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Our Mission

The National Ataxia Foundation is dedicated to improving the lives of persons affected by Ataxia through support, education, and research.


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This Ataxia Advocacy panel spoke at #2019AAC to discuss global efforts to make a difference for individuals affected by Ataxia. Learn more: ...

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Mike De Rosa, a military veteran from the Special Forces (Green Berets), and Ed Brand, an advocate for ataxia awareness, share a common goal: fight for a cure for ataxia. Both men have ataxia. They marched 26.2 miles through the desert in New Mexico to honor veterans and raise money to support NAF. Watch to learn about their story and their journey.

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3 weeks ago

National Ataxia Foundation

Ataxia A Treatable Disease 62nd NAF Annual Ataxia Conference

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Apr 27, 2019 10:30 am - 02:30 pm
“Ask the Johns Hopkins Ataxia Center’s Occupational Therapist, Physical Therapist and Speech and Language Pathologist!

Please join us for a day of brief presentations followed by a significant amount of time devoted to a question and answer session on all matters relating to ataxia and speech and swallowing, physical therapy and occupational therapy. Lunch is provided. Amanda Gallagher, MA CCC-SLP, is a graduate of The University of Pittsburgh School of Read More…

Apr 27, 2019 11:00 am - 01:00 pm
Central PA Ataxia Support Group Meeting

Join us for a meeting! Entrance A, Room 1710 of the Peen State Hershey Medical Center. For more information contact: Michael Cammer at 610-873-1852 or Facebook Group: Hope to see you there! Read More…

Apr 27, 2019 12:00 pm - 03:00 pm
Tarheel Ataxia Support Group Spring Picnic!

Hamburgers and fixings will be provided, and guests are asked to bring a side dish and/or dessert.  The guest speaker will be an attorney who specializes in challenges facing people who become homebound.  Everyone is welcomed. For more information contact: Ron Smith at:  919-779-0414 or Read More…

Apr 27, 2019 02:00 pm - 04:00 pm
Orange County Ataxia Support Group Meeting

We welcome all Ataxians and friends or family members to attend! For more information contact Cindy at: or 714-329-4437 Read More…

Member Stories

DeCrescenzo Family
DeCrescenzo Family

“We had time to process the diagnosis and vowed not to let it change who we are or alter our daily lives. We found a neurologist who specializes in movement disorders and Ataxia. We also joined two support groups, one at Johns Hopkins Medical Center, and the other with the Chesapeake Chapter NAF.” Read More…

Lisa Cole and daughter
Lisa Cole

“I want to help the NAF and spread awareness about Ataxia. One way I could help support NAF and also bring about awareness was by having fundraisers. I have approximately 2 fundraisers per year. Introducing the NAF to my friends and acquaintances or by telling them to go directly to the website” Read More…

Ed Schwartz
Ed Schwartz

“Ataxia is the biggest challenge I have ever had to face in my life. About twenty three years ago I began to fall down in the dark. Then after experiencing symptom s of 6 other disorders over the next 20 years, and a seizure – like reaction to the composite collection of drugs I was taking, I wrecked my truck!” Read More…

Jonathan Zilles
Jonathan Zilles

“I’m Jonathan Zilles. I was diagnosed with Friedreich’s Ataxia when I was 11 years old. Life as a kid with
Friedreich’s was pretty normal, but I fell down a lot. My symptoms started early and included hand-eye coordination issues….” Read More…


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Community support is vital to the work that NAF does. Our generous donors help us fund promising Ataxia research and offer support services to people with Ataxia. Your gift today will help us continue to deliver on our mission to improve the lives of persons affected by ataxia.

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