The National Ataxia Foundation is dedicated to improving the lives of persons affected by Ataxia through support, education, and research.
Join the growing number of people that want to stay connected with the Ataxia community! Sign up today. It only takes a few moments. Our members receive:
Author: Lori Shogren, Community Program and Services Director It was a pleasure to attend the Twin Cities Ataxia Support Group Meeting on November 16. This Read More…
We’ve been talking a lot lately about Ataxia clinical trials. But what is a clinical trial? Should you sign up to participate when there is Read More…
Author: Joel Sutherland, NAF Development Director Only 26 spots remain in the 2020 Joint Mission Bataan to Cure Ataxia campaign. Would you like to join us? To Read More…
Giving Tuesday is a global day of giving that is recognized on the Tuesday after Thanksgiving each year, usually through social media efforts. To celebrate, Read More…
Photo: A few members got together for a Preholiday Fun Lunch Saturday, November 16 at the Fish Company, Bass Pro in Northfield, Denver. Author: Charlotte Read More…
Guest Authors: Sheng-Han Kuo MD, Chen-Ya Yang, MD, MPH, and Geraldine Yu, PT, DPT Technical Support: Tiffany Chen BS, Johns Hopkins University Ataxia is a Read More…
Do you ever wish you could spend a little time with an Ataxia researcher to ask about what's new? You will get the chance at 2020 AAC! During the "Networking with AIM Researchers" session, an expert will join each table to chat and give you the scoop. Learn more: ataxia.org/2020-annual-ataxia-conference/
How cool is this?
Hiking Wheelchair Opens Up Outdoor Lifestyle To People With Serious Disabilities
trib.al
Geoff Babb — a stroke survivor — found that most wheelchairs couldn't take him where he wanted to go. So, he invented a new way to hike with friends and family: an all-terrain wheelchair.BREAKING NEWS: An ongoing clinical trial was recently expanded to include additional types of Ataxia. They are looking for individuals with SCA1, SCA2, SCA3, SCA6, SCA7, SCA8, or SCA10. This study will determine if Troriluzole, a new investigational treatment, can slow progression and treat symptoms of hereditary SCA. Learn how to join the clinical trial:
www.clarahealth.com/studies/troriluzole-sca-study
Troriluzole study for Spinocerebellar Ataxia (SCA) | Biohaven
www.clarahealth.com
The Spinocerebellar Ataxia (SCA) Study is evaluating a new investigational oral medication called troriluzole to see if it can slow progression and improve symptoms for people with hereditary ataxia.Thank you to Biohaven Pharmaceuticals for sponsoring the Annual Ataxia Conference again this year! They will also be exhibiting. Join us at the 2020 AAC to stop by and ask them about their clinical trial.
For nearly 40 years, Abilities Expo has been the go-to source for the Community of people with disabilities, their families, seniors, veterans and healthcare professionals. Every event opens your eyes to new technologies, new possibilities, new solutions and new opportunities to change your life. Read More…
We hope you can join us! For more information contact: David Henry Jr Phone #:817-739-2886 (contact by email preferred) Email: cheve11e@sbcglobal.net Facebook Group: https://www.facebook.com/Ataxiasupport Read More…
We meet every 2nd Saturday of the month. For more information or to be added to the mailing list for this group please contact: Shannon Dunphy Lazo at 202-306-2738 or shan_d@hotmail.com Join our Facebook Group: https://www.facebook.com/STL-Ataxia-143643589572491/ Read More…
Please join others with ataxia, care partners, children, family, and friends for a luncheon and fun activities. A great opportunity to meet others with ataxia, make new friends and visit old friends. Optional: bring a gift between $5-$10 for a gift exchange. Due to limited space and resources, please RSVP (up to 3 guests). We Read More…
Community support is vital to the work that NAF does. Our generous donors help us fund promising Ataxia research and offer support services to people with Ataxia. Your gift today will help us continue to deliver on our mission to improve the lives of persons affected by Ataxia.
Join for FREE today! Become a part of the community that is working together to find a cure. As a member you will receive access to the latest Ataxia news with our e-newsletter and Generations publication.
