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The 2025 Annual Ataxia Conference is in Las Vegas! Will you join us in March?  LEARN MORE!

Ingrid ONeal

I have Multiple Sclerosis and Ataxia affects my walking. I never thought of Ataxia as a separate thing, but a friend has it as well. The neurologist at the hospital notice it as well as my MS Specialist.

When Were You Diagnosed? Which Type (If Known)?

2021. Not sure what type.

How Has Ataxia Impacted Your Life?

It affects my walking. I can’t run or walk long distances.

What is One Thing You’d Like the People to Know About Ataxia?

It is a part of other diagnoses.

Share Your Advice – How Can Others Support Someone with Ataxia?

Tolerate their walking slow.

What is Your Ataxia Story?

As an organization dedicated to improving the lives of those affected by Ataxia, we believe that each story has the power to inspire, connect, and empower others. We invite you to share your personal Ataxia journey with us.

Are you here to read the personal stories, but haven’t yet joined as a member? We hope you find comfort in reading about the experiences of others on their Ataxia journey. We invite you to join as a member to receive a new member story each month. It’s free, and you’ll be kept up-to-date on the latest developments in the Ataxia community. 

Recent Member Stories

Terry Jr

My name is Terrence A Reed Jr, retired U.S. Army. I also served in four combat zones (1 Afghanistan, 3 Iraq). Now that I think Read More…

Tammie Hill

I have a genetic disorder called Batten Disease-CLN2. Doctors don’t know why I didn’t start showing symptoms until I was in my forties- this usually Read More…

David Brown

I was a high school baseball coach for 25 seasons and had a successful 20 years in as the Public Address announcer for all the Read More…

Patrick Schmoll

I was correctly diagnosed with genetic Spinal Cerebellar Ataxia in my early 30’s. Although I have been feeling the effects since my late teens (Not Read More…

Larry

This past January I woke up with balance issues. Within a week I was using a cane. In June, my neurologist diagnosed me as having Read More…

Amanda Ryder

In medical school, one of my professors told me I had a gait disorder. I told him, “No I don’t!” Well, he was right of Read More…

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