September 25th

International Ataxia Awareness Day


International Ataxia Awareness Day (IAAD) is on September 25th of each year. It is a coordinated effort from individuals and Ataxia organizations around the world to help shed light on this rare disease.

What better way to get involved in the fight against Ataxia than IAAD? NAF is committed to leading the way on this outreach effort – but we need your help! We encourage individuals and disease organizations to join us by planning events and/or awareness campaigns for IAAD. Read more below.


Organize or Join an Activity

Attention Ataxia Fighters: Planning an event or activity is a great way to raise awareness and get others involved in taking action. Organizing your awareness activity on or around September 25, 2018 will help build strength of the awareness effort and draw media attention. Activities can be small or large, social or educational, informational or fundraiser – the possibilities are endless! Get started by promoting your IAAD event or activity on the IAAD Campaign Page.

Post on Social Media

An easy and free way to help with Ataxia awareness is social media. You can post a personal story, facts, or information about Ataxia to help with the awareness efforts. NAF’s IAAD campaign kit will offer social media post ideas and images. You can follow NAF on Facebook, Twitter, and Linked In to share our IAAD messages as well. Use #IAAD18 for your social media posts to help us trend!

Donate for IAAD

Want to help with more than awareness? Donate and/or ask your friends and family to donate in your honor for IAAD.

Use NAF’s Campaign Materials

Looking for some handouts about Ataxia for your event? Or flyers to post at local venues? Shareable images for social media? NAF supplies printable and downloadable materials that you can use – free of charge! The IAAD Campaign Kit provides facts about Ataxia and suggestions for awareness topics. You can use the pieces of the kit that you find helpful and ignore the pieces that you don’t need. It is provided as a tool to help you generate ideas for your events and awareness campaigns.


Join the #FightAtaxia Social Media Campaign!

We fight Ataxia every day – in our own ways. Some by learning to live with the disease, some by teaching others about Ataxia, some by raising money for research, and others by working relentlessly on the science to understand and treat the disease. Working together, we believe the fight will lead to a cure. We want to recognize the things that people due to #FightAtaxia

We will be sharing community-submitted photos throughout our IAAD awareness campaign on social media. Join us in raising awareness and encouraging others to #FightAtaxia too!

Show Us How You #FightAtaxia

Hold up a #FightAtaxia sign or send us a picture that shows us how you #FightAtaxia. Is it working out to stay strong? Hanging out with your friends? Being daring to live life to its fullest? Finding creative ways to keep doing the things that you love? We want to see it! Send your pictures to by Sunday, September 17, 2018 to be included in the special IAAD social media awareness campaign.

Submitting a photo gives NAF the right to use your photo on social media and other marketing materials.


Post Your Event

Notify us of your IAAD event or fundraiser so that we can add it to the NAF events calendar and include it in our IAAD statistics report.
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Anyone can get involved in making a difference for Ataxia.

Make an impact today by donating to our event.

Upcoming Events

  1. Abilities Expo – Chicago

    June 21 - June 23
  2. Living Rare Living Stronger: NORD Patient and Family Forum

    June 21 - June 23
  3. Connecticut Ataxia Support Group Meeting

    June 21 @ 11:30 am - 12:30 pm
  4. Orange County Ataxia Support Group Meeting

    June 22 @ 2:00 pm - 4:00 pm
  5. Portland Support Group Meeting Trike Ride

    June 23 @ 1:00 pm - 4:00 pm