Perceptions of Swallowing and Experiences of Dysphagia Among People with Ataxia
The goal of this study is to explore how adults with ataxia and their caregivers experience and navigate swallowing difficulties. We are interested in learning more about the swallowing symptoms experienced by people with ataxia, the impact of swallowing difficulties in daily life, experiences with swallowing evaluation and treatment services, and perspectives on the importance and effectiveness of swallowing treatment.
Study Flyer: Download
Link to Enroll: https://unlcorexmuw.qualtrics.com/jfe/form/SV_5mOqIeiH9fBkVVQ
Disclaimer: This research opportunity is not affiliated with NAF. We are sharing this information as a resource for the Ataxia community. Sharing this information does not imply endorsement by NAF.
About the Study
Eligible Ataxia Types
All Types
Type of Study
Survey
Clinical Trial Phase
N/A
Age Range
Adult 18+
Study Start Date
2/19/2025
Estimated Completion Date
6/19/2025
IRB Approval #
20250224449EP
Location(s)
University of Nebraska-Lincoln
Remote Study
Contact Information
Caitlin Cloud and Angela Dietsch
sisclab@unl.edu
402-472-3911
What does participation in the study entail?
Eligible participants are asked to fill out an online survey that will take approximately 20-40 minutes to complete. It will consist primarily of multiple-choice questions about your experiences with swallowing and ataxia. There will be a small number of open-ended questions where you can share your perspective in your own words.
What are the potential benefits for participants?
Participants may potentially learn more about the symptoms of a swallowing problem and what resources are available for managing swallowing difficulties.
What are the potential risks for participants?
There are no known risks for participation in this study.
Is there financial compensation?
No.
Is there travel reimbursement?
No.
Who is eligible?
Adults who have been diagnosed with ataxia (any subtype) or who are primary caregivers of someone with ataxia are eligible to participate in the study. You must be at least 19 years of age and able to read/write in English to participate.
Additional Information or Resources
Study Flyer: Download
Link to Enroll: https://unlcorexmuw.qualtrics.com/jfe/form/SV_5mOqIeiH9fBkVVQ
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