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National Ataxia Foundation

Press Releases

March 6, 2019

The National Ataxia Foundation (NAF) Board of Directors and staff announced their new Executive Director, Andrew Rosen, following a nationwide search conducted by a committee of the Board of Directors. He will lead NAF’s efforts in improving the lives of persons affected by Ataxia through support, education, and research.

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November 16, 2018

Non-profit based in Minneapolis will accept resumes from qualified candidates until the position is filled, with submissions to be considered in the first screening due by December 21, 2018. Download Press Release

Sept 25, 2018

National Ataxia Foundation celebrates International Ataxia Awareness Day (IAAD) with various outreach strategies to bring awareness to this rare disease. Download Press Release

In the News

Fox 2 Now, Sept 2018

Have you ever heard of Ataxia? It is a degenerative disease of the nervous system which affects movement in the body. Read more »

WKYC, Aug 2018

150,000 people in the U.S. suffer from ataxia. Julie and Ginger speak with WKYC about their story. Read more »

Cleveland.com, Aug 2018

“The walk is a walk, obviously, but the roll is because the majority of people who are participating and have ataxia are using either walkers, canes, wheelchairs or scooters. The idea is their caregivers or family members will be walking, and they’ll be rolling.” Read more »

NIH.gov, Aug 2018

Using biochemical and structural studies, they found that in AOA1, aprataxin mutations affect protein stability, how repair proteins bind to DNA, and the rate of the chemical reaction, which is known as catalysis. The team also uncovered a dominant mutation that affects the enzymatic reaction that normally reverses DNA damage. Read more »

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