This designation is important to raising awareness of ataxia, ataxia research, and the search for a cure.
Minneapolis, MN (September 20, 2024) –
The National Ataxia Foundation (NAF) and the Friedreich’s Ataxia Research Alliance (FARA) are pleased to announce that Congress has once again designated September 25 as National Ataxia Awareness Day. This annual recognition helps raise awareness of ataxia, a group of degenerative neurological disorders that affect balance, coordination, and speech.
The resolution (S.Res. 794), sponsored by Senator Hyde-Smith (MS) and cosponsored by Senators Stabenow (MI), Moore Capito (WV), and Murphy (CT), will help break down barriers faced by individuals and families living with ataxia, a rare condition that is often unfamiliar to many. By increasing public awareness, FARA and NAF aim to accelerate research efforts and development of effective treatments.
About NAF
Ataxia is a rare neurological disease affecting tens of thousands of people in the US and many thousands more around the world. It is progressive, affecting a person’s ability to walk, talk, and use fine motor skills. Founded in 1957, NAF is a nonprofit organization established to help persons with Ataxia and their families. The Foundation’s vision of a world without Ataxia will be accomplished through its primary programs of funding Ataxia research, providing vital programs and services for Ataxia families, and partnering with pharmaceutical companies in the search for treatments and a cure. NAF works closely with the world’s leading Ataxia researchers, promoting exchanges of ideas and innovation in Ataxia discovery.
About FARA
The Friedreich’s Ataxia Research Alliance (FARA) is a non-profit organization dedicated to curing Friedreich’s ataxia (FA) through research. FARA grants and activities provide support for basic and translational FA research, pharmaceutical/biotech drug development, clinical trials, and scientific conferences. FARA is also dedicated to bringing the patient voice to the drug development process by connecting FA families with the scientific community to create worldwide exchanges of information that drive medical advances. For more information about FARA, visit curefa.org.
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