This is a periodic newsletter for Ataxia clinicians to keep them up-to-date on patient resources and other medical news. To begin receiving this newsletter, join as a professional member of NAF at www.ataxia.org/JoinNAF. Hello from NAF’s Clinical Services Team Happy summer, all! I am pleased to present the latest edition Read More…
Bill Nye opens up about his personal connection to Ataxia, a progressive hereditary disease. He lost is father to Ataxia and has many family members who are affected, including his sister and brother. Bill Nye will share a series of 4 short videos to his 23+ million followers on social Read More…
I’m a wheelchair user and have been for the last 10 years. I was diagnosed with Acute Myeloid Leukemia in 2010, my doctor identified me as having the flit 3 gene which makes leukemia tough to beat without a bone marrow transplant. In the beginning of 2012 I had my Read More…
My start with this condition began at the age of 16, when I started to lose my balance and got a drunken gait. Over time, I lost my reflexes, my muscle strength began to decrease, and my muscles atrophied. The family doctor sent me to an ENT consultation, then at Read More…
Guest Author: Ellie Martin For those who participate in physical therapy, you might be aware that balance exercises are very helpful for those of us with Ataxia. Mayo Clinic says that balance exercises are especially important because they can help prevent falls and keep you independent. It can get boring Read More…
Hi! My name is Sandy Kaptain. About 20 years ago I noticed I was having falls. Just walking around the neighborhood but also when on vacation when there were wet leaves, on rocks, and then I started keeping track of them on a calendar for 3 years. I saw that Read More…
Join NAF and our partners at FARA in advocating for Ataxia and rare disease related policies during our annual United Against Ataxia Hill Day on September 25th! Advocates will have the opportunity to attend virtual meeting with members of congress and their staffers to tell their stories and relay the Read More…
I have Spinocerebellar Ataxia type 2. Also known as SCA2. I was 47 years old when I was diagnosed. I already knew that I had it, because I have a family history of it. My mom had it, her mother had it, my mom’s sisters and one brother all had Read More…
Guest Author: Liam Dougherty Navigating the world of accessible products can be a daunting journey, filled with trial and error. In this article, Liam shares his personal experiences and the philosophy behind founding Day Undefined, a marketplace designed to help disabled individuals find the perfect products tailored to their unique Read More…
Guest Author: Linda Chase, Able Hire In today’s technology-driven world, the importance of tech in career development for individuals with disabilities, such as Ataxia, cannot be overstated. This article delves into various technologies that can be utilized to enhance professional opportunities and achieve career success. It provides insights into how Read More…
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