International Ataxia Awareness Day (IAAD) is on September 25th of each year. It is a coordinated effort from individuals and Ataxia organizations around the world to help shed light on this rare disease. NAF is committed to leading the way on this outreach effort – but we need your help! We encourage individuals and disease organizations to join us by planning events and/or awareness campaigns for IAAD.
Planning an event or activity is a great way to raise awareness and get others involved in taking action. Organizing your awareness activity on or around September 25, 2019 will help build strength of the awareness effort and draw media attention. Activities can be small or large, social or educational, informational or fundraiser – the possibilities are endless!
Organize an Event
Get started by promoting your IAAD event or activity. Submit the event details using the form at the bottom of this page. We’ll add it to our events calendar. Tell your friends, family, and local news outlets about your event. Contact us if you have any questions or need assistance.
Find an Event
Check out our events calendar to find an IAAD event near you. Many Walk N’ Roll to Cure Ataxia events are held in honor of IAAD. Join us at an event or walk in your area! Local support groups are also a great resource for meetings and events. Find a support group leader in your area and reach out!
We have printable materials that you can use free of charge. The IAAD Campaign Kit provides facts about Ataxia and suggestions for planning your own awareness campaign. It is provided as a tool to help you generate ideas. Want to get even more involved? IAAD is a great time to start up Ataxia advocacy initiatives. Get a proclamation for IAAD in your city or state. Instructions that explain the process are included in the downloads below. Visit our advocacy page for more info about ongoing initiatives.
Download IAAD Materials:
An easy way to help with Ataxia awareness is using social media. You can post a personal story or information about Ataxia to help with the awareness efforts. NAF’s IAAD campaign kit offers social media post ideas and images. Follow NAF on Facebook and Twitter to share our IAAD messages. Use #IAAD19 for your social media posts to help International Ataxia Awareness Day trend on social media!
Here are some graphics you can download to use on social media:
We welcome you to participate in this year’s 4-week “United Against Ataxia” campaign in recognition of IAAD. We fight Ataxia every day – in our own ways. Some by learning to live with the disease, some by teaching others about Ataxia, some by raising money for research, and others by working relentlessly on the science to understand and treat the disease. Working together, we believe the fight will lead to a cure. We want to show the world that we are #UnitedAgainstAtaxia.
We will be sharing community-submitted photos throughout our IAAD awareness campaign in September on social media. We will also be sharing things that you can do to unite with others against Ataxia. Join us in raising awareness and encouraging others to to get involved! Become a member of NAF to make sure that you get the latest information about our IAAD efforts – it’s free.
Show us the people in your life that are #UnitedAgainstAtaxia. Send us a picture of your group holding hands or locking arms. You could get together with family, friends, coworkers, or your medical care team. Be creative! We’ll use the photos that you submit for our IAAD social media campaign. Send your pictures to firstname.lastname@example.org or post them to NAF’s social media pages.*
*Submitting a photo gives NAF the right to use your photo on social media and other marketing materials.
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