Neurobooth: A study of motor behavior using digital technologies
The purpose of this study is to create new digital tools to measure speech, movement, and cognition in people with and without neurological diseases. Our goal is to improve the accuracy of diagnosis and the ability to discover effective treatments.
Link to enroll: neurobooth.mgh.harvard.edu
About the Study
Eligible Ataxia Types
All Ataxias
Type of Study
Research Study
Clinical Trial Phase
N/A
Age Range
Adult 18+
Study Start Date
04/2022
Estimated Completion Date
N/A – Ongoing
IRB Approval #
2021P000257
Location(s)
Massachusetts General Hospital
15 Parkman Street
Boston, MA
Contact Information
Neurobooth Study Team
neurobooth@mgh.harvard.edu
Phone: 857-238-1520
What does participation in the study entail?
Participants will be guided through a 40-minute assessment that will measure their motor skills, eye movements, speech, and thinking using cameras and a microphone. During this time, participants will complete tasks on a computer and wear sensors on their bodies.
What are the potential benefits for participants?
There are no direct benefits, but your participation will help create new technologies to diagnose and measure neurological diseases and support the development of new treatments.
What are the potential risks for participants?
Potential risks could include loss of confidentiality and anxiety during the assessment.
Is there financial compensation?
Yes. $25 Amazon Gift Card.
Is there travel reimbursement?
No.
Who is eligible?
People who are willing to travel to Boston for the in-person assessment, have a known or possible neurologic condition, have a family history of ataxia, are healthy individuals, and are at least 14 years of age. People with and without symptoms are eligible. We want to develop tools that can detect and measure the earliest signs of ataxia.
View Other Research Opportunities
Further Development and Validation of the Cerebellar Neuropsychiatric Rating Scale (CNRS)
There are many scales that assess the disruption of drive, motivation, mood, impulsivity, anxiety,and social cognition, in patients with psychiatric illness. However, no single scale covers theissues that we have Read More…
Clinical Care of Ataxia Patients
The goal of this study is to better understand the clinical practices of providers caring for patients with hereditary ataxias. This includes geographic estimates of patient prevalence and prescription habits. Read More…
The role of the cerebellum in movement and cognition
The aim of this study is to characterize how Ataxia impacts motor control and certain aspects of cognition (such as language and decision making). Link to Enroll: http://ivrylab.berkeley.edu/participate.html About the Read More…