The Ataxia Community Comes Together in Orlando April 9–11, 2026 for the Annual Ataxia Conference! LEARN MORE
Cameryn’s story is a powerful reminder of why we can’t wait for progress in Ataxia treatment development. While Ataxia affects each person differently, every voice matters in the fight for treatments and a cure. Watch her story, then share your own on social media with #KnowAtaxia to raise awareness and bring us closer—together—to a world without Ataxia.
Share your story about living with Ataxia. For Cameryn. For everyone still fighting. Every voice brings us closer to a cure!
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Written by Victoria Martinez Faces of Ataxia Research highlights scientists whose work is supported by grants from NAF. Each story shows how our donors are Read More…
Written by Taylor Stolberg Faces of Ataxia Research highlights scientists whose work is supported by grants from NAF. Each story shows how our donors are Read More…
Location Gainesville, FL USA Website www.neurogenetics.med.ufl.edu/patients/brain-donation-program/ Phone Number (352) 273-5189 Email dgmorrison@ufl.edu Geographic Restrictions Continental USA Other Restrictions Donations are restricted to forms of Ataxia characterized Read More…
Written by Victoria Martinez Faces of Ataxia Research highlights scientists whose work is supported by grants from NAF. Each story shows how our donors are Read More…
My grandmother died prematurely from ataxia when I was just a baby, 26 years ago. Now today, my aunt has severe SCA and my mother Read More…
My paternal grandfather had a wide gait and difficulty walking and talking. We were told it was like “hardening of the arteries in the brain.” Read More…
A Wheelchair is Not The Endgame By Pinalben “Pinky” Patel I’m sorry, but I don’t consider wheelchair users disabled. I am a very happy person Read More…
My Ataxia journey began in 1978, following a three-month coma I experienced the year before, at age 12. Since then, I’ve faced significant balance challenges Read More…
At this annual gathering attendees meet and learn from world-leading Ataxia researchers and clinicians, network, and reunite with old friends. Hundreds of people – from patients, to caregivers, to medical Read More…
Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by Read More…
Global (Hope for Ataxia) Support Group Meeting- 1st Session EASTERN TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. Read More…
Global Support Group (Hope for Ataxia) – 2nd Session EASTERN TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. Read More…
