The National Ataxia Foundation is dedicated to improving the lives of persons affected by Ataxia through support, education, and research.
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Author: Lori Shogren, Community Program and Services Director It was a pleasure to attend the Twin Cities Ataxia Support Group Meeting on November 16. This Read More…
We’ve been talking a lot lately about Ataxia clinical trials. But what is a clinical trial? Should you sign up to participate when there is Read More…
Author: Joel Sutherland, NAF Development Director Only 26 spots remain in the 2020 Joint Mission Bataan to Cure Ataxia campaign. Would you like to join us? To Read More…
Giving Tuesday is a global day of giving that is recognized on the Tuesday after Thanksgiving each year, usually through social media efforts. To celebrate, Read More…
Photo: A few members got together for a Preholiday Fun Lunch Saturday, November 16 at the Fish Company, Bass Pro in Northfield, Denver. Author: Charlotte Read More…
Guest Authors: Sheng-Han Kuo MD, Chen-Ya Yang, MD, MPH, and Geraldine Yu, PT, DPT Technical Support: Tiffany Chen BS, Johns Hopkins University Ataxia is a Read More…
Do you have questions about research, pharma, or living/coping with Ataxia for our panel experts at 2020 AAC? Comment here.
Do you ever wish you could spend a little time with an Ataxia researcher to ask about what's new? You will get the chance at 2020 AAC! During the "Networking with AIM Researchers" session, an expert will join each table to chat and give you the scoop. Learn more: ataxia.org/2020-annual-ataxia-conference/
How cool is this?
Hiking Wheelchair Opens Up Outdoor Lifestyle To People With Serious Disabilities
trib.al
Geoff Babb — a stroke survivor — found that most wheelchairs couldn't take him where he wanted to go. So, he invented a new way to hike with friends and family: an all-terrain wheelchair.BREAKING NEWS: An ongoing clinical trial was recently expanded to include additional types of Ataxia. They are looking for individuals with SCA1, SCA2, SCA3, SCA6, SCA7, SCA8, or SCA10. This study will determine if Troriluzole, a new investigational treatment, can slow progression and treat symptoms of hereditary SCA. Learn how to join the clinical trial:
www.clarahealth.com/studies/troriluzole-sca-study
Troriluzole study for Spinocerebellar Ataxia (SCA) | Biohaven
www.clarahealth.com
The Spinocerebellar Ataxia (SCA) Study is evaluating a new investigational oral medication called troriluzole to see if it can slow progression and improve symptoms for people with hereditary ataxia.Join us for our meetings on the 3rd Wednesday of every month to share resources and problem solving. For more information contact Shenlei Winkler Phone #: 517-993-7655 | Email: Shenlei.winkler@aol.com | Group Website: https://naflansing.wordpress.com Delta Township Enrichment Center, Room #302 4538 Elizabeth Road Lansing, Michigan December 18, 2019 1:00-2:00pm Read More…
An Ataxia Support Group serving Western NY and the surrounding area will meet the 3rd Wednesday of the month! All are welcome. You need not have Ataxia to attend. If you have an agenda topic of interest, please contact jesse.diehl61@gmail.com He can also be reached by phone or text at 585-315-1578. Hope that we see you there! Read More…
For more information contact Susan Masse: Phone #: 860-528-1875 or E-mail: Smasse1875@gmail.com Read More…
We hope to see you there! For more information contact: Lenore Healey Schultz at 612-724-3784 or schultz.lenore@yahoo.com Maryann Sweeney at 612-924-4947 or maryann.sween@gmail.com Read More…
Community support is vital to the work that NAF does. Our generous donors help us fund promising Ataxia research and offer support services to people with Ataxia. Your gift today will help us continue to deliver on our mission to improve the lives of persons affected by Ataxia.
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