Blog

United Against Ataxia

Author: Lori Shogren, Community Program and Services Director  An IAAD Like No Other September 25th is International Ataxia awareness Day (IAAD). Over the last 20 years IAAD has grown from a day to create awareness about Ataxia into a movement to fight Ataxia through awareness, advocacy, and fundraising. Today, thousands participate in IAAD through social Read More…

Print Friendly, PDF & Email

The Poker Walk

Author: Joel Sutherland, Development Director Many people believe there is NOTHING they do to raise funds and teach more people about Ataxia.  Wrong! Not only are they wrong, but they can be missing out on having fun as well.  Earlier this year, I invited five people to invite five others Read More…

Print Friendly, PDF & Email

What is the Ataxia Patient Registry?

Author: Sue Hagen, Patient and Research Services Director A Community Mobilized Toward Treatments One of the goals of a disease-specific patient organization is to provide resources that will help in the discovery of treatments for their disease. And that is absolutely true of the National Ataxia Foundation. We want treatments Read More…

Print Friendly, PDF & Email

Greater Atlanta Support Group Summer Update

Author: Greg Rooks, NAF Support Group Leader The Greater Atlanta Ataxia Support Group held its annual picnic at Lake Lanier on June 15th. We had a wonderful gathering of approximately 30 individuals. The weather could not have had better. The support group provided grilled hot dogs and hamburgers. Members brought Read More…

Print Friendly, PDF & Email

Preparing for the Annual Ataxia Conference in Denver

Author: Andrew Rosen, Executive Director A Note from Andrew Hi Everyone: August in Minnesota. It is hot and humid, and thoughts have turned to my three teenagers getting ready to go back to school. I love the pace of summer – everything slows down a bit, the days are long, Read More…

Print Friendly, PDF & Email

St. Louis Ataxia Support Group Meeting

Author: Shannon Dunphy Lazo, NAF Support Group Leader Our June 8th meeting was held at the Center for Advanced Medicine. Melinda McAliney, our guest speaker, started us off. She introduced herself and explained her goals. Melinda is from Vario Philanthropy, and she wants to explore our support group and provide Read More…

Print Friendly, PDF & Email

Want to be a guest blogger?

Submit your name and blog topic. We’ll follow up with submission instructions.

Print Friendly, PDF & Email
Translate »