I got diagnosed at 40 after always walking awkward and 2 years of being unsteady. Now I’m going to start physical therapy and apply for SSDI. It’s sad for me, I have 2 little ones but I know God will see me through.
When Were You Diagnosed? Which Type (If Known)?
Autosomal Recessive Spastic Ataxia
How Has Ataxia Impacted Your Life?
I’m slowly moving and fell a lot before the cane.
What is One Thing You’d Like the People to Know About Ataxia?
We try our best.
Share Your Advice – How Can Others Support Someone with Ataxia?
Let them cry and tell them they are doing great. Encourage them to keep going.
What is Your Ataxia Story?
As an organization dedicated to improving the lives of those affected by Ataxia, we believe that each story has the power to inspire, connect, and empower others. We invite you to share your personal Ataxia journey with us.
Are you here to read the personal stories, but haven’t yet joined as a member? We hope you find comfort in reading about the experiences of others on their Ataxia journey. We invite you to join as a member to receive a new member story each month. It’s free, and you’ll be kept up-to-date on the latest developments in the Ataxia community.
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I have a genetic disorder called Batten Disease-CLN2. Doctors don’t know why I didn’t start showing symptoms until I was in my forties- this usually Read More…
David Brown
I was a high school baseball coach for 25 seasons and had a successful 20 years in as the Public Address announcer for all the Read More…
Patrick Schmoll
I was correctly diagnosed with genetic Spinal Cerebellar Ataxia in my early 30’s. Although I have been feeling the effects since my late teens (Not Read More…
Larry
This past January I woke up with balance issues. Within a week I was using a cane. In June, my neurologist diagnosed me as having Read More…
Amanda Ryder
In medical school, one of my professors told me I had a gait disorder. I told him, “No I don’t!” Well, he was right of Read More…
