Calendar of Events
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3 events,
Ataxia Resources and Discussion Support Group
Ataxia Resources and Discussion Support Group
EASTERN TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is
Johns Hopkins Lets Move Virtual Event
Johns Hopkins Lets Move Virtual Event
We would like to invite you to join our next virtual series of the Let's Move exercise and wellness program facilitated by our neurological specialized physical therapists from Johns Hopkins.
Johns Hopkins Lets Move Virtual Event
Johns Hopkins Lets Move Virtual Event
We would like to invite you to join our next virtual series of the Let's Move exercise and wellness program facilitated by our neurological specialized physical therapists from Johns Hopkins.
1 event,
55+ (Just us Ataxians) Support Group Meeting
55+ (Just us Ataxians) Support Group Meeting
EASTERN TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is
1 event,
Under 30 with Ataxia Support Group Meeting
Under 30 with Ataxia Support Group Meeting
CENTRAL TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion
1 event,
Coffee Chat for Parents
Coffee Chat for Parents
CENTRAL TIME ZONE Navigating the challenges of parenting children with Ataxia can often feel isolating, but you're not alone. We are thrilled to offer this series of monthly virtual Coffee
3 events,
North Carolina Triangle Support Group
North Carolina Triangle Support Group
EASTERN TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is
Global Support Group (Hope for Ataxia) Meeting – 1st Session
Global Support Group (Hope for Ataxia) Meeting – 1st Session
EASTERN TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information Zoom Link: https://us02web.zoom.us/j/86545261873?pwd=dFBNZkt5U1BIdU40S0dFRHRHTlN4UT09 Meeting ID:
Global Support Group (Hope for Ataxia) Meeting -2nd Session
Global Support Group (Hope for Ataxia) Meeting -2nd Session
EASTERN TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information Zoom Link: https://us02web.zoom.us/j/86444316165?pwd=MktPdjIzcnFFTmxwT0NKbTlFV1JWdz09 Meeting ID:
4 events,
Greater Jax Area Support Group Meeting
Greater Jax Area Support Group Meeting
EASTERN TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is
Orange County Support Group Meeting
Orange County Support Group Meeting
PACIFIC TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is
Ataxia Alliance of Northwest Florida
Ataxia Alliance of Northwest Florida
CENTRAL TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is
Indianapolis National Ataxia Community (I-NAC) Support Group Meeting
Indianapolis National Ataxia Community (I-NAC) Support Group Meeting
EASTERN TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is
0 events,
5 events,
Ataxia Resources and Discussions
Ataxia Resources and Discussions
EASTERN TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information Topic: Tech Tips, celebrating birthdays,
Rhode Island Support Group Meeting
Rhode Island Support Group Meeting
EASTERN TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information For meeting access information contact:
Johns Hopkins Lets Move Virtual Event
Johns Hopkins Lets Move Virtual Event
We would like to invite you to join our next virtual series of the Let's Move exercise and wellness program facilitated by our neurological specialized physical therapists from Johns Hopkins. Description of program: · A virtual group exercise program focusing primarily on balance and movement coordination. (Exercises will be primarily in sitting with options for standing tasks pending
Louisiana Support Group Meeting
Louisiana Support Group Meeting
CENTRAL TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information Zoom Link: Join Zoom Meeting
Boston Support Group Meeting
Boston Support Group Meeting
EASTERN TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information We welcome anyone to these
1 event,
Johns Hopkins Support Group Meeting
Johns Hopkins Support Group Meeting
EASTERN TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is
1 event,
Northwest Washington Yeitis Support Group
Northwest Washington Yeitis Support Group
PACIFIC TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is
2 events,
Western Michigan Support Group
Western Michigan Support Group
EASTERN TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information; Join Zoom Meeting https://us06web.zoom.us/j/85003567488?pwd=0QCaKjfMmnSAnaKFx5omrX6EdEvo73.1 Meeting
The Dakotas Support Group
The Dakotas Support Group
CENTRAL TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information We welcome those anywhere from
3 events,
Ask the Ataxia Expert
Ask the Ataxia Expert
CENTRAL TIME Dr. Susan Perlman of UCLA Medical Center in Los Angeles joins NAF to offer a Q&A session for the Ataxia community. This is an informal discussion-style webinar without a set topic. You will have the opportunity to ask any questions you have related to Ataxia. Register Now: https://us02web.zoom.us/webinar/register/WN_0f85S8NQTViH1ecKCDdy-A Please do not submit questions
Global Support Group (Hope for Ataxia) 1st Session
Global Support Group (Hope for Ataxia) 1st Session
EASTERN TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information Zoom Link: https://us02web.zoom.us/j/86545261873?pwd=dFBNZkt5U1BIdU40S0dFRHRHTlN4UT09 Meeting ID:
