NAF has launched a petition on Change.org calling on the FDA to prioritize treatment options for rare diseases with urgent unmet needs, including Spinocerebellar Ataxia (SCA).
SIGN THE PETITION
Check out our latest articles to stay-up-to-date on the happenings at NAF and in the Ataxia community. Select a category to see all the blogs available in that category.
NAF is hiring a full time Regional Development Manager. This person will be responsible for generating revenue via traditional non-profit revenue streams including major gifts, Read More…
Xtreme Hike 2025: Grand Canyon South Rim 18 hikers. 1 Grand Canyon. 1 mission: A world without Ataxia. MEET THE HIKERS FULL PARTICIPANT LIST FOLLOW Read More…
Grief is universal—painful, sticky, and nonlinear. For those navigating chronic illnesses like Ataxia, grief often resurfaces repeatedly, in waves, each time a new change or Read More…
We’re excited to share that our CEO, Andrew Rosen, was recently featured on the Mission Matters podcast! In the episode, titled “Raising Awareness and Advancing Read More…
Ataxia Tips Real advice from real people living with Ataxia. SUBMIT A TIP RECENT TIPS FOLLOW #AtaxiaTipTuesday Living with Ataxia means adapting every day—and sometimes, Read More…
Disability Services and Financial Planning Information and resources on disability services and financial planning for people impacted by Ataxia. What is Disability? What are Disability Read More…
Artisans for Ataxia A virtual art auction that showcases original, handcrafted works to raise funds and awareness for Ataxia. DONATE ARTWORK HOW THE AUCTION WORKS Read More…
Guest Author: Camille Johnson Moving is one of those life events that sits at the intersection of stress and excitement, but for people living with Ataxia, Read More…
Guest Author: Ellie Martin Summer is here! I’ve put together a list of products that might be particularly useful during this time of year. Many Read More…
Our members are a community of individuals and families who are united in the fight against Ataxia. Read about their unique Ataxia journeys from their perspectives.
We invite you to join as a member to receive a new member story each month. It’s free, and you’ll be kept up-to-date on the latest developments in the Ataxia community.
Ataxia is a family problem. It affects the individual diagnosed Read More…
Hereditary Ataxia and Genetic Testing: A Family Affair Original Member Read More…
Thank you for your interest in contributing content to our website!
We do accept guest submissions for our blog; however, we have a few important guidelines. All content must be original (not published elsewhere online) and relevant to the Ataxia community. Submissions should aim to inform, support, or empower those affected by Ataxia, including patients, caregivers, researchers, and advocates.
Here is an example of a guest authored blog: https://www.ataxia.org/6-tips-to-improve-mental-health-while-living-with-ataxia/
If you have an idea you’d like to propose, please feel free to share a brief summary or outline for our team to review. We appreciate your interest in supporting our mission and community! Email us at naf@ataxia.org.
We appreciate your interest in supporting our mission and community!
We offer the following benefits to guest writers on our blog:
The following are editorial standards for blogs posted on our website:
