The National Ataxia Foundation is dedicated to improving the lives of persons affected by Ataxia through support, education, and research.
📢 BREAKING NEWS 📢: IntraBio Inc receives Orphan Drug designation from the U.S. Food and Drug Administration for their medication to treat Ataxia! NAF's Medical Director, Susan Perlman, MD, said that this designation "will accelerate development of this agent, which has potential symptomatic and neuroprotective activity for SCA and other Central Nervous System disorders."
IntraBio Receives Spinocerebellar Ataxia Orphan Drug Designation from the FDA
accesswire.com
OXFORD, UK / ACCESSWIRE / December 10, 2018 / IntraBio Inc., a late-stage biopharmaceutical company developing novel therapies for rare ("orphan") and common neurodegenerative diseases, announced that the US Food and Drug Administration has granted Orphan Drug Designation (ODD) to its lead compound....Make a huge impact on the Ataxia research grants that receive funding in 2019 with your donation today. Gifts will be matched by a group of anonymous donors through December 31st! www.ataxia.org/researchdrive
We're excited to see a new potential treatment for Ataxia in the pipeline from IntraBio Inc. 😀
IntraBio Receives Spinocerebellar Ataxia European Orphan Drug Designation
accesswire.com
OXFORD, UK / ACCESSWIRE /December 5, 2018 / IntraBio Inc., a late-stage biopharmaceutical company developing novel therapies for rare ("orphan") and common neurodegenerative diseases, announced that the European Commission has granted Orphan Medicinal Drug Designation for its lead compound series (I...You all made #GivingTuesday a huge success...thank you!! With your help, NAF raised $7,274! All Giving Tuesday donations supported the 2018 Research Drive - where the gifts will be MATCHED. Didn't get a chance to donate yet? We have less than a month to go to reach our goal for the 2018 Research Drive. Help us reach the $200,000 match! Donate now: bit.ly/2018ResearchDrive
The Twin Cities Ataxia Support Group meets once a month. Family and friends of an afflicted individual are always welcome! We meet on the third Saturday of every month at 10:00am for 2 hours in a meeting room at Langton Place which is located on the south side of the road on County Road D Read More…
Our guest speaker will be Joel Sutherland from the National Ataxia Foundation. For more information contact Linda Snider at:402-212-3060 or lindasnider@cox.net Hope you can join us! Read More…
We meet on the third Saturday of each month. For more information or to be added to this group’s mailing list contact Teresa Bredberg at 916-215-2686 or tbredberg@sbcglobal.net. *Location/Room Subject to change: Please contact facilitator to confirm location. Read More…
We meet the third Sunday of each month at 2:00 p.m. Even numbered months will be support only meetings and odd numbered months will be programmed. Each meeting will include introductions and a show and tell time. All meetings are confidential, except for agendas and presenter materials. We will meet at the offices of Sharp Read More…
“We had time to process the diagnosis and vowed not to let it change who we are or alter our daily lives. We found a neurologist who specializes in movement disorders and Ataxia. We also joined two support groups, one at Johns Hopkins Medical Center, and the other with the Chesapeake Chapter NAF.” Read More…
“I want to help the NAF and spread awareness about Ataxia. One way I could help support NAF and also bring about awareness was by having fundraisers. I have approximately 2 fundraisers per year. Introducing the NAF to my friends and acquaintances or by telling them to go directly to the website www.ataxia.org.” Read More…
“Ataxia is the biggest challenge I have ever had to face in my life. About twenty three years ago I began to fall down in the dark. Then after experiencing symptom s of 6 other disorders over the next 20 years, and a seizure – like reaction to the composite collection of drugs I was taking, I wrecked my truck!” Read More…
“I’m Jonathan Zilles. I was diagnosed with Friedreich’s Ataxia when I was 11 years old. Life as a kid with
Friedreich’s was pretty normal, but I fell down a lot. My symptoms started early and included hand-eye coordination issues….” Read More…
