My name is Terrence A Reed Jr, retired U.S. Army. I also served in four combat zones (1 Afghanistan, 3 Iraq). Now that I think back, I think I first noticed while still serving on active duty on Schofield barracks in Hawaii. We did a lot of physical training, and Read More…
Guest Author: Ellie Martin Over the years, technology has become a widely used tool for therapeutic programs and rehabilitation research. By replicating real-life scenarios in a controlled environment, simulation training offers a safe and effective way to assess and improve balance skills. The advances in technology have become a good Read More…
I have a genetic disorder called Batten Disease-CLN2. Doctors don’t know why I didn’t start showing symptoms until I was in my forties- this usually only happens to very young children. There is no cure but there is a treatment for the type of Batten Disease I have. I had Read More…
I was a high school baseball coach for 25 seasons and had a successful 20 years in as the Public Address announcer for all the programs football and basketball games – both boys and girls. About five years ago, I sold my lucrative Financial Planning practice of 33 years and Read More…
Guest Author: Ellie Martin Tai Chi is an ancient Chinese martial art that has been around for thousands of years and has evolved into a practice focused on enhancing balance, harmony, and well-being. Tai Chi consists of a series of slow, flowing movements that are performed with deep breathing and Read More…
I was correctly diagnosed with genetic Spinal Cerebellar Ataxia in my early 30’s. Although I have been feeling the effects since my late teens (Not sure which SCA number). As time passes, it’s becoming increasingly difficult to perform routine tasks. My legs and hands have become increasingly weaker. I have Read More…
This past January I woke up with balance issues. Within a week I was using a cane. In June, my neurologist diagnosed me as having sensory ataxia. My condition seems to have progressed rather rapidly! During the past seven months, I have struggled when standing and walking. When I sit Read More…
Guest Author: Karen Winston Exploring the great outdoors has never been more accessible! Karen shares a fantastic opportunity that’s perfect for those eager to immerse themselves in nature. Learn about the free all-terrain wheelchair program available in many state parks across the United States. These specially designed Action Trackchairs are Read More…
Guest Author: Ellie Martin Ellie, who has Cerebellar Ataxia, tried out the BoBo Core Training Balance Board and shared her experience. The interactive balance board pairs with a versatile app to offer an experience that is different from traditional exercise equipment. Check out her review of this unique fitness tool… Read More…
In medical school, one of my professors told me I had a gait disorder. I told him, “No I don’t!” Well, he was right of course. 20 years or so later I found myself unable to run, and gradually noticed weakness in my quads and legs, and eventually a very Read More…
Our generous donors help us fund promising Ataxia research and offer support services to people with Ataxia. Your gift today will help us continue to deliver on our mission to improve the lives of persons affected by Ataxia.
Join for FREE today! Become a part of the community that is working together to find a cure. As a member you will receive access to the latest Ataxia news with our e-newsletter and Generations publication.
