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Our Mission

The National Ataxia Foundation is dedicated to improving the lives of persons affected by Ataxia through support, education, and research.


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2019 AAC Registration is NOW OPEN! Join us for Dr. Susan Perlman's Keynote Address, "Ataxia: A Treatable Disease". Discounted pricing available for a limited time - get it while you can!
ADA room reservation requests will be accepted beginning today at 12pm Central. Call 763-553-0020 or email with your request.

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4 days ago

National Ataxia Foundation

Ataxia science has moved forward because of people like YOU. When NAF was founded, little was known about the disease. Now there is a robust network of brilliant scientists working together to find treatments and a cure. Support the 2018 Ataxia Research Drive to keep that work going. Donate today and your donation will be matched! Text NAF to 71777 or use the donate button on this post. ...

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NAF staff went to a CFC event at the Minneapolis VA to help veterans learn about Ataxia. #AtaxiaAwareness ...

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Nov 16, 2018 11:00 am - 12:00 pm
Connecticut Ataxia Support Group Meeting

For more information contact Susan Masse: Phone #: 860-528-1875 or E-mail: Read More…

Nov 17, 2018 11:00 am - 01:00 pm
Nebraska Ataxia Support Group Meeting

Join us for lunch and a tour of the SAC Air Museum! Please RSVP to Nancy at Read More…

Nov 17, 2018 12:30 pm - 03:00 pm
Tampa Bay Ataxia Support Group Meeting

For more information contact Darlene Harris 813-431-2859 E-mail: Read More…

Nov 17, 2018 01:00 pm - 03:00 pm
Sacramento Ataxia Support Group Meeting

We meet on the third Saturday of each month. For more information or to be added to this group’s mailing list contact Teresa Bredberg at 916-215-2686 or *Location/Room Subject to change: Please contact facilitator to confirm location. Read More…

Member Stories

DeCrescenzo Family
DeCrescenzo Family

“We had time to process the diagnosis and vowed not to let it change who we are or alter our daily lives. We found a neurologist who specializes in movement disorders and Ataxia. We also joined two support groups, one at Johns Hopkins Medical Center, and the other with the Chesapeake Chapter NAF.” Read More…

Lisa Cole and daughter
Lisa Cole

“I want to help the NAF and spread awareness about Ataxia. One way I could help support NAF and also bring about awareness was by having fundraisers. I have approximately 2 fundraisers per year. Introducing the NAF to my friends and acquaintances or by telling them to go directly to the website” Read More…

Ed Schwartz
Ed Schwartz

“Ataxia is the biggest challenge I have ever had to face in my life. About twenty three years ago I began to fall down in the dark. Then after experiencing symptom s of 6 other disorders over the next 20 years, and a seizure – like reaction to the composite collection of drugs I was taking, I wrecked my truck!” Read More…

Jonathan Zilles
Jonathan Zilles

“I’m Jonathan Zilles. I was diagnosed with Friedreich’s Ataxia when I was 11 years old. Life as a kid with
Friedreich’s was pretty normal, but I fell down a lot. My symptoms started early and included hand-eye coordination issues….” Read More…


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