Session focused on the importance of funding research and approving new treatments for rare diseases, especially those with no FDA-approved treatment options like Spinocerebellar Ataxia Read More…
The well-known science educator joins with the National Ataxia Foundation on campaign to build broad understanding of Ataxia, a progressive brain disease that impacts a Read More…
This designation is important to raising awareness of ataxia, ataxia research, and the search for a cure. Minneapolis, MN (September 20, 2024) – The National Read More…
Bill Nye opens up about his personal connection to Ataxia, a progressive hereditary disease. He lost is father to Ataxia and has many family members Read More…
NAF is hiring a full time Community Services Coordinator. This person will play a crucial role in the management and enhancement of the organization’s network Read More…
NAF Awarded a Record Number of Projects in 2024 18 Studies Funded Totaling $845k Funded! We had our most competitive year ever for Ataxia research Read More…
We’re thrilled to introduce some fresh faces joining our mission here at NAF! Meet our newest board member and the five staff who have joined Read More…
Ataxia is complex; the diverse symptoms it presents makes every individual’s experience uniquely challenging. As a person ages, determining whether changes are caused by Ataxia Read More…
MEDIA CONTACT
Stephanie Lucas
Communications Director
stephanie@ataxia.org | 763-231-2744
To request a press release to be issued by NAF, submit the information using our Press Release Request Form.
The National Ataxia Foundation (NAF) is a non-profit organization dedicated to finding a cure for Ataxia. Read our press kit to learn more information about us.
Presentation slides about Ataxia and NAF's impact on the Ataxia community.
The NFL and the NFL Players Association added "ataxia" to the concussion protocol for players who have experienced head injuries during play. This press kit offers information about concussion-related ataxia.
“As a stand-alone condition, “ataxia is a degenerative disease of the nervous system,” explains Andrew Rosen, chief executive officer of the National Ataxia Foundation. There are many types, including cerebellar ataxia, sensory ataxia, vestibular ataxia, Friedreich’s ataxia and more general forms of hereditary ataxias…”
In a Q&A, Nye talks about his family’s history with the neurological disorder and the need to improve diagnosis.
Read ArticleThe beloved ‘Science Guy’ says many of his family members suffer from a rare neurological disorder that their ancestors had in colonial times.
Bill Nye brings awareness to Ataxia and talks about his family’s connection to the disease on CNN.
The National Ataxia Foundation’s third annual Bowl for a Cure fundraiser is taking place Sunday, Sept. 29, and Mark and Leah Minkin were in studio to tell us more about it.
Check out the on-air interview with Regina McKenzie, event organizer, and Kyle Billadeau, VP of Operations and Community Services.
Check out the on-air interview with Lisa Cole, NAF Support Group Leader and event organizer, and Kyle Billadeau, VP of Operations and Community Services.
While most NIL partnerships are centered around talent promoting a brand or consumer product, four student-athletes across the country have instead used their platforms to increase awareness and help raise funds for a rare disease.
The National Ataxia Foundation partnered this semester with Mya Hooten (University of Minnesota Gymnastics, Brandon Garrison (Oklahoma State Basketball), Elise Evans (Stanford Soccer) and J.D. Urso (University of Miami Baseball) to support research and fundraising efforts for the rare neurodegenerative disease.
Friends remember Mike Andersen as quick to help — and quicker to dodge the credit. The U.S. Army veteran and owner of north Orange County-based HVAC company Veteran Air died on Oct. 3 at age 40…Nonprofit founder Cindy Furton De Mint recalled Andersen being proactive when it came to getting involved. She started Brothers on a Quest to raise awareness for ataxia, a condition three out of her sons have. She recalled how Andersen not only showed up to her foundation’s events, but was always a platinum sponsor of the National Ataxia Foundation’s annual walk.
Friends remember Mike Andersen as quick to help — and quicker to dodge the credit. The U.S. Army veteran and owner of north Orange County-based HVAC company Veteran Air died on Oct. 3 at age 40…Nonprofit founder Cindy Furton De Mint recalled Andersen being proactive when it came to getting involved. She started Brothers on a Quest to raise awareness for ataxia, a condition three out of her sons have. She recalled how Andersen not only showed up to her foundation’s events, but was always a platinum sponsor of the National Ataxia Foundation’s annual walk.
Defensive tackle Harrison Phillips has a charitable reputation, and he’s cranked that up a notch heading into the 2023 season…Another eight tickets went to the National Ataxia Foundation, a Twin Cities nonprofit assisting people with the namesake disease that affects the nervous system.
The 2nd annual National Ataxia Foundation Bowl for a Cure is scheduled to take place in Richfield aims to deliver a fun-filled bowling experience for participants of all ages on Saturday, Sept. 23. The event aims to raise awareness and support for those affected by ataxia, a rare neurological disorder affecting coordination, speech and balance.
The 66th annual convention of the National Ataxia Foundation was held in Las Vegas last week. If you are a nurse, therapist, or physician reacting to that news with, “What is Ataxia? I’ve never heard of it,” the conference theme is addressed to you: “No one should have to teach their doctor about their disease!” The theme was repeated frequently during the three-day conference by everyone from nationally known neurologists from UCLA and Johns Hopkins to TV personality Bill Nye, who has family members stricken with the genetic disorder but has himself been spared.
Weeks after the dreaded accident happened, the NFL and NFLPA found out that “the outcome in this case is not what was intended when the Protocols were drafted.” The mentioned concussion protocols will keep the players from playing if they are experiencing ataxia. The condition, according to the National Ataxia Foundation, is a rare neurological disease that affects a person’s mobility due to damage to the cerebellum. Poor muscle control leads to a lack of coordination, as well.
My name is Terrence A Reed Jr, retired U.S. Army. I also served in four combat zones (1 Afghanistan, 3 Iraq). Now that I think back, I think I first Read More…
I have a genetic disorder called Batten Disease-CLN2. Doctors don’t know why I didn’t start showing symptoms until I was in my forties- this usually only happens to very young Read More…
I was a high school baseball coach for 25 seasons and had a successful 20 years in as the Public Address announcer for all the programs football and basketball games Read More…
I was correctly diagnosed with genetic Spinal Cerebellar Ataxia in my early 30’s. Although I have been feeling the effects since my late teens (Not sure which SCA number). As Read More…
This past January I woke up with balance issues. Within a week I was using a cane. In June, my neurologist diagnosed me as having sensory ataxia. My condition seems Read More…
In medical school, one of my professors told me I had a gait disorder. I told him, “No I don’t!” Well, he was right of course. 20 years or so Read More…
MEDIA INQUIRIES – CONTACT
Stephanie Lucas
Communications Director
stephanie@ataxia.org | 763-231-2744
To request a press release to be issued by NAF, submit the information using our Press Release Request Form.
Our generous donors help us fund promising Ataxia research and offer support services to people with Ataxia. Your gift today will help us continue to deliver on our mission to improve the lives of persons affected by Ataxia.
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