close. You have until tomorrow to make an impact. Funding research and hosting scientific meetings encourages doctors to pursue careers in Ataxia and allows researchers to progress in their findings; ultimately helping lead to treatments. Donate now at www.ataxia.org/researchdrive
For more information contact Lisa Cole at 772-370-3041 | lisacoleataxia@gmail.com Join our Facebook Group! Read More…
We meet the first Saturday of the month. Renown Medical Center (Artisans 107) For more information contact Libby and Rich Hoops at 775-223-2809 or hoops.e.a.hoops@gmail.com Join Our Facebook Group! Read More…
We will be having two speakers with Q &A after each. Our speakers include Meredith Bartlett who is a Speech-Language Pathologist and will provide strategies for facilitating communication when speech becomes difficult to understand. Our other speaker is Katie Griffith who is an Athlete Ambassador who will speak about her involvement with Arizona Disability Sports Read More…
Registration has just opened for an Ataxia Support Group Teleconference via Zoom (hosted by Mark Desa – ARCA1). We’d love for you to attend. For more information contact Mark Desa at 416-418-2475 or mark@hopeforataxia.org. Meeting Agenda – updates on our first HFA fundraiser for Ataxia Canada. – relevant guest speakers (stay tuned to future emails Read More…
Community support is vital to the work that NAF does. Our generous donors help us fund promising Ataxia research and offer support services to people with Ataxia. Your gift today will help us continue to deliver on our mission to improve the lives of persons affected by Ataxia.
Join for FREE today! Become a part of the community that is working together to find a cure. As a member you will receive access to the latest Ataxia news with our e-newsletter and Generations publication.
