Ataxia Med News – August 2024
August 30, 2024
The 2025 Annual Ataxia Conference is in Las Vegas! Will you join us in March? LEARN MORE!
Welcome to our Provider Resource page, a hub designed to support healthcare providers who are treating patients with Ataxia.
This page offers a collection of reliable information and resources tailored to empower patients and enhance their care journey. As a clinical provider, you’ll find a variety of resources here that you can confidently share with your patients, helping them to better understand their condition and manage their health more effectively.
Ataxia Med News is intended to be a quick read for health practitioners that specialize in Ataxia clinical care. We understand the need for patient-facing resources available at your fingertips. Read through our recent issues to find exactly that.
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NAF is always updating our resources and adding new ones. Please share with patients!
These resources may be helpful to your patients who were recently diagnosed and are looking for what they should do next.
This is a collection of general resources.
Note Regarding NAF’s Genetic Counseling and Testing Initiative
Launched in 2022, NAF began offering free virtual genetic counseling and genetic testing for individuals who are at-risk for SCA1, SCA2, or SCA3. Since launch, the program has facilitated approximately 400 Pre-test Genetic Counseling sessions and returned approximately 300 genetic test results.
As of October 1, 2024, this program has reached its quota of available counseling sessions and tests available in 2024. Please stay tuned to NAF communication streams by becoming an NAF member if you are interested in a program update in 2025.
These resources are designed for healthcare providers. These resources are designed for healthcare providers. NAF is always updating our resources and adding new ones. Stay tuned for more in 2024!
NAF proudly announced our Ataxia Centers of Excellence (ACE) sites in May & September 2023. We have designated 24 U.S. and international clinics whose providers demonstrate exceptional clinical care, a commitment to professional training and research, and focus on community outreach and education for patients and families. Visit our ACE page for more information about the next cycle of applications. Reach out to Kelsey, our Clinical Services Director, at kelsey@ataxia.org for more information.
NAF provides comprehensive support and resources to those living with Ataxia. As part of our ongoing efforts, we create content on a variety of healthcare topics. We are always looking for dedicated health professionals to collaborate with to provide education to the Ataxia community. If you are interested in presenting for a webinar, being considered as a speaker at our annual patient conference, or writing content for a blog or fact sheet, reach out! Email us at research@ataxia.org with your thoughts.
Our generous donors help us fund promising Ataxia research and offer support services to people with Ataxia. Your gift today will help us continue to deliver on our mission to improve the lives of persons affected by Ataxia.
Join for FREE today! Become a part of the community that is working together to find a cure. As a member you will receive access to the latest Ataxia news with our e-newsletter and Generations publication.
