Academic Research Community

Resources Available

The Clinical Research Consortium for the Study of Cerebellar Ataxia (CRC-SCA) continues to collect longitudinal data and biospecimens for research participants who have a confirmed diagnosis of SCA 1, 2, 3, 6, 7, 8 or 10.  The following data is available to the Academic Research Community by following the process below. 

Longitudinal Data

Clinical Outcome Measures

  • Medical History
  • Concomitant Medications
  • Therapy Review
  • Physical Examination and Neurological Exam
  • Physician Global Impression
  • SARA score
  • CCAS
  • PHQ-9
  • 9-hole Peg Test
  • Timed 25-Foot Walk
  • EQ-5D
  • Functional Stage Estimation
  • FAADL
  • FSS
  • Falls Questionnaire

How to Request CRC-SCA Data

1. Review the policy and follow the guidelines. 

>

2. Fill out Appendix 1 from the guidelines and attach your scientific proposal. 

>

3. Send Appendix 1 and your proposal to Dr. Sheng-Han Kuo.

How to request CRC-SCA Biosamples

Please follow the instructions available here and concurrently contact Dr. Sheng-Han Kuo.

Print Friendly, PDF & Email
Translate »

Your gift to Ataxia research DOUBLED through December 31st

Contributions to the Annual Research Drive help NAF fund the very best Ataxia research. An anonymous donor will match every dollar donated during this campaign, up to $50,000.

Your donation means more Ataxia research! Thank you for supporting NAF as we seek effective treatments for Ataxia.

Thank you so much!