Further Development and Validation of the Cerebellar Neuropsychiatric Rating Scale (CNRS)
There are many scales that assess the disruption of drive, motivation, mood, impulsivity, anxiety,
and social cognition, in patients with psychiatric illness. However, no single scale covers the
issues that we have identified in the cerebellar patient population. There is not a scale to assess
the emotional component of the Cerebellar Cognitive Affective Syndrome (CCAS), and this highlights a lack a sensitivity of current exams regarding patients with cerebellar disorders. We aim to develop and validate a cerebellar neuropsychiatric rating scale that is sensitive to the neuropsychiatric issues experienced by patients with injuries or degenerations involving the cerebellum.
Link to Enroll: https://tinyurl.com/CerebellarStudy
About the Study
Eligible Ataxia Types
List eligible types
Type of Study
Survey
Clinical Trial Phase
N/A
Age Range
Adult 18+
Study Start Date
07/08/2021
Estimated Completion Date
07/01/2025
IRB Approval #
2021P000808
Location(s)
Massachusetts General Hospital
101 Merrimac Street, Suite 300
Boston, MA
Contact Information
Anna Burt
aburt2@mgh.harvard.edu
617-726-2476
Jason MacMore
jmacmore@mgh.harvard.edu
617-726-5060
What does participation in the study entail?
We will ask you and your caregiver/informant to each fill out a series of scales on a secured web-based survey platform. You may do these in your own time and they do not have to be filled out all at once (although they should be completed on the same day, if possible).
What are the potential benefits for participants?
There are no direct benefits to participants, however there are expected benefits to science that include a detailed understanding of how best to test for neuropsychiatric problems in cerebellar diseases in a clinical setting.
What are the potential risks for participants?
There are no clear risks associated with neuropsychiatric testing. You may experience some anxiety while filling out the scales.
Is there financial compensation?
No.
Is there travel reimbursement?
No.
Who is eligible?
We are looking to study people who are 18 years old and above, who are diagnosed with ataxia and who have a caregiver/informant who will also agree to fill out scales for the study.
Additional Information or Resources
Link to Enroll: https://tinyurl.com/CerebellarStudy
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