Global Support Group (Hope for Ataxia) 2nd Session
Global Support Group (Hope for Ataxia) 2nd Session
EASTERN TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information Zoom Link: https://us02web.zoom.us/j/86444316165?pwd=MktPdjIzcnFFTmxwT0NKbTlFV1JWdz09 Meeting ID:
8 events,
Los Angeles Support Group Meeting
Los Angeles Support Group Meeting
PACIFIC TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information ACC and Expo Recap- more
Greater Houston Area Support Group
Greater Houston Area Support Group
CENTRAL TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information Zoom Link: https://us06web.zoom.us/j/4119867191?pwd=mc73FgpxcpKiYkHQS3hfaFGC6FYc0m.1 411 986
North Texas Support Group Meeting
North Texas Support Group Meeting
CENTRAL TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information Zoom: Join Zoom Meeting https://us06web.zoom.us/j/82397928853?pwd=wQGFiMeYWTHnSlvIaBr6JuQaJR3arU.1
St. Louis Support Group Meeting
St. Louis Support Group Meeting
CENTRAL TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information We meet at 10:30AM-12:30PM on
Johns Hopkins Annual In-Person Ataxia Wellness Event
Johns Hopkins Annual In-Person Ataxia Wellness Event
Please join us for our annual in-person Ataxia Wellness Event that will be focused on mental health and ataxia. "Coping with Ataxia from a Mental Health Perspective" Please RSVP no later than April 5. You are allowed to bring one guest (care partner) A box lunch will be served Location: The Meeting House in Columbia
Treasure Coast Support Group
Treasure Coast Support Group
EASTERN TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information Register in advance for this
Kansas City Support Group Meeting
Kansas City Support Group Meeting
CENTRAL TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information Meetings are on the second
Indianapolis National Ataxia Community (I-NAC) Support Group Meeting
Indianapolis National Ataxia Community (I-NAC) Support Group Meeting
EASTERN TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information This is I-NAC first support
1 event,
Central Ohio Support Group
Central Ohio Support Group
EASTERN TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is
2 events,
Ataxia Resources and Discussion Support Group Meeting
Ataxia Resources and Discussion Support Group Meeting
EASTERN TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information Topic: Any Topic Host: Linda
Johns Hopkins Lets Move Virtual Event
Johns Hopkins Lets Move Virtual Event
We would like to invite you to join our next virtual series of the Let's Move exercise and wellness program facilitated by our neurological specialized physical therapists from Johns Hopkins. Description of program: · A virtual group exercise program focusing primarily on balance and movement coordination. (Exercises will be primarily in sitting with options for standing tasks pending
1 event,
All About SCA50
All About SCA50
CENTRAL TIME ZONE During this webinar, an expert will join us to take a look at the causes and symptoms of SCA50, the typical diagnostic journey for those affected, what to expect for clinical care, and an overview of current research into the disease. Register: Click here. Other Webinars NAF hosts educational webinars about Ataxia presented
4 events,
Western NY Support Group Meeting
Western NY Support Group Meeting
EASTERN TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information Meetings are on the third
Parents of Kids with Ataxia Support Group
Parents of Kids with Ataxia Support Group
EASTERN TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information Location: Zoom (link below) https://us02web.zoom.us/j/82112138698?pwd=g7Pl5TBNi3Hn4Wa1oTKt69SizyC2cX.1
Under 30 with Ataxia Support Group Meeting
Under 30 with Ataxia Support Group Meeting
CENTRAL TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information Our support group meetings
Canada Support Group
Canada Support Group
EASTERN TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information We meet at 7pm every
2 events,
Richmond Support Group Meeting
Richmond Support Group Meeting
EASTERN TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is
Johns Hopkins: The Importance of Monitoring Ataxia Symptoms
Johns Hopkins: The Importance of Monitoring Ataxia Symptoms
"Why it's important for patients to monitor their symptoms" Monday, April 7 @ 1:30 pm ET via zoom Sai Sachin Divakaruni, M.D., Ph.D., is a Clinical and Research
4 events,
Connecticut Support Group Meeting
Connecticut Support Group Meeting
EASTERN TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information We meet on the third
All About Botox Treatment for Movement Disorders
All About Botox Treatment for Movement Disorders
CENTRAL TIME ZONE Join our upcoming webinar to explore the benefits and considerations of using Botox for managing symptoms like tremor, dystonia, spasticity, and neuropathic pain. This session will cover everything from the basics of Botox, how it works, and who might be a candidate, to the potential side effects and how to find experienced
Global Support Group (Hope for Ataxia) 1st Session
Global Support Group (Hope for Ataxia) 1st Session
EASTERN TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information Zoom Link: https://us02web.zoom.us/j/86545261873?pwd=dFBNZkt5U1BIdU40S0dFRHRHTlN4UT09 Meeting ID:
