The National Ataxia Foundation is dedicated to improving the lives of persons affected by Ataxia through support, education, and research.
The Clementz Foundation issued a match donation challenge and pledged $50,000. Act now to have your donation DOUBLED and help us earn the pledge! Read More…
We’re excited to announce that NAF has received the top rating by Charity Navigator – the largest independent evaluator of charities – for the 5th time in a row! Why is that a big deal? Because only 9% of charities evaluated have received at least five consecutive 4-star ratings! The coveted 4-star rating means that Read More…
A variety of events are held in conjunction with IAAD to raise awareness about ataxia and funds to help end ataxia. Those events have included picnics, galas, jeans days, parties, fitness gatherings, silent auctions, contests, challenges, raffles and more. Join other Ataxia Fighters by planning your IAAD activity today! Please let us know about the Read More…
Join Us for Eat-In or Take Out! No certificate or flyer needed. Just mention you visit is to support Ataxia and The National Ataxia Foundation will receive 15% of your total purchase (Excluding Alcohol, Tax and Gratuity). The Kozy Nook Family restaurant is pleased to participate in the memory of Janey R Coyne. Read More…
Join the Treasure Coast Ataxia Support Group for some BINGO! All proceeds benefit the National Ataxia Foundation. For more information contact Lisa Cole at lisacoleataxia@gmail.com or 772-370-3041. Read More…
We are very excited to announce the 1st meeting of the Western North Caroline Ataxia Support Group! Foster 7th Day Adventist Church is right off Highway 40, so it is easy to get to. Please bring a covered dish and we will have lunch, listen to a speaker, and have confidential group time. For more Read More…
“We had time to process the diagnosis and vowed not to let it change who we are or alter our daily lives. We found a neurologist who specializes in movement disorders and Ataxia. We also joined two support groups, one at Johns Hopkins Medical Center, and the other with the Chesapeake Chapter NAF. We met so many wonderful, inspiring people who were struggling with Ataxia but always stayed positive, which we admired. Our next step was to join the National Ataxia Foundation (NAF). We are so thankful we took that step. Our first encounter with NAF was attending the Annual Ataxia Conference (AAC) five years ago in San Antonio, TX. I must also admit that the first conference had a huge impact on our lives. It made us realize we are not alone and it gave us strength to move forward…. Since then, we have become advocates, started our own support group in Delaware, and organized many fundraisers for NAF.” Read More…
“I want to help the NAF and spread awareness about Ataxia. One way I could help support NAF and also bring about awareness was by having fundraisers. I have approximately 2 fundraisers per year. Introducing the NAF to my friends and acquaintances or by telling them to go directly to the website www.ataxia.org. In early 2013, I was on a treadmill for a stress test and almost fell. I blamed it on my knees. I went to an orthopedist, then to a neurologist. It was that neurologist that listened to me and sent me to Gainesville for a second opinion. I’m glad to get the correct diagnosis even though it is not a good one. I am starting a support group here on the east coast of Florida. I have ataxia, which won’t change, but I do want to help as many people that I can. The NAF is a great resource. I will definitely get as much information I can from the NAF. I want to help others plus it’s helping me.” Read More…
