Fact Sheets - National Ataxia Foundation

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Fact Sheets

Printable resources to gain knowledge or bring to your care provider.

GENERAL – ALL TYPES

BY ATAXIA TYPE

BY LANGUAGE

ARTICLES OR BOOKS

The National Ataxia Foundation provides these downloadable Fact Sheets for free. Click the icon or title to download the fact sheet.

General Fact Sheets for All Types

Newly Diagnosed Resources

If you were recently diagnosed and don't know where to start, this fact sheet will provide you with things to do next.

Ataxia Brochure

Information about Ataxia and NAF.

Ataxia Card

Printable business card explaining Ataxia symptoms.

Ataxia Classification

Frequently asked questions about Ataxia classification

Ataxia Fact Sheet

Frequently asked questions about Ataxia

Coordinative Physiotherapy for Patients with Ataxia

Directions and diagrams for an exercise program for those with Ataxia.

Gene Testing for Hereditary Ataxia

Information about genetic testing for Ataxia.

Managing Speech & Swallowing Impairments in Ataxia

How Ataxia affects speech and swallowing, and find tips and tools to improve safety and communication.

Medications for Ataxia Symptoms

Educational discussion of medications for Ataxia symptoms.

Preparing for a Visit with the Neurologist

Tips about how to have a productive neurologist appointment.

Rare Disease Medication FAQs

A look at how to access a new medication for a rare disease after it has been approved by the FDA.

This resource was created by FARA.

Urinary Symptoms in Ataxic Disorders

A clear overview of how Ataxia affects bladder function, common urinary symptoms, and practical tips for managing them.

Vision and the Brain: How Ataxia Affects Sight

A look at how Ataxia impacts vision.

By Ataxia Type

Ataxia with Oculomotor Apraxia (AOA)

Fact sheet about Ataxia with Oculomotor Apraxia (AOA).

Ataxia Caused by Stroke

Fact sheet about ataxia caused by stroke.

Ataxia Caused by Traumatic Brain Injury

Fact sheet about ataxia caused by TBI.

Autosomal Recessive Spastic Ataxia of Charlevoix-Saguenay (ARSACS)

Fact sheet about Autosomal Recessive Spastic Ataxia of Charlevoix-Saguenay (ARSACS) .

Autosomal Recessive Spastic Ataxia Type 5 (SPAX5)

Fact sheet about Autosomal Recessive Spastic Ataxia Type 5 (SPAX5) .

Autosomal Recessive Spinocerebellar Ataxia 20 (SCAR20)

Fact sheet about Autosomal Recessive Spinocerebellar Ataxia 20 (SCAR20) .

Cerebellar Ataxia with Neuropathy and Vestibular Areflexia Syndrome (CANVAS)

Fact sheet about CANVAS.

Episodic Ataxia

Fact sheet about Episodic Ataxia.

Friedreich's Ataxia

Fact sheet about FA.

FXTAS

Fact sheet about FXTAS, provided by the National Fragile X Foundation

Immune-Mediated Ataxia

Fact sheet about Immune-Mediated Ataxia.

Multiple System Atrophy Cerebellar Typ (MSA-C)

Fact sheet about MSA-C.

Paraneoplastic Cerebellar Degeneration

Fact sheet about Paraneoplastic Cerebellar Degeneration.

Spastic Paraplegia Type 7 (SPG7)

Fact sheet about SPG7.

Spinocerebellar Ataxia Type 1 (SCA1)

Fact sheet about SCA1.

Spinocerebellar Ataxia Type 2 (SCA2)

Fact sheet about SCA2.

Spinocerebellar Ataxia Type 3 (SCA3)

Fact sheet about SCA3, also known as Machado-Joseph Disease.

Spinocerebellar Ataxia Type 4 (SCA4)

Fact sheet about SCA4.

Spinocerebellar Ataxia Type 5 (SCA5)

Fact sheet about SCA5.

Spinocerebellar Ataxia Type 6 (SCA6)

Fact sheet about SCA6.

Spinocerebellar Ataxia Type 7 (SCA7)

Fact sheet about SCA7.

Spinocerebellar Ataxia Type 8 (SCA8)

Fact sheet about SCA8.

Spinocerebellar Ataxia Type 10 (SCA10)

Fact sheet about SCA10.

Spinocerebellar Ataxia Type 12 (SCA12)

Fact sheet about SCA10.

Spinocerebellar Ataxia Type 14 (SCA14)

Fact sheet about SCA14.

Spinocerebellar Ataxia Type 27B (SCA27B)

Fact sheet about SCA27B.

Spinocerebellar Ataxia Type 28 (SCA28)

Fact sheet about SCA28.

Spinocerebellar Ataxia Type 35 (SCA35)

Fact sheet about SCA35.

Spinocerebellar Type 50 (SCA50)

Fact sheet about SCA50.

Sporadic Ataxia And Multiple System Atrophy

Fact sheet about Sporadic Ataxia and MSA

SYNE1 Ataxia

Fact sheet about SYNE1 Ataxia, also known as Autosomal Recessive Spinocerebellar Ataxia type 8 (SCAR8), Autosomal Recessive Cerebellar Ataxia type 1 (ARCA1), SYNE1 Related Autosomal Recessive Ataxia (SYNE1 Ataxia), or Autosomal Recessive Ataxia, Beauce type.

X-Linked Cerebellar Ataxias

Fact sheet about X-linked Cerebellar Ataxias (XLCA)

By Language

Spanish - Ataxia Fact Sheet

Las Preguntas Más Frecuentes Acerca De La Ataxia

Topical Fact Sheets

Cognition and Emotion in Cerebellar Disorders

Frequently asked questions about cognition and emotion in cerebellar disorders.

Financial Planning

Financial planning questions and resources.

Sleep Difficulties in Patients With Cerebellar Degeneration

Information about sleep disorders and Ataxia.

Spinocerebellar Ataxia: Making an Informed Choice About Genetic Testing

This booklet reviews information about dominantly inherited forms of Spinocerebellar Ataxia (SCA) and genetic testing for SCAs.

Printable Articles or Books

Children with Ataxia (2011)

Children with Ataxia

Children with Ataxia, 2nd Ed. (2015)

Children with Ataxia 2nd. ed.

Nutrition and the Patient with Progressive Central Nervous System Disease

A manual for patients and their families.

Understanding Genetics

Information about genes, DNA and cause of genetic disease.

Get More Information

Become a Member

NAF offers monthly newsletters and educational webinars to our members. NAF membership includes the following:

Persons with heredity or Sporadic Ataxia, their families, and friends.
Medical and scientific community involved in Ataxia research.

Become a member for free: www.ataxia.org/JoinNAF

Join a Support Group

Ataxia support groups are a great source of information at the local level. They are also opportunities to network and learn from peers. Feel free to reach out directly to a support group leader in your area.

www.ataxia.org/support-groups

Other Educational Resources

Ataxia webinars: www.ataxia.org/webinars

PrepRARE Clinical Trial Readiness Education: www.ataxia.org/PrepRARE

Contact Us

Email naf@ataxia.org or call 763-553-0020

Send mail to:

National Ataxia Foundation
PO Box 27986
Golden Valley, MN 55427

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