Global Support Group (Hope for Ataxia) 2nd Session
Global Support Group (Hope for Ataxia) 2nd Session
EASTERN TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information Zoom Link: https://us02web.zoom.us/j/86444316165?pwd=MktPdjIzcnFFTmxwT0NKbTlFV1JWdz09 Meeting ID:
6 events,
Twin Cities Support Group
Twin Cities Support Group
CENTRAL TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is
St. Louis Coffee & Conversation Social Meeting
St. Louis Coffee & Conversation Social Meeting
CENTRAL TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is
Northern California Support Group Meeting
Northern California Support Group Meeting
PACIFIC TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is
Wisconsin Ataxia Warrior Support Group Meeting
Wisconsin Ataxia Warrior Support Group Meeting
CENTRAL TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is
Boston Support Group Meeting
Boston Support Group Meeting
EASTERN TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is
Indianapolis National Ataxia Community (I-NAC) Support Group Meeting
Indianapolis National Ataxia Community (I-NAC) Support Group Meeting
EASTERN TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is
1 event,
Northeast Ohio Support Group Meeting
Northeast Ohio Support Group Meeting
EASTERN TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information Zoom Link: https://us05web.zoom.us/j/84759022283... Meeting ID:
1 event,
Ataxia Resources and Discussion Support Group Meeting
Ataxia Resources and Discussion Support Group Meeting
EASTERN TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information Topic: Chair Yoga and Mobility
0 events,
0 events,
2 events,
Colorado Support Group Meeting
Colorado Support Group Meeting
MOUNTAIN TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information https://cuboulder.zoom.us/my/allisonhilger Contact Information Allison
Lower Michigan Support Group
Lower Michigan Support Group
EASTERN TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information Meetings are on the fourth
5 events,
Philadelphia Support Group Meeting
Philadelphia Support Group Meeting
EASTERN TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information Please reach out to the
Western North Carolina Support Group Meeting
Western North Carolina Support Group Meeting
EASTERN TIME Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information Zoom Link: https://us02web.zoom.us/j/86297331619?pwd=NEI4OHhxM1JVZ0hseWg1TmR5b2o4UT09 Meeting ID: 862
Chicago Support Group Meeting
Chicago Support Group Meeting
CENTRAL TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information Contact the Support Group Leader
Global Support Group (Hope for Ataxia) 1st Session
Global Support Group (Hope for Ataxia) 1st Session
EASTERN TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information Zoom Link: https://us02web.zoom.us/j/86545261873?pwd=dFBNZkt5U1BIdU40S0dFRHRHTlN4UT09 Meeting ID:
Global Support Group (Hope for Ataxia) 2nd Session
Global Support Group (Hope for Ataxia) 2nd Session
EASTERN TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information Zoom Link: https://us02web.zoom.us/j/86444316165?pwd=MktPdjIzcnFFTmxwT0NKbTlFV1JWdz09 Meeting ID:
4 events,
Central Pennsylvania Support Group Meeting
Central Pennsylvania Support Group Meeting
EASTERN TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information Location: The meeting will
Alabama Support Group Meeting
Alabama Support Group Meeting
CENTRAL TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information:TBD Location: In person- Covenant Presbyterian
Central Texas Support Group Meeting
Central Texas Support Group Meeting
CENTRAL TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information Zoom Link: https://us06web.zoom.us/j/86961200049?pwd=y1w0XvWXIBtxb11dWPqVzNf03ebEpP.1 Meeting ID:
Indianapolis National Ataxia Community (I-NAC) Support Group Meeting
Indianapolis National Ataxia Community (I-NAC) Support Group Meeting
EASTERN TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information This is I-NAC first support
0 events,
2 events,
All About SCA28 and SPAX5
All About SCA28 and SPAX5
CENTRAL TIME ZONE During this webinar, an expert will join us to take a look at the causes and symptoms of Spinocerebellar Ataxia type 28 (SCA28) and Autosomal Recessive Spastic Ataxia type 5 (SPAX5), the typical diagnostic journey for those affected, and what to expect for clinical care. Anyone with symptoms caused by mutations in
Ataxia Resources and Discussion Support Group Meeting
Ataxia Resources and Discussion Support Group Meeting
EASTERN TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led by our volunteer Support Group Leaders, who are looking forward to helping you connect with others. Meeting Information Topic: Travel Adventures Host: Group
0 events,
0 events,
1 event,
Coffee Chat for Parents
Coffee Chat for Parents
CENTRAL TIME ZONE Navigating the challenges of parenting children with Ataxia can often feel isolating, but you're not alone. We are thrilled to offer this series of monthly virtual Coffee Chats, designed specifically for parents of school-aged children and younger. Join us if you are seeking support, resources, or answers to non-patient specific questions. These
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