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National Ataxia Foundation

Press Releases

November 16, 2018

Non-profit based in Minneapolis will accept resumes from qualified candidates until the position is filled, with submissions to be considered in the first screening due by December 21, 2018. Download Press Release

Sept 25, 2018

National Ataxia Foundation celebrates International Ataxia Awareness Day (IAAD) with various outreach strategies to bring awareness to this rare disease. Download Press Release

In the News

Fox 2 Now, Sept 2018

Have you ever heard of Ataxia? It is a degenerative disease of the nervous system which affects movement in the body. Read more »

WKYC, Aug 2018

150,000 people in the U.S. suffer from ataxia. Julie and Ginger speak with WKYC about their story. Read more »

Cleveland.com, Aug 2018

“The walk is a walk, obviously, but the roll is because the majority of people who are participating and have ataxia are using either walkers, canes, wheelchairs or scooters. The idea is their caregivers or family members will be walking, and they’ll be rolling.” Read more »

NIH.gov, Aug 2018

Using biochemical and structural studies, they found that in AOA1, aprataxin mutations affect protein stability, how repair proteins bind to DNA, and the rate of the chemical reaction, which is known as catalysis. The team also uncovered a dominant mutation that affects the enzymatic reaction that normally reverses DNA damage. Read more »

Member Stories

DeCrescenzo Family

DeCrescenzo Family

“We had time to process the diagnosis and vowed not to let it change who we are or alter our daily lives. We found a neurologist who specializes in movement disorders and Ataxia. We also joined two support groups, one at Johns Hopkins Medical Center, and the other with the Chesapeake Chapter NAF.” Read More…

Lisa Cole and daughter

Lisa Cole

“I want to help the NAF and spread awareness about Ataxia. One way I could help support NAF and also bring about awareness was by having fundraisers. I have approximately 2 fundraisers per year. Introducing the NAF to my friends and acquaintances or by telling them to go directly to the website www.ataxia.org.” Read More…

Ed Schwartz

Ed Schwartz

“Ataxia is the biggest challenge I have ever had to face in my life. About twenty three years ago I began to fall down in the dark. Then after experiencing symptom s of 6 other disorders over the next 20 years, and a seizure – like reaction to the composite collection of drugs I was taking, I wrecked my truck!” Read More…

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