The 2025 Annual Ataxia Conference is in Las Vegas! Will you join us in March? LEARN MORE!
NAF coordinates Support Groups as a way for the Ataxia community to connect and learn from others. There are more than 65 support groups and hundreds of meetings each year. Our volunteer Support Group Leaders provide this invaluable service to the community. There are in-person and virtual meeting options that vary by group.
Select your state to reveal contact information for Support Groups in your area. If there are no Support Groups in your area, try one of our virtual support group options.
Download a printable, accessible version of this map: Accessible Support Group List
Interested in volunteering as a Support Group Leader or Co-Leader?
Contact us at support@ataxia.org.
Susan Harding
Stittsville, Ontario
Phone #: 613-435-3791
Email: susangmharding@gmail.com
Facebook Group: Ataxia Support Group Canada
Amy DeLeon
Email: amydeleon8003@gmail.com
Facebook Group: HFA community
This is a support group to talk about Ataxia, discuss and share peer-to-peer resources and share stories with one another in a social gathering. Our motto is “We are all in this together.”
Susan Stiles
Email: susanataxia@gmail.com
Linda Allen
Email: leallen48@gmail.com
Facebook Group: Ataxia Resources and Discussion Group
Website: www.ataxia.org/ardg
This group was formed to be a supportive, caring and sharing environment. It is a private Facebook group for people affected by Ataxia, including family and friends. You can only see posts in the group if you join as a member.
Facebook Group: Virtual Ataxia Support Group
You must have Ataxia yourself and be ages 16-30 to join this group. Parents/Spouses/Friends of people with Ataxia are not permitted.
Shelbi Davenport
Email: shelbidavenport2020@gmail.com
Evan Gress
Email: evan.gress@outlook.com
Facebook Group: Under 30 With Ataxia
This group is for spouses and partners without Ataxia who have a spouse or partner with Ataxia. This is our spot to learn from one another, vent, have fun, and discuss topics important to us!
Dana Mauro
Email: ataxiafacts@gmail.com
Facebook Group: Spouses and Partners
This group is for parents who have a child who has Ataxia. This is our spot to learn from one another, vent, have fun, and discuss topics important to us!
Suzanne Martin
Email: martin.suzannedt@gmail.com
Michelle Shepard
Email: michelle.shepard@systeloa.com
Facebook Group:
Parents of Kids With Ataxia
This group is for African-Americans with Ataxia to connect with each other to share resources and experiences.
Letitia Diggs
Email: Letitia.diggs@iCloud.com
Phone #: 202-386-8289
Veronica Denis
Email: aaataxia@gmail.com
Facebook Group: African Americans with Ataxia
This group is for Military & Veteran members who have been diagnosed with some form/type of Ataxia. This Team Room is a platform to share experiences and information related to Ataxia, as well as provide support, education, awareness, and discuss personal observations with each other to learn and become aware of how Ataxia affects individuals. ***Note*** This Team Room is also used to initiate (with members permission) a database of names and stories of how individuals became affected and to study if there is any correlation of what, if anything, we did, or environments we were exposed to during our military tenure, that caused symptoms to appear in persons with hereditary Ataxia’s or to cause Acquired Ataxias.
Mike DeRosa
Email: derosam2004@yahoo.com
Phone #: 919-478-5906
Facebook Group: Military Members with Ataxia
This is an Ataxia support group for people aged 30 to 55. You must have Ataxia yourself to join this group. We welcome members from any location!
Daniel Gavern
Email: dkgavern@gmail.com
Facebook Group: 30-55 with Ataxia
You must have Ataxia yourself to join this group. Though we are grateful for the support of Parents/Spouses/Friends of people with Ataxia, this group is not for them. This is our spot to learn from one another, vent, have fun, and discuss topics important to us!
Jeanne Harrington
Email: jpharri39@gmail.com
Cindy Michul
Email: michlecynt@gmail.com
Facebook Group: Just Us Ataxians
Upcoming support group meetings can be found below. Click on a meeting for more detailed information about how to join. Feel free to join any virtual meeting, even if the support group is not in your area.
See what the Support Groups have been up to with the latest Support Group updates.
We are always looking for volunteers to be a Support Group Leader. Email support@ataxia.org for more information.
Our generous donors help us fund promising Ataxia research and offer support services to people with Ataxia. Your gift today will help us continue to deliver on our mission to improve the lives of persons affected by Ataxia.
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