SCA Global

Launched in April 2018, the purpose of SCA Global is to create global collaboration in clinical research efforts for the SCAs to achieve the following goals:

  • To better understand the manifestation, evolution and impact of the various SCAs
  • To develop and validate biomarkers which can be used in future interventional trials
  • To facilitate access to people with SCAs who are willing to participate in clinical trials

The 1st SCA Global Conference was held on March 27-29, 2019 at the Flamingo Hotel and Casino in Las Vegas, NV. Attended by 105 leading ataxia researchers, representatives from industry, the National Institutes of Health and patient representatives. Attendees from 18 countries heard presentations from both junior and senior ataxia clinical researchers, participated in poster sessions and heard from a young woman with SCA7 and her father. Her moving story of living with ataxia began the conference in an inspiring manner that continued to impact the attendees of the 2- and 1/2-day conference.

The next SCA Global meeting will take place in Bonn, Germany in April 2020.

As an outcome of the SCA Global conference four working groups was formed:

  • Clinical outcomes
  • MR biomarkers
  • Standards of biosampling
  • SCA Global Policies

If you have an interest in being on one of the working groups, please send an email to Dr. Holm Graessner.

To be receive information on SCA Global initiatives or future meetings, please complete the contact form at this page.

2019 SCA Global Attendees:

SCA Global Sponsors