Webinar
Care Partners: Support for Spouses and Partners
Zoom WebinarCENTRAL TIME ZONE In this session, you'll gain insights from a panel of caregivers who share their stories, challenges, and strategies for managing the complexities of rare disease care. Discover
Research and Treatment Development for SCA5
Zoom WebinarCENTRAL TIME Adam Avery, PhD will teach us how SCA5 is studied and give an overview of the current state of research and drug development for the disease. Register for
NAF Science Showcase: Dr. Maimuna Paul
Zoom WebinarCENTRAL TIME ZONE Explore a past NAF research grant awardee's funded study, gaining scientific insights about their Ataxia research. Dr. Maimuna Paul will present the research, "Molecular and cellular mechanisms
All About SCA14
Zoom WebinarCENTRAL TIME ZONE During this webinar, two experts will join us to take a look at the causes and symptoms of Spinocerebellar Ataxia Type 14 (SCA14), the typical diagnostic journey
Ask the Ataxia Expert
Zoom WebinarCENTRAL TIME Dr. Susan Perlman of UCLA Medical Center in Los Angeles joins NAF to offer a Q&A session for the Ataxia community. This is an informal discussion-style webinar without
PrepRARE: CRC-SCA Natural History Study Information Panel
Zoom WebinarCENTRAL TIME ZONE Have you ever wondered what it is like to participate in an Ataxia natural history study? This type of research study collects data about how specific types
NAF Science Showcase: Dr. Hannah Shorrock
Zoom WebinarCENTRAL TIME ZONE Explore a past NAF research grant awardee's funded study, gaining scientific insights about their Ataxia research. Dr. Hannah Shorrock will present the research, "A CAG expansion selective small molecule screen for multiple spinocerebellar ataxias." Register for Webinar: Click here. Research Lay Summary: The spinocerebellar ataxias (SCAs) are a group of dominantly inherited neurodegenerative
All About Ataxia Caused by Stroke
Zoom WebinarCENTRAL TIME ZONE During this webinar, an expert will join us to take a look at ataxia caused by stroke, including the typical diagnostic journey for those affected, what to
Chair Yoga for Ataxia
Zoom WebinarCENTRAL TIME ZONE For people affected by Ataxia it can be hard to stay mobile when challenged with balance and other neurological issues. This is why Sacred Mountain Yoga is
All About SYNE1 Ataxia
Zoom WebinarCENTRAL TIME ZONE During this webinar, an expert will join us to take a look at the causes and symptoms of SYNE1 Ataxia, the typical diagnostic journey for those affected,
