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A Week in the Life of NAF’s Executive Director

Photo: Andrew Rosen (right) presents a Certificate of Appreciation at the Orange County Walk N’ Roll to Cure Ataxia Author: Andrew Rosen, Executive Director The life of an Executive Director at a nonprofit like NAF is filled with many different tasks. While I enjoy coming to the office and working Read More…

United Against Ataxia

Author: Lori Shogren, Community Program and Services Director  An IAAD Like No Other September 25th is International Ataxia awareness Day (IAAD). Over the last 20 years IAAD has grown from a day to create awareness about Ataxia into a movement to fight Ataxia through awareness, advocacy, and fundraising. Today, thousands participate in IAAD through social Read More…

The Poker Walk

Author: Joel Sutherland, Development Director Many people believe there is NOTHING they do to raise funds and teach more people about Ataxia.  Wrong! Not only are they wrong, but they can be missing out on having fun as well.  Earlier this year, I invited five people to invite five others Read More…

What is the Ataxia Patient Registry?

Author: Sue Hagen, Patient and Research Services Director A Community Mobilized Toward Treatments One of the goals of a disease-specific patient organization is to provide resources that will help in the discovery of treatments for their disease. And that is absolutely true of the National Ataxia Foundation. We want treatments Read More…

Preparing for the Annual Ataxia Conference in Denver

Author: Andrew Rosen, Executive Director A Note from Andrew Hi Everyone: August in Minnesota. It is hot and humid, and thoughts have turned to my three teenagers getting ready to go back to school. I love the pace of summer – everything slows down a bit, the days are long, Read More…

NAF Participates in Global Initiative for Ataxia Research

SCA Global Launches Website The inaugural meeting of the SCA Global initiative was held at NAF’s Annual Ataxia Conference in April of 2018. Researchers from around the world created a global collaboration in clinical research efforts for Spinocerebellar Ataxias (SCA). SCA Global was created to address the obstacles that clinical Read More…

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