Our Mission

The National Ataxia Foundation is dedicated to improving the lives of persons affected by Ataxia through support, education, and research.

Become a Member of NAF for FREE!

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NAF Members

Join the growing number of people that want to stay connected with the Ataxia community! Sign up today. It only takes a few moments. Our members receive:

  • News and research opportunities about their specific type of Ataxia as it becomes available.
  • Early access to free webinars
  • NAF’s eNewsletter and Generations publications. 

NEWS

NAF Blog Posts

Martha Harlem

My journey with Ataxia has been a life full of ups and downs. Ataxia has defined most of my life since it was first diagnosed Read More…

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Jean Gossip

You can call me Jean Gossip. I am 76 and was born in Aberdeen, Scotland. We moved, as a family (3 children), to Australia in Read More…

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Katie Norton-Bower

Recently, a bright young lady reached out to NAF’s Research Services Director, Sue Hagen, to ask for help with her school project. She wanted to Read More…

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Facebook Posts

Martha learned of her Ataxia diagnosis while she was pursuing her dreams as a professional opera singer. But when she adopted a positive attitude, she was able to make a new life for herself. ataxia.org/martha-harlem/ ...
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Gülin Öz, PhD, a member of NAF’s Medical and Research Advisory Board who works at University of Minnesota Twin Cities is speaking right now in the “MR Biomarkers in Spinocerebellar Ataxias” webinar hosted by the European Reference Network for Rare Neurological Diseases (Ern Rnd). The webinar is for clinical specialists. We are proud that she volunteers her time and expertise to help guide NAF’s research efforts. ...
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Ladies Who Rock 4 a Cause is a platform for female artists to come together and harness the unifying power of music to help others. We thank them for supporting NAF and bringing awareness to Ataxia at this year’s event!EVERY ticket sold purchased prior to April 17th will be entered to win $100! The drawing will be held during the show!! you must be present to win. fb.me/e/SUQ8eL5Opresented by PreSonus Audio Electronics #presonus #SmartSource, Amy McAllister's Diamond Discovery and Sponsored by TMS Yoga#ladieswhorockforacauseWe are raising awareness of #Ataxia and support for the National Ataxia Foundation and also an individual in need. To see why we love what we do, please visit our website and see the stories of the lives we have touched. www.ladieswhorock4acause.org/project/wendy-bono-betz/ ...
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YouTube Channel

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Events

Apr 16, 2021 01:00 pm - 02:30 pm
VIRTUAL JHU Ataxia Center Presentation: Ataxia Research and IDEA Study Q&A

1pm Eastern For more information contact: Donna DeLeno Neuworth, Ataxia Center Health Educator Johns Hopkins University, Department of Neurology Ddeleno1@jhmi.edu Read More…

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Apr 16, 2021 03:00 pm - 05:00 pm
VIRTUAL Global Ataxia Support Group Meeting – Time slot #1

Meetings are at 3PM Click here to register For more information contact Mark Desa at 416-418-2475 or mark@hopeforataxia.org. Read More…

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Apr 16, 2021 06:00 pm - 07:30 pm
VIRTUAL Global Ataxia Support Group Meeting – Time slot #2

Meetings are at 6PM EST Click here to register For more information contact Mark Desa at 416-418-2475 or mark@hopeforataxia.org. Read More…

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Apr 17, 2021 10:00 am - 11:30 am
VIRTUAL Boston Ataxia Support Group Meeting

We meet at 10am Eastern on the third Saturday of the month. We welcome anyone to these meetings, regardless of location. For access information contact Donna Gorzela at Phone #: 978-490-9552 | Email: Donna.gorzela@gmail.com Join our Facebook Group: https://www.facebook.com/groups/746918332709343 Read More…

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