Bill Nye the Science Guy is speaking at the 2024 Annual Ataxia Conference! Register now. LEARN MORE!
NAF Awarded a Record Number of Projects in 2024 18 Studies Funded Totaling $845k Funded! We had our most competitive year ever for Ataxia research Read More…
We’re thrilled to introduce some fresh faces joining our mission here at NAF! Meet our newest board member and the five staff who have joined Read More…
Ataxia is complex; the diverse symptoms it presents makes every individual’s experience uniquely challenging. As a person ages, determining whether changes are caused by Ataxia Read More…
When Charlie Ruehl was in high school, his mom Susan recalls he would always miss the same step at the bottom of their staircase. She Read More…
Walk N’ Roll events bring together individuals, families, and communities to spread awareness and support NAF’s mission of accelerating treatments and improving the lives of Read More…
Our vision is clear: a world without Ataxia. Our mission guides the way that we pursue that vision: by accelerating the development of treatments and Read More…
The new year can be a time for reflection and anticipation. At NAF, it is especially true for a change to our Board of Directors Read More…
While some begin their careers with a specific specialization – ready to focus on making a difference in a certain field – Dr. Tetsuo Ashizawa’s Read More…
MEDIA CONTACT
Stephanie Lucas
Communications Director
stephanie@ataxia.org | 763-231-2744
To request a press release to be issued by NAF, submit the information using our Press Release Request Form.
The National Ataxia Foundation (NAF) is a non-profit organization dedicated to finding a cure for Ataxia. Read our press kit to learn more information about us.
Presentation slides about Ataxia and NAF's impact on the Ataxia community.
The NFL and the NFL Players Association added "ataxia" to the concussion protocol for players who have experienced head injuries during play. This press kit offers information about concussion-related ataxia.
Check out the on-air interview with Lisa Cole, NAF Support Group Leader and event organizer, and Kyle Billadeau, VP of Operations and Community Services.
While most NIL partnerships are centered around talent promoting a brand or consumer product, four student-athletes across the country have instead used their platforms to increase awareness and help raise funds for a rare disease.
The National Ataxia Foundation partnered this semester with Mya Hooten (University of Minnesota Gymnastics, Brandon Garrison (Oklahoma State Basketball), Elise Evans (Stanford Soccer) and J.D. Urso (University of Miami Baseball) to support research and fundraising efforts for the rare neurodegenerative disease.
Friends remember Mike Andersen as quick to help — and quicker to dodge the credit. The U.S. Army veteran and owner of north Orange County-based HVAC company Veteran Air died on Oct. 3 at age 40…Nonprofit founder Cindy Furton De Mint recalled Andersen being proactive when it came to getting involved. She started Brothers on a Quest to raise awareness for ataxia, a condition three out of her sons have. She recalled how Andersen not only showed up to her foundation’s events, but was always a platinum sponsor of the National Ataxia Foundation’s annual walk.
Friends remember Mike Andersen as quick to help — and quicker to dodge the credit. The U.S. Army veteran and owner of north Orange County-based HVAC company Veteran Air died on Oct. 3 at age 40…Nonprofit founder Cindy Furton De Mint recalled Andersen being proactive when it came to getting involved. She started Brothers on a Quest to raise awareness for ataxia, a condition three out of her sons have. She recalled how Andersen not only showed up to her foundation’s events, but was always a platinum sponsor of the National Ataxia Foundation’s annual walk.
Defensive tackle Harrison Phillips has a charitable reputation, and he’s cranked that up a notch heading into the 2023 season…Another eight tickets went to the National Ataxia Foundation, a Twin Cities nonprofit assisting people with the namesake disease that affects the nervous system.
The 2nd annual National Ataxia Foundation Bowl for a Cure is scheduled to take place in Richfield aims to deliver a fun-filled bowling experience for participants of all ages on Saturday, Sept. 23. The event aims to raise awareness and support for those affected by ataxia, a rare neurological disorder affecting coordination, speech and balance.
The 66th annual convention of the National Ataxia Foundation was held in Las Vegas last week. If you are a nurse, therapist, or physician reacting to that news with, “What is Ataxia? I’ve never heard of it,” the conference theme is addressed to you: “No one should have to teach their doctor about their disease!” The theme was repeated frequently during the three-day conference by everyone from nationally known neurologists from UCLA and Johns Hopkins to TV personality Bill Nye, who has family members stricken with the genetic disorder but has himself been spared.
Weeks after the dreaded accident happened, the NFL and NFLPA found out that “the outcome in this case is not what was intended when the Protocols were drafted.” The mentioned concussion protocols will keep the players from playing if they are experiencing ataxia. The condition, according to the National Ataxia Foundation, is a rare neurological disease that affects a person’s mobility due to damage to the cerebellum. Poor muscle control leads to a lack of coordination, as well.
When I was a teenager I remember my father used to weave a little when he walked. We played a lot of golf, and he often toppled over when he Read More…
I’m actually reluctant to tell my story as it’s far from positive. Currently my tremors are more disabling than my balance issues, which are dreadful. I suppose I noticed things Read More…
I was born in a family with SCA2 back in India. My father had the symptoms of Ataxia as well as all his five siblings. At that time, it was Read More…
I got diagnosed at 40 after always walking awkward and 2 years of being unsteady. Now I’m going to start physical therapy and apply for SSDI. It’s sad for me, Read More…
When Charlie Ruehl was in high school, his mom Susan recalls he would always miss the same step at the bottom of their staircase. She chalked it up to him Read More…
My unwanted guest arrived when I was conceived. He rode in on my DNA and set up residence in the part of my brain called the cerebellum. This is located Read More…
MEDIA INQUIRIES – CONTACT
Stephanie Lucas
Communications Director
stephanie@ataxia.org | 763-231-2744
To request a press release to be issued by NAF, submit the information using our Press Release Request Form.
Our generous donors help us fund promising Ataxia research and offer support services to people with Ataxia. Your gift today will help us continue to deliver on our mission to improve the lives of persons affected by Ataxia.